Patient and Advocate Profile: Hannah and Carrie Ostrea
Before she was a year old, Hannah Ostrea was diagnosed with a rare genetic metabolic disorder, Neuronopathic Gaucher’s Disease type 2 or type 3. Hannah’s mom, Carrie, says the doctors […]
Jennifer Lessinger is a professional writer and editor who learned the value of patient empowerment during her struggle with a hard-to-diagnose and complex endocrine disorder.