AA•MDS has launched a map of specialists who are seeing new patients for treatment or consultation.
It’s important for patients to seek consultation with physicians who have experience working with bone marrow failure disease. They have developed an interactive map of physician specialists in bone marrow failure disease who have worked with them in a significant way as speakers, writers, editors, and/or advisors. This map will allow you to search for physicians in your area by location using the zoom-in feature, by zip code, or by disease area utilizing the dropdowns provided below.
Please note:
This list is not comprehensive and there may be specialists in your area who have not yet been included.
Physicians may move to another institution for various reasons and may no longer be at the location noted on this map.
https://powerfulpatients.org/wp-content/uploads/Research-and-Internet-Claims-Guide.png600600Kara Rayburnhttps://powerfulpatients.org/wp-content/uploads/New-Logo-300x126.pngKara Rayburn2019-10-16 20:07:402019-10-17 13:26:44AML Research and Internet Claims Program Resource Guide
Appointments with your physician can be overwhelming. To optimize your visit, it’s best to arrive organized and prepared to take notes. Our Office Visit Planner can help. Guides for your first office visit as well as your follow-up office visit, tailored for patients and caregivers, are available below. Download, print and bring along with you to the appointment.
https://powerfulpatients.org/wp-content/uploads/FF-Guide-causes.png600600Kara Rayburnhttps://powerfulpatients.org/wp-content/uploads/New-Logo-300x126.pngKara Rayburn2019-06-05 15:40:502020-10-07 11:42:28Fact or Fiction? AML Causes and Symptoms Program Resource Guide
The ePatient virtual classrooms are designed to empower patients in all their healthcare matters.
ePatient 101
ePatient101: How to be an Empowered Patient, is an online course for anyone interested in becoming an empowered patient, empowered caregiver, or patient advocate. Through this online course taught by Alex Barfuss, you will learn:
The meaning of the term “ePatient”
Why being an ePatient is so important in today’s healthcare system
How you can save time and money and get better overall value from your health care providers
How to advocate for yourself
Tools, tips and best practices to help manage your or your loved one’s chronic disease
Caregiver 101
Caregiver 101 is full of useful tools for caregivers and taught by Caregiving.com founder, Denise Brown. By taking this course, you will learn:
How the carer/caree relationship can be a health relationship
How to find balance
How to find more time for your self
How to ask for support
Tips, tools, and tactics to be a better carer/caree
Curated links and resources
Videos
Knowledge quizzes
Support from a community of caregivers at cargiving.com
Chronic Lymphocytic Leukemia (CLL) 101
We are excited to be partnering up with Intake.me to bring you CLL 101. We wanted anyone struggling with a recent CLL diagnosis to become empowered through knowledge and support. By taking this course, you will receive:
An overview of CLL
Facts about CLL
Curated links and resources
Videos
Knowledge quizzes
Printable checklists with questions to ask your doctor
Why you should immediately get a second, expert opinion
Tips on building your healthcare team, and how your local doctor can work with a CLL expert to provide the best treatment
Where to find the latest CLL research, clinical trials, and other treatment options
Ability to ask questions from other CLL 101 students
These courses are part of the Intake.me experience and are free to everyone. You can sign up be clicking one of the buttons below. Enjoy!
