Entries by Jennifer Lessinger

Patient and Advocate Profile: Hannah and Carrie Ostrea

Before she was a year old, Hannah Ostrea was diagnosed with a rare genetic metabolic disorder, Neuronopathic Gaucher’s Disease type 2 or type 3. Hannah’s mom, Carrie, says the doctors […]

Spotlight on National Minority Health Month

April is National Minority Health Month. Supported by Congress with a resolution in 2002, National Minority Health Month is meant to bring awareness to the disparities in health and healthcare […]

Patient Advocate: Paul Ennis

In January 2012, Paul Ennis and his wife became caregivers to Paul’s parents, Mary and Thomas. Mary, who had severe osteoporosis, was showing increasing signs of Alzheimer’s disease. Caring for […]

Notable News: March 2018

Medicare-eligible cancer patients just got more access to genetic testing according to reuters.com. The U.S. Centers for Medicare and Medicaid Services will now pay for some genetic tests in order to […]

Patient Profile: Justin Salce

Justin Salce Acute Myeloid Leukemia When he was just 17 months old, Justin Salce was diagnosed with, and underwent treatment for, acute myeloid leukemia (AML). Justin is 17 years old […]

Notable News: February 2018

Sometimes, even the most seemingly unrelated of symptoms can be a warning sign of cancer, says nytimes.com. While some might associate depression as a side effect of cancer, it can actually […]

Patient Profile: Jennifer Maxfield

Patient Profile Jennifer Maxfield Cervical Cancer Jennifer Maxfield describes herself as a very private person. It’s hard for her to share her story. It’s emotional and it’s out of her […]

Notable News: January 2018

The Food and Drug Administration has approved yet another new cancer treatment, reports npr.org. Known as Luxturna it is the first gene therapy to treat an inherited disease in adults and […]

Patient Profile: Kirk Beck

Patient Profile Kirk Beck Prostate and Head and Neck Cancer What is significant to Kirk Beck is not that he’s had cancer. He delivers his story with minimal detail about […]

Patient Profile: Cali Trepkowski

In March 2015, 8 year old Cali Trepkowski vomited on the way to school. She stayed home from school that day, but she seemed to be fine as the day […]

November 2017 Notable News

All cancer, on a very basic level, is the same. It is the uncontrolled growth of cells. However, each type of cancer varies greatly and that is why early detection […]

Caregiver Profile: Heather Cimino

In recognition of National Family Caregivers Month, we are using this month’s Patient Profile to profile a caregiver. You can learn more information about National Family Caregivers Month here. Heather Cimino’s […]

October 2017 Notable News

Immunotherapy is back in the headlines this month with nytimes.com reporting another treatment being approved by the FDA. This second therapy is called Yescarta and is made by Kite Pharma and uses […]

Patient Profile: Dana Oakes

Dana Oakes Breast Cancer Her diagnosis came in October 2011 during a routine mammogram. She says that when the technician came in for more pictures she knew immediately she had […]

Notable News

Remember last month when we told you about the successful immunotherapy test trial known as CAR T therapy using the patient’s own immune cells to fight leukemia? There was a […]