You’re Invited! We hope you’ll join us for our next Empowered #patientchat on Friday, March 22nd as we discuss and share how to apply patient advocacy initiatives to you patient journey with special guest Seth Rotberg (@Srotberg15).
Seth is a rare disease advocate and motivational speaker who is passionate about bringing his personal experience to better support the health community. He has done over 21 talks, with the most notable ones being at TEDxNatick and Global Genes Patient Advocacy Summit. Seth’s passion is driven by his mother’s 17 year battle with the rare, genetic disease known as Huntington’s Disease (HD). At the age of 20, Seth also tested positive for the disease and is a gene carrier. He is an active member of the HD community and currently sits on the Board of Trustees for the Huntington’s Disease Youth Organization (HDYO).
Seth also has a masters in nonprofit management from DePaul University and currently resides in Washington, D.C.
Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.
Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.
Guiding our discussion will be the follow Topic Questions (T#:)
T1: What is your advice for patients wanting to become advocates? #patientchatT2: Are there any specific tactics that you have found successful during your advocacy work? #patientchatT3: What motivated you to get more involved within your community? #patientchatT4: Do you think being an advocate can improve your own patient journey? #patientchatT5: What are a few ways to get started in my patient advocacy journey? #patientchat
T6: Self-advocacy is a pillar of patient advocacy – what are some tips to improve your self-advocacy skills? #patientchat
I'll be at the Empowered #patientchat on Fri 3/22 1pm ET. Join me! Click To Tweet