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Entries by pen_user
My year is off to a rocky start – Myeloma is wreaking havoc on my body and doing a number on my ever-weakening immune system. New Year’s Eve I went to the emergency room…. they ran tests and sent me home. A few weeks ago, I went to the ER again as I have been […]
Media Advisory Two upcoming digital sherpa™ Workshops offer unique support to local cancer patients Fort Myers, FL – March 9, 2017… In partnership with Patient Empowerment Network (PEN) and Florida Gulf Coast University (FGCU), Florida Cancer Specialists & Research Institute (FCS) is pleased to announce two upcoming digital sherpa™ Workshops on Thursday, March 16, 2017 […]
What Is It? International Women’s Day (March 8) is a global day celebrating the social, economic, cultural and political achievements of women. The day also marks a call to action for accelerating gender parity. International Women’s Day (IWD) has been observed since in the early 1900’s – a time of great expansion and turbulence in […]
Editor’s Note: This blog was written by Lisa Davis-Budzinski If you found your way to this article, that means you or someone you know and love has a chronic pain condition and are searching knowledge for treatments. I have been managing a chronic pain condition known as Central Pain Syndrome, due to having a stroke, […]
The ePatient virtual classrooms are designed to empower patients in all their healthcare matters. ePatient 101 ePatient101: How to be an Empowered Patient, is an online course for anyone interested in becoming an empowered patient, empowered caregiver, or patient advocate. Through this online course taught by Alex Barfuss, you will learn: The meaning of the term […]
Essential Thrombocythemia (ET) Background QuintilesIMS Global Services, a worldwide consulting firm, is conducting a research study to better understand the experience of ET patients. QuintilesIMS plans to interview patients who have been diagnosed with ET one‐on‐one over the phone. QuintilesIMS is looking for interested people to share what they have gone through since being diagnosed […]
Real patient experiences shared privately at www.TreatmentDiaries.com. Read more, share if you like or join in the conversation. Making sure you feel less alone navigating a diagnosis is important. Connecting you to those who can relate and provide support is what we do. I am a 32 year old woman- oh wait- 33 now! 32 […]
The American Institute for Cancer Research (AICR) estimates that approximately one-third of cases of the most common cancers in the U.S. could be prevented, which accounts for about 374,000 cases of cancer per year. Cancer prevention is action taken to lower the chance of getting cancer therefore reducing the burden and deaths from cancer each year. Since […]
We are pleased to announce that we will be attending our parter, The Conference Forum’s, Patients as Partners US Conference this March in Philadelphia, PA. We are looking forward to hearing from leaders in the industry, meeting with colleges, and learning how to incorporate the patient perspective. The 4th Annual Patients as Partners US is the […]
The digital sherpa™ Program helps cancer patients and care partners become more tech-savvy in order to be empowered in their health and healthcare decisions. The program is currently carried out in two different versions, either a in-person, hands-on digital sherpa™ Workshop or through the creation of a digital sherpa™ Help Desk at well known cancer centers. […]
The Conference Forum is a life science industry research firm that develops conferences primarily around how to get therapeutics to patients faster. We examine and challenge the complex ecosystem of drug development and delivery, bringing good ideas together from a variety of sources to help advance clinical research with common goals that are patient-focused. The […]
Founded in 2013, Intake.me is an innovative digital health company located in Los Angeles building a patient and doctor engagement platform that lets patients capture all their health matters and share it with their entire health care team. Health care consumers, such as patients and caregivers, can track symptoms, conditions, diagnoses and store medical records […]
The Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer. Likely the largest employer of psychosocial oncology mental health professionals in the United States, CSC offers a menu of personalized services and education for all people affected by cancer. Its global network brings the highest […]