Patients Helping Patients Blog
A Husband’s Myeloma Journey
Real patient experiences shared privately at www.TreatmentDiaries.com. Read more, share if you like or join in the conversation. Making sure you feel less alone navigating a diagnosis is important. Connecting you to those who can relate and provide support is what we do.
I don’t personally have myeloma but my husband was diagnosed with it 2 1/2 years before he passed away. The diagnosis came out of nowhere and to say we were taken by surprise is an understatement. The symptoms seem to take the doctors down a myriad of possible paths and it felt like we wasted so much time standing still waiting for a prognosis. It was such a difficult disease to diagnose. We never had any false verdict’s as to what we were dealing with, we just didn’t have many clues leading up to the “ah ha” moment. It felt like a bad dream sitting across the table from a team of doctors as they carefully laid out their findings. The medical speak was ever so confusing and as we held on to each word and tried to comprehend the meaning, they seemed to rush forward with the next complicated series of words. What were they saying? It didn’t seem positive, or was it? We sat in silence…tears running down our cheeks unsure of what to say and how to respond. There were absolutely NO words.
Leaving the doctor’s office is a blur and the hours and days that followed are a distant memory. When the fog finally lifted, he came out fighting for his survival with an open mind toward beating this beast. He started treatment and things escalated – his pain was unbearable and daily. The cancer was spreading quickly and not much could be done, but he still persevered. He never let the family know how much he was hurting but I knew and could tell what he was going through – it was difficult watching him suffer, yet the Lord was good. His oncologist kept on top of his pain with different pain killers which helped as much as it could. We were grateful for God’s perfect grace in enabling him to endure what he did and for the way God enabled me to care for him.
The 2 ½ years which passed before we lost him was gone in a blink. He no longer suffers and his memory lives on yet we miss him terribly. Myeloma is a difficult disease with different people’s bodies responding in such different ways to the disease itself and to the treatments. I feel that my husband’s time was not as difficult as many others with this disease and for this I am thankful. “Life and death are always so mixed up together, in the same way that some beginnings are endings and some endings become beginnings.” May his experience and journey be helpful to those who can relate – cancer is no picnic, no matter what type or how great the odds of survival. Blessings to each patient, caregiver and healthcare team participating in this battle.