Understanding Your Role in Your Ovarian Cancer Care
What steps can ovarian cancer patients take to be proactive in their care? This animated video shares tips and advice for speaking up, engaging in decisions and tips for learning more about ovarian cancer.
See More from COLLABORATE Ovarian Cancer
Related Resources:
Becoming Empowered and [ACT]IVATED After An Ovarian Cancer Diagnosis |
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Optimizing Ovarian Cancer Care: Genetic Testing and Treatment Approaches |
Transcript:
Dr. Thompson:
Hi! I’m Dr. Thompson, and I specialize in treating gynecologic cancers, which are a group of cancers that impact a woman’s reproductive organs.
Today, I’m here with Sarah, who’s living with ovarian cancer.
Sarah:
Hi everyone! In this video, Dr. Thompson and I will discuss the important role that patients play in their care and will share steps you can take to feel confident when making decisions WITH your healthcare team.
Dr. Thompson:
And Sarah and I know firsthand that this starts with finding a healthcare team that supports you. Feeling at ease when discussing your thoughts and concerns is crucial, because sharing your input can impact your overall care.
Sarah:
Absolutely. When I was first diagnosed, I felt anxious and overwhelmed, but Dr. Thompson encouraged me to ask questions, which helped me feel more in control.
I also found that seeking care from a specialist made a big difference. Dr. Thompson, can you talk about why that’s so important?
Dr. Thompson:
Of course, Sarah. Specialists, like gynecologic oncologists, have the expertise to provide the most up-to-date treatments and recommendations for ovarian cancer. They can offer a more personalized approach to your care, which can help manage the disease more effectively.
Sarah:
Exactly—collaborating with a specialist boosted my confidence in my treatment choices. It also made me realize the importance of learning about my cancer, so I could participate in conversations about my care.
Dr. Thompson:
Absolutely, Sarah. Educating yourself is another key step in feeling empowered. When you understand more about your disease, your diagnosis, and available therapies, it helps you make decisions that are best for you.
And to help you learn more about your ovarian cancer, here’s my advice for where to start:
- Learn about your specific diagnosis: Ask your doctor about the type and stage of your ovarian cancer. This information will guide your treatment options.
- Additionally, ensure you have had biomarker testing, including genetic testing: The test results will help you and your care team better understand your diagnosis and may affect therapy.
- Prioritize your mental health: Managing a cancer diagnosis can be emotionally challenging. Seek support from mental health professionals or support groups to help cope with anxiety and stress.
Sarah: I completely agree, Dr. Thompson. And, there are also plenty of resources available which provide valuable information. Here are few reputable resources you can rely on:
- The Patient Empowerment Network
- The American Cancer Society
- The Foundation for Women’s Cancer
- FORCE — Facing Our Risk of Cancer Empowered
- SHARE Cancer Support
- The Society of Gynecologic Oncology
Dr. Thompson, what advice do you have for getting the most out of your time with your provider?
Dr. Thompson: Great question, Sarah. Here are a few tips:
- First, be prepared: Write down any questions or concerns you have before your visit.
- Then, take notes: Bring a notebook or something to record details during your appointment.
- Also, bring a friend or family member: Having someone with you can provide emotional support and help you to remember the information shared.
- Finally, discuss your goals: Be clear about your treatment needs and any lifestyle concerns you may have. Don’t hesitate to speak up during the visit and to ensure all of your questions have been answered.
Sarah:
Those are really helpful tips. Having my sister with me during appointments was comforting, and she often thought of questions I hadn’t considered.
Dr. Thompson:
That’s a great point, Sarah. Remember, you are the center of your care team. Stay engaged and never hesitate to reach out if you have questions or don’t understand something.
Don’t forget to download the guide that accompanies this video. And for more information about ovarian cancer, visit powerfulpatients.org.
