Interview With Cancer Patient, Lisa Weiss
Lisa Weiss, a 3x cancer survivor, has an aggressive form of chronic lymphocytic leukemia. Lisa underwent chemotherapy for her CLL, but she was not responsive. She and her doctor researched clinical trials and found a trial that was just opening.
Carol Preston, a CLL patient herself, interviews Lisa about her experience with her disease, how she searches for information and her relationship with her medical team.
Lisa explains that she has been dealing with her disease for quite a while. She founded a support group on Facebook (CLL, SLL, NHL Cancer Support for Women) and helps new patients navigate their journey. It is the new patients who have so many questions and who are quite overwhelmed that Lisa tries to help. She keeps her group posts understandable and less technical so that newer patients can learn about their disease and easily take questions to their doctor.
Lisa says that her doctors listen to her because they know her and know her history and know that she wants to take part in her treatment. Lisa’s doctors know what her goals are and what she wants to achieve. She adds that once a patient has confidence and understands about their illness, the conversations are pretty easy.
Lisa concludes by advising patients to learn as much as they can. Once you understand the risk/benefit, you can make decisions more easily.