As 2016 comes to an end, we would like to take a moment to highlight a few of our most popular posts from each month and to thank the people who contributed to the popularity of these posts. We cannot thank the authors and organizations enough that have contributed to make 2016 one for the books, such as Marie Ennis-O’Connor, Melissa Van Houten, Treatment Diaries, David Wallace, Marcia Donziger, and Edward Leigh. Your efforts to Patient Empowerment Network are greatly appreciated.
Marie Ennis-O’Conner explains how the potential of digital technology will never be realized if unless the stakeholders work alongside patients in co-designing solutions that will truly engage, enable, and empower the end-user.
After a decade of work and personal experiences, Ed created the educational tool – Engaging Your Patients 2016 Calendar. In this calendar, there is a tip-a-day to connect, interview and educate patients in the hopes of improving patient satisfaction and safety.
Short how-to for beginners to learn how to use twitter to become educated and empowered patients
From Treatment Diaries, a “cancer free” patient shares the daily complications from the treatments that cured the cancer.
Marie Ennis-O’Connor explores the importance of shared decision-making (SDM).
A concise guide to help you understand and participate in Tweetchats.
Marie Ennis-O’Connor explains the importance of more accessible, understandable, and credible healthcare information rather than just more untrustworthy content.
CLL 101 is an online course offered through ePatient101.com created in partnership with the Patient Empowerment Network and Intake.me. To introduce our course, a #patientchat was held on March 18 at 1 PM EST and the included tweets are some highlights from the chat.
Interview with C. Ola Landgren, MD, PhD, Chief, Myeloma Service Memorial Sloan Kettering Cancer Center.
Interview with Thomas Martin, MD, Associate Director at the Myeloma Institute UCSF Medical Center.
Interview with Patient Advocate, Jennifer Abraham.
A concise explanation of telehealth plus top ways that it can benefit patients
Panel Interview with lung cancer experts Emma Shtivelman, PhD, Chief Scientist Cancer Commons, Mary Ellen Hand, RN, BSN, Nurse Coordinator Rush University Medical Center, and Stage 4 Lung Cancer Patient, Mary Williams.
Marie Ennis-O’Connor describes the need for chronic illness patients to be treated as whole people rather than pieces of people.
Interview with David Wallace, founder of PV Reporter and MPN Cancer Connection.
Marie Ennis-O’Connor shares her tips to separate fact from fiction when searching for reliable medical information.
Marie Ennis-O’Connor gives seven tips to engage your audience online and inspire them to take action around your cause by using digital tools and applications.
From the Lung Cancer Town Meeting in Chicago, Illinois, Janet Freeman-Daily interviewed Dr. D. Ross Camidge about how lung cancer patients can contribute to cancer research.
Marie Ennis-O’Connor shares some of her concerns and experience about blogging about her illness.
Recently, social media has been a big part of advances in how we identify and treat rare disease. Patients with these diseases are for the first time able to reach across geographic and cultural borders to band together, giving critical mass to efforts like fundraising and clinical trial enrollment that might otherwise wither away.
Melissa Van Houten shares her story and discusses the stress that comes along with a chronic illness.
Overview of our pilot digital sherpa™ Workshop.
From the Lung Cancer Town Meeting in September 2016, the panel of lung cancer experts talk about what patients should bring to their second opinion.
MyLifeLine.org founder and ovarian cancer survivor, Marcia Donziger shares 5 of the lessons learned after she was diagnosed with ovarian cancer at age 27.
Amy Gray interviews Andrew Schorr on his thoughts about the advances in cancer treatment in 2016.
In her latest blog, Marie Ennis-O’Connor, gives 15 tips to help you become a more empowered and engaged partner in your own health – and the health of those you care for.