From Disbelief to Determination: My Follicular Lymphoma Journey

From Disbelief to Determination: My Follicular Lymphoma Journey

Follicular lymphoma survivor Jerome was shocked with disbelief when he received his diagnosis. Watch as he shares his experience that began as a marathon runner and through his journey with R-CHOP, shared decision-making, benefits of exercise, and support groups.

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Transcript:

Voiceover:

Shared decision-making involves collaboration between patients and healthcare providers to make decisions that align with the patient’s values, preferences, and individual circumstances.  Listen to Jerome’s journey from shattered with disbelief to being informed  and how it transformed his journey.

Jerome:

Hi, My name is Jerome, and I was shocked to my core to receive my follicular lymphoma diagnosis at age 40. I take pride in living a healthy lifestyle and running marathons on a regular basis in Colorado, so I was truly in disbelief when I received my follicular lymphoma diagnosis. The only symptom that I had along with the lump in my lymph nodes was some slight weight loss, but my diagnosis came back as follicular lymphoma after my lymph node biopsy and blood tests.

 As someone who prefers to attack challenges, I found it frustrating to have to wait a few weeks before starting treatment. After talking with my doctor, she put my worries at ease.  We then discussed my treatment options and made the shared decision that R-CHOP would be the best treatment option for me. My wife was in complete agreement about the treatment decision and has been an incredible support for not only me but for our two teenage sons.

 And some patients in my online support group have been in disbelief about my upcoming marathon plans. Even during my toughest days, I always made efforts to at least do some walking down the hallway. It may sound simple, but I feel that it made a measurable impact on my quality of life during and following treatment. Even in small amounts, I feel that exercise helps cancer patients in their recovery. My doctor agrees with this theory as well, as she’s witnessed the difference that physical activity has made with her patients’ recovery times.

To other patients and caregivers out there, I hope sharing my story helps you or your loved one on your journey. I’ve educated myself about follicular lymphoma treatments, and the future of care looks bright. Even though my journey began with being shattered with disbelief, I now feel whole and hopeful for all patients facing  follicular lymphoma.