The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS.
A major Foundation effort is the international information network. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to physicians, nurses, pharmacists and patients.
In response to the needs expressed by patients, families, and healthcare professionals, they have established patient advocacy groups, research funding, and professional educational initiatives.
The MDS Foundation is a publicly supported organization, exempt from federal income tax under section 501(C)(3) of the IRS code.