The “Twitterverse” is pretty mainstream now and not just for the younger generations any more. Of the many, many uses for twitter, cancer information, education and support are gaining ground. Twitter is fast, easy, mobile and instantly gratifying. Information literally at your fingertips.
Several articles have been published on the increased use of twitter by cancer patients, from cancer patients tweeting through chemo, “power” cancer patient tweeters in Japan, and a controversial article in ASCO about a breast cancer patient tweeting about her disease.
Tweeting is easy. Set up an account and go! If you are interested in getting some good information back from Twitter though, you should choose carefully whom to follow.
All news sources are on Twitter, so it’s easy to find them and follow them. All top cancer medical centers are on Twitter and they are a great source of information on cancer research, news, clinical studies and basic medical information. Here a just a few to start with:
Patient support groups for cancer patients are numerous and you can usually find one that is specific to your illness. Again, here are some to start with:
@StupidCancer – mainly for young cancer patients
@MyBCTeam – for breast cancer survivors
@PCFNews – Prostate Care Foundation
@PanCan – Pancreatic Cancer Action Network
There are many, many more – this is just a small sampling. To find specific groups or people to follow, you should use the search engine on Twitter or do a hashtag search and see what comes up. For instance, if you are interested in following groups or people that tweet about stomach cancer, do a search and research their profiles. For instance, I just searched “stomach cancer” and this is what came up:
You can now go to these twitter profiles and see if these are some people that you would be interested in following.
And if I do a hashtag search for #stomachcancer, I find this:
So you can go to these twitter profiles and see if any of them appeal to you.
It’s quite simple and you can follow some groups and people for a while and then “unfollow” them if their tweets are not what you were looking for. Once you follow people or groups that you know have the same interests as you, you can use them as your “news stream” and tailor your stream to the kind of information that is most suited to you.
Twitter is easy, quick and gets to the point right away (it has to – with only 240 characters allowed by tweet!) It’s a great way to keep informed and have custom-made information at your fingertips.