Melanoma – Online Resources

This resource was originally published by Melanoma International here.

Online Resources

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Caregiver ResourcesClinical TrialsPrescription Drug AssistanceSupportHospiceHotlines and ForumsInsurance/Financial AssistanceLodgingLymphedemaOther Types of MelanomaPain ManagementRadiationSuggested ReadingSurvivorshipTransportation


Caregiver Resources

Caregiver Action Network

1130 Connecticut Ave, NW
Suite 300
Washington, DC 20036

Phone: (202) 454-3970
www.caregiveraction.org

Caregiver Action Network works to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

Family Caregiver Alliance

785 Market Street
Suite 750
San Francisco, CA 94103

(415) 434-3388
(800) 445-8106
www.caregiver.org

FCA seeks to improve the quality of life for caregivers through education, services, research, and advocacy. FCA’s National Center on Caregiving offers information on current social, public policy and caregiving issues, and provides assistance in the development of public and private programs for caregivers.

The Caregiver Relief Fund

900 South Wabash Avenue
Suite 603
Chicago, IL 60605

https://caregiverrelieffund.wordpress.com/

A social venture committed to caring for caregivers. Provides resources, assistance and a voice to over 50 million Americans who are currently caregivers to the chronically ill, aged and disabled.

4th Angel

9500 Euclid Avenue R36
Cleveland, OH 44195

(866) 520-3197
www.4thangel.org

The 4th Angel Program is part of the Scott Hamilton CARES Initiative. This is a free, national service which provides a one-to-one supportive relationship (phone or email based) to cancer patients and their caregivers. The program has over 400 patient and caregiver mentors who are at least 6 months post treatment, and continues to train more mentors.

Caregivers4Cancer

P.O.Box 153448
Irving, Texas 75015

(800) 787-2840
(972) 513-0668
Caregivers4cancer.com

Organization strives to educate and assure caregivers and oncology teams there are ways to ease the journey’s relentless demands. Goal is to help caregivers emerge on the other end with less stress, more energy and a feeling of accomplishment that they did all they could for their loved ones.

Caregiver.com

3350 Griffin Road
Fort Lauderdale, FL 33312

954-893-0550
1-800-829-2734
www.caregiver.com

A leading provider of information, support and guidance for family and professional caregivers. Founded in 1995as a producer of Today’s Caregiver magazine, the first national magazine dedicated to caregivers. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers.


Clinical Trials

ClinicalTrials.Gov

The National Cancer Institute at the National institute of Health
Bethesda, Maryland

1-800-4-Cancer
www.clinicaltrials.gov

A registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.

Oncolink

The Perelman Center for Advanced Medicine
3400 Civic Center Blvd
Suite 2338
Philadelphia, PA 19104

215-349-8895
www.oncolink.org

Comprehensive information about specific types of cancer, updates on cancer treatments and news about research advances. Information is updated every day and provided at various levels, from introductory to in-depth.

Dermatology & Early Detection

Center for Disease Control (CDC) Centers for Disease Control and Prevention
4770 Buford Hwy NE
MS K-64
Atlanta, GA 30341

800-232-4636
cdcinfo@cdc.gov
www.cdc.gov

Federal agency that provides information on cancer prevention and control.

American Academy of Dermatology

930 E. Woodfield Road
Schaumburg, IL 60173

1445 New York Avenue, NW, Suite 800
Washington, DC 20005

(866) 503-SKIN (7546)
International: (847) 240-1280
www.aad.org

Founded in 1938. With a membership of more than 17,000, it represents virtually all practicing dermatologists in the United States, as well as a growing number of international dermatologists. Find free screening locations as well as information on research, diagnosis and treatment.

DermWeb

The Department of Dermatology and Skin Science
University of British Columbia
835 West 10th Avenue
Vancouver, B.C.
Canada V5Z 4E8

604-875-4747
www.DermWeb.com

DermWeb is a premier destination for dermatology links and resources on the Web. There are several areas of interest for practicing dermatologists, for dermatology students, and for the general public.

The Skin Cancer Foundation

149 Madison Av.
Suite 901
New York, NY 10016

212-725-5176
1-800-754-6490 (1-800-SKIN-490)
www.skincancer.org

Educates about skin cancer and its prevention by means of sun protection; as well as the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer, now occurring at epidemic levels.

National Cancer Institute

6116 Executive Boulevard, Suite 300
Bethesda, MD 20892

1-800-422-6237 (1-800-4-CANCER)
TYY: 1-800-332-8615
www.cancer.gov

The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.


Prescription Drug Assistance

Needy Meds, Inc.

P.O. Box 219
Gloucester, MA 01931

(800) 503-6897
www.needymeds.org

This service provides information on drugs and offers applications (if available) for financial assistance, coupons for drugs, discount drug cards, free/low cost clinics and government program information.

Together Rx Access Card

One Outlet Lane
Bald Eagle Court
Lock HavenPA 17745

(800) 444-4106
http://www.togetherrxacces.com

Free prescription savings program for qualified enrollees, which provides savings on more than 300 FDA-approved prescription drugs.

Partnership for Prescription Assistance

1-888-4PPA-NOW (1-888-477-2669)
www.pparx.org

This program helps uninsured and financially struggling patients get access to nearly 500 healthcare and prescription assistance programs that offer medicines for free or nearly free.

National Conference of State Legislatures

State Pharmaceutical Assistance Programs
http://www.ncsl.org

More than 30 states have programs that will give discounts on prescription drugs, often for free. Visit web site to learn more about the various programs state legislatures have developed.

RxAssist

111 Brewster Street
Pawtucket, RI 02860

401-729-3284
www.rxassist.org

Patient assistance programs run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles.

RxHope

P.O. Box 42886
Cincinnati, OH 45242

1-877-267-0517
www.RxHope.com

Advocate in making the patient assistance program journey easier and faster by supplying vital information and help.


Support

The Cancer Support Community

1050 17th Street, NW
Suite 500
Washington DC 20036

202-659-9709
cancersupportcommunity.org
help@cancersupportcommunity.org

An international non-profit dedicated to providing support to people affected by cancer. Services are available through a network of professionally led community-based centers, hospitals, community oncology practices and other non-profits, as well as online.

CanCare

Fighting Cancer with Hope
9575 Katy Freeway, Suite 428
Houston, Texas 77024

713-461-0028
1-888-461-0028
www.cancare.org

Cancer survivors of more than 50 different types of cancer volunteer for CanCare to provide emotional support to those currently facing a battle with cancer. Family members of survivors provide emotional support to family members of cancer patients.

Caring Bridge

1715 Yankee Doodle Road
Suite 301
Eagan, MN 55121

651-452-7940
651-681-7115
www.caringbridge.org

Free, personal and private websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier.

MyLifeLine.org Cancer Foundation

55 Madison St., Ste. 750
Denver, CO 80206

303-549-0405
www.mylifeline.org
support@mylifeline.org

A 501(c)(3) nonprofit organization that encourages cancer patients and caregivers to create free, customized websites. Our mission is to empower patients to build an online support community of family and friends to foster connection, inspiration, and healing.

CancerCare

275 Seventh Ave. Floor 22
New York, NY 10001

1-800-813-HOPE (4673)
info@cancercare.org
www.Cancercare.org

National Office serves people with cancer and their loved ones throughout the entire 50 states, Puerto Rico, and the U.S. Virgin Islands.

US Dept of Health & Human Services

P.O. Box 1133
Washington, DC 20013-1133

healthfinder.gov
healthfinder@nhic.org

Write to healthfinder.gov at Health and Human Services Department for easy entry point to trustworthy health information.

National Cancer Institute (NCI)

1-800-4-cancer
www.cancer.gov

Very comprehensive information from the US Government agency wing of the National Institute of Health (NIH).

Web MD

A medical education site from a company that helps both consumers and healthcare providers navigate the healthcare community.


Hospice

HFA Hospice Foundation of America

1710 Rhode Island Ave, NW
Suite 400
Washington, DC 20036

National Hospice Foundation

1731 King Street, Suite 200
Alexandria, Virginia 22314

Caring Connections

800-658-8898
Multilingual Line: 877-658-8896


Hotlines and Forums

Melanoma International Foundation

Toll free Patient and Family Helpline: 1-866-463-6663
Forum: Melanoma Forum

Dana Farber Cancer Institute

Family Studies Cancer Risk Line
Voice: 1-800-828-6622
www.dana-farber.org

Information regarding familial cancers

Patient Advocate Foundation

1-800-532-5274 (Mon.-Thurs., 8am-8pm; Fri., 8:30am-7pm EST)
www.patientadvocate.org

Provides education and legal counseling to cancer patients (relative to a diagnosis) concerning managed care, discrimination, insurance and financial issues.

Hereditary Cancer Center

Creighton University School of Medicine
2500 California Plaza
Omaha, NE 68178

1-800-648-8133 (Mon.-Fri., 8am-5pm CST)
http://medschool.creighton.edu/centers/hcc/

Studies family-linked cancer. Counseling, information on clinical trials, cancer and hereditary factors.

Cancer Information Service

Sponsored by National Cancer Institute.
1-800-422-6237
www.cancer.gov

Provides information about cancer and cancer-related resources to patients, the public and health professionals. Offers one-on-one smoking cessation counseling and literature. Free publications.

Skin Cancer Foundation

1-800-754-6490 (Mon.-Fri., 9am-5pm EST)
www.skincancer.org

Provides educational materials and information on skin cancer and treatment.

Cancer Research Institute

1-800-992-2623 (Mon.-Fri., 9am-5pm EST)
www.cancerresearch.org

Provides general cancer resource information. Supports leading-edge research aimed at developing immunologic methods of preventing, treating and curing cancer.

Cancer Information and Counseling Line

1-800-525-3777
(Mon.-Fri., 8:30am-5pm MST)

Provides current medical information and counseling for cancer issues.

Cancer Hope Network

1-877-467-3638 (Mon.-Fri., 9am-5:30pm EST)
www.cancerhopenetwork.org

One-on-one support offered to cancer patients and their families undergoing cancer treatment from trained volunteers who have survived cancer themselves.

BLOCH Cancer Hotline

1-800-433-0464

Networks persons with cancer and home volunteers with same type of cancer. Free books about cancer.


Insurance/Financial Assistance

Good Days

6900 N Dallas Pkwy,
Suite 200
Plano, TX 75024

(877) 968-7233
(972) 608-7141
http://www.mygooddays.org/

Good Days exists to improve the health and quality of life of patients battling chronic disease, cancer or other life-altering conditions who cannot afford the medications they so desperately need.

HealthWell Foundation

P.O. Box 4133
Gaithersburg, MD 20878

800-675-8416
www.healthwellfoundation.org

The HealthWell Foundation® provides full or partial financial assistance to eligible individuals who cannot afford their insurance co-payments, premiums, deductibles for certain treatments, and other out-of-pocket health care expenses.

Medicare & Medicaid

7500 Security Blvd
Baltimore, MD 21244-1850

800-318-2596
www.healthcare.gov/medicaid-chip/

800-MEDICARE
www.medicare.gov

Medicare is a federal system of health insurance for people over 65 years of age, and Medicaid assists low-income individuals and certain younger people with disabilities.

National Patient Advocate Foundation (NPAF)

725 15th St, NW, 10th Floor
Washington, DC 20005

202-347-8009
www.npaf.org

NPAF provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost.


Lodging

Joe’s House

505 E 79th Street
New York, NY 10075

877-563-7468
www.joeshouse.org

Joe’s House website lists thousands of places to stay across the country near hospitals and treatments centers that offer a discount for traveling patients and their loved ones.

Healthcare Hospitality Network, Inc.

P.O. Box 1439
Gresham, OR 97030

(800) 542-9730
http://www.hhnetwork.org/

The Healthcare Hospitality Network, Inc. (HHN) is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities. The mission of HHN is to support homes that help and heal to be more effective in their service to patients and families.

Hope Lodge –American Cancer Society

(800) 227-2345
WEBSITE

Hope Lodge offers cancer patients and their caregivers a free, temporary place to stay when their best hope for effective treatment may be in another city. Currently, there are 31 Hope Lodge locations throughout the United States. Accommodations and eligibility requirements may vary by location.


Lymphedema

National Lymphedema Network

116 New Montgomery Street, Suite 235
San Francisco, CA 94105

1-800-541-3259
415-908-3681
www.lymphnet.org

A non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.


Other Types of Melanoma

Mucosal Melanoma

Oral Cancer Foundation
3419 Via Lido #205
Newport Beach, CA 92663

949-723-4400
www.oralcancerfoundation.org

The Oral Cancer Foundation is a non-profit 501 (c) (3) public service charity that provides information, patient support, sponsorship of research and advocacy related to this disease. At the forefront of our agenda is to promote solid awareness in the minds of the American public about the need to undergo an annual oral cancer screening and an outreach to the dental community to provide this service as a matter of routine practice.

Ocular Melanoma Foundation

P.O. Box 29261
Richmond, VA 23242-0261

www.ocularmelanoma.org

OMF aspires to be the top destination for up-to-date OM-related educational information, a meeting place, and advocacy resource. For doctors and researchers, OMF strives to be the connective tissue, facilitating interdisciplinary cancer research.


Pain Management

American Academy of Pain Management

The largest pain management organization in the nation and the only one that embraces an integrative model of care, which is patient-centered, focuses on the “whole” person, is informed by evidence, and brings together, all appropriate therapeutic approaches to reduce pain and achieve optimal health and healing. The Academy offers continuing education, publications, and advocacy.

American Chronic Pain Association

PO Box 850
Rocklin, CA 95677

1-800-533-3231
https://theacpa.org

Since 1980, the ACPA has offered peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on our site can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life.


Radiation

RT Answers

American Society of Radiation Oncology
8280 Willow Oaks Corporate Drive, Suite 500
Fairfax, VA

703-502-1550 or 1-800-962-7876
www.rtanswers.org

Web site explains to patients, their families and the public how doctors called radiation oncologists use radiation therapy to treat cancer safely and effectively.

Radiation Therapy Fact Sheet

National Cancer Institute
www.cancer.gov

A fact sheet that defines the different types of radiation therapy and discusses scientific advances that improve the effectiveness of this treatment.