This video was originally published by the National Cancer Institute on June 13, 2018, here.
Immunotherapy uses the body’s immune system to fight cancer. This animation explains three types of immunotherapy used to treat cancer: nonspecific immune stimulation, T-cell transfer therapy, and immune checkpoint inhibitors. http://www.cancer.gov/immunotherapy
These videos were originally published by the American Cancer Society here.
Clinical Trials Videos
Knowing all you can about clinical trials can help you feel better when deciding whether or not to take part in one as part of your cancer treatment. Explore these videos to get answers to basic questions and concerns about clinical trials so that you will be better prepared to discuss this option with your doctor and your family. (ACT videos were produced by Genentech in collaboration with the American Cancer Society.)
ACT: Why Should I Consider a Cancer Clinical Trial?
ACT: How Will I Know If a Trial Is Right for Me?
ACT: How Should I Prepare for Discussions With My Doctor?
ACT: What Is Informed Consent?
ACT: What Standards Are in Place to Safeguard Trial Participants?
ACT: Where Can I Turn for Information and Support?
Editor’s Note: This post was originally published here on MyLifeLine.org. The mission of MyLifeLine.org is to empower cancer patients and caregivers to build an online support community of family and friends to foster connection, inspiration, and healing through free, personalized websites.
Learn About Clinical Trials
Why consider a cancer clinical trial?
What clinical trials can offer, from the care you receive to the impact you can make.
Clinical trials offer a chance to receive investigational medicines or procedures that experts think might improve the treatment of cancer. This important option is not limited to people who have run out of choices. In fact, there may be clinical trials for every stage of disease in dozens of cancer types. In this video, patients and doctors share their perspectives on why joining a clinical trial may be an option worth considering.
“To have the opportunity to go on a clinical trial for a patient is extremely exciting.” —Sandra Swain, MD; oncologist
I don’t want to be a guinea pig for an experimental treatment.
Cancer clinical trials are developed with high medical and ethical standards, and participants are treated with care and with respect for their rights.
I’m afraid i might receive a sugar pill or no treatment at all.
The Truth:Cancer clinical trials rarely use placebo alone if an effective treatment is available; doing so is unethical.
Cancer clinical trials are only for people with no other treatment options.
The Truth:Trials can study everything from prevention to early- and late-stage treatment, and they may be an option at any point after your diagnosis.
I’m worried that I won’t receive quality care in a cancer clinical trial.
The Truth:Many procedures are in place to help you receive quality care in a cancer clinical trial.
People might access private information about me if I participate.
The Truth:In nearly all cancer clinical trials, patients are identified by codes so that their privacy is protected throughout and after the study.
I’m afraid that my health insurance will not help with the costs of a cancer clinical trial.
Many costs are covered by insurance companies and the study sponsor, and financial support is often available to help with other expenses; talk to your doctor to understand what costs you could be responsible for.
Informed consent only protects researchers and doctors, not patients.
Informed consent is a full explanation of the trial that includes a statement that the study involves research and is voluntary, and explanations of the possible risks, the possible benefits, how your medical information may be used, and more. Informed consent does not require you to give up your right to protection if the medical team is negligent or does something wrong.
I’m afraid that once i join a cancer clinical trial, there’s no way out.
You have the right to refuse treatment in a cancer clinical trial or to stop treatment at any time without penalty
How to know if a cancer clinical trial is right for you.
There are many factors to keep in mind when considering a cancer clinical trial.
As with any important decision, it’s a good idea to think about the risks and benefits of joining a cancer clinical trial. This video encourages you to ask your medical team about all of your treatment options, including cancer clinical trials. Trial participants, doctors, and patient advocates explain the factors you’ll want to keep in mind as you consider your treatment plan.
“I’ve always advised patients…when the circumstances weren’t urgent, to take time to understand their disease and to evaluate the alternatives.” —Sandra Horning, MD; oncologist and chief medical officer
What to ask your doctor(s)
Asking The Right Questions Keeps You Involved In Your Care
A cancer diagnosis is often overwhelming, and it’s sometimes hard to gather your thoughts and know the right questions to ask. This video talks you through some of the questions it will be helpful to ask about your cancer, your treatment options, your doctor, and about whether participating in a cancer clinical trial is right for you.
“Talk to your doctor and say, ‘Tell me my full options.’ Raise questions. Be a pain in the neck. That’s what the doctor is there for.” —Arthur Caplan, PhD; medical ethicist
Rules And Procedures Are In Place So That You Will Receive High-Quality Care
Before a single patient can join a trial, many different experts must approve every detail of the study—from why it’s being done to how often patients should be monitored. Once the trial begins, more unbiased experts provide oversight to check that the rules of the trial are being followed and patients’ rights are protected. This video features doctors and patient rights advocates explaining the high standards by which trials are developed and run.
“I explain…that when they’re on a clinical trial, they’re going to be followed very closely by…specific guidelines.” —Daniel P. McKellar, MD; surgeon and Commission on Cancer chairman
Informed Consent Describes The Study Process, Potential Risks And Benefits, And Your Rights As A Participant
If you are eligible and decide to join a trial, you will be required to review and sign the informed consent forms. This can be an overwhelming process, but it is how you will learn all the details of the trial, including the potential benefits and the possible risks, and give your permission to be treated. This video features patients, doctors, and patient rights advocates who offer tips and insights to help you navigate the process of informed consent.
“When I received the stack of papers…it made me realize this is really serious. But then…it was actually a good feeling to know that this was not something that was being done lightly.” —Rose Gerber; trial participant
Information And Support Are Close At Hand
Because so many people have been affected by cancer, there are many reliable and helpful resources to help you through your cancer journey. In this video, trial participants and doctors help you find the people and resources that may be helpful in educating you about cancer clinical trials.
“The first thing is to hold on tight and be optimistic and to get very engaged and educated about your cancer.” —Jack Whelan; trial participant
Reliable Resources To Help Along The Way
First, talk to your doctor
Your healthcare team is the best source for information about your treatment options, including cancer clinical trials. There are many questions you’ll want to ask your healthcare team when you’re ready to discuss treatment options. Print this helpful Discussion Guide and bring it to your next appointment so that you don’t forget anything important. Record your answers on the form and keep it handy for future reference.
This free, confidential program helps patients, their families, and healthcare workers find cancer clinical trials most appropriate to a patient’s medical and personal situation. We can help you find research studies that are testing new drugs or methods to prevent, detect, or treat cancer
There are millions of people just like you who are ready to ACT against cancer. These organizations provide advocacy, information, awareness, fundraising opportunities, and a community of like-minded people touched by cancer.
Interview With Dr. Michael Thompson (@MTMDPhD), Medical Director, Early Phase Cancer Research Program, University of Wisconsin
In Carol Preston’s interview with Dr. Michael Thompson, he states that about 60% of children participate in clinical trials, but only 3-5% of adults do. So, the question becomes, why are there so few adults participating in clinical trials? What are the adults afraid of? Dr. Thompson goes through some of the reasons why adults do not participate as much in clinical trials as much as children:
Patients do not qualify for the available trial
Patients believe trials require more testing, resulting in more travel and higher costs
Patients think trials may require too much effort on their part
Many patients distrust clinical trials
Patients don’t believe in the drugs
Many patients are not even aware of available clinical trials
Patients are afraid of receiving a placebo
Patients are afraid of having adverse side effects from the medication
Check out the full video below as Dr. Thompson further discusses this topic and how trial enrollment statistics could change through patient education and engagement. If cancer patients are informed about what clinical trials could offer them, or if they are able to ask questions, more adult patients may be more willing to participant in these trials.
https://powerfulpatients.org/pen/wp-content/uploads/2015/11/Screen-Shot-2015-11-11-at-11.08.00-AM.png457850Kara Rayburnhttps://www.powerfulpatients.org/pen/wp-content/uploads/New-Logo-300x126.pngKara Rayburn2015-11-12 09:31:292019-09-02 12:20:31Why So Few Adults in Clinical Trials?