The 2019 Living Rare, Living Stronger NORD Patient and Family Forum will bring the rare disease community together with physicians, medical students and health professionals for a program of learning, sharing and connection – in an atmosphere of support and understanding – plus fun! Its agenda includes sessions in which patients and families can gain insights and practical tools for living their best lives with rare diseases, with tracks provided for newly diagnosed patients, long-term patients, caregivers and physicians/medical students. It is also an opportunity for bonding and fun, with children’s programming, a Family BBQ and a dedicated wellness room with yoga and workshops.
Registration to Living Rare, Living Stronger includes a ticket to a very special event—the 2019 Rare Impact Awards—honoring those individuals and organizations doing remarkable work on behalf of the rare disease community. The awards ceremony will take place in the unique setting of Space Center Houston, the Official Visitor Center of NASA Johnson Space Center and a Smithsonian Affiliate.