You’re invited! Join us for an Empowered #patientchat with special guest RDMD (@rdmd). We’re excited to chat with them about Driving Change: How Rare Disease Patients Can Get Involved. You can read more about RDMD and their work here: https://www.rdmd.com/
This topic was inspired by the upcoming Rare Disease Day on Saturday, February 29, 2020. This day’s objective is “to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.”
In the US, a rare disease is defined as a condition affecting 200,000 people or fewer. There are about 300 million people living with these 6,000+ diseases in the United States. Individuals with rare diseases may face challenges that are different from those experienced in more common medical conditions.
Guiding our discussion will be the following Topic (T#:) Questions:
T1: How are you planning to get involved and/or support #RareDiseaseDay? #patientchatT2: What are some ways rare disease patients or supporters can increase awareness for rare diseases every day? #patientchatT3: When and why should rare disease patients consider getting involved in clinical trials? #patientchatT4: Other than enrolling in a clinical trial, what other ways can empowered patients get involved with research? #patientchatT5: What resources/organizations are available to help you get involved to drive positive change for rare disease? #patientchat
Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.
Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.I'll be at the Empowered #patientchat on Fri 2/21 1pm ET. Join me! Click To Tweet