“Myeloma patients who are African-American and Hispanic typically get to the right treatment much later. In a lot of cases they may not get to the right treatment at all. We also know that the burden of cost of care is much higher for minority patients.” – Dr. Sikander Ailawadhi
There is a critical need to raise awareness of the treatment gaps among minority populations living with multiple myeloma. How can myeloma patients get the best care no matter where they live when factors like age, geography, socioeconomic status, ethnicity, gender, and insurance type heavily influence the path to empowerment?
For some, that path to empowerment is not always smooth. Diahanna Vallentine’s late husband was diagnosed with MGUS, often referred to as a precursor to multiple myeloma. As any care partner in this position, Diahanna’s research uncovered more questions than answers. When she sought clarity to these questions from her husband’s care team, she was met with outright hostility.
Diahanna recalls, “the doctor got in my face, six inches, yelling at me, and said, ‘You don’t have the right to ask questions, we’ll normally do this and you’ll find out about it later.’ Every story is different, but for many like Diahanna, the journey is riddled with disparities, including providers’ unconscious bias.
On July 29th @ 11:00 AM PT/2 PM ET, register to join our panel of distinguished myeloma experts and patient advocates who will tackle how we achieve health equity for multiple myeloma patients no matter geography. Register now, and submit your questions to firstname.lastname@example.org.
Register and join us to learn:
- How myeloma patients can get the best care no matter where they live
- Where to access actionable and meaningful myeloma educational resources
- How to avoid roadblocks to care; for example, the cost of treatment
- Important questions for your support team, and how to ask them
- Empowerment tools for informed and shared decision-making with your care team
Host and Panel
Diverse Partners in Your Myeloma Care is brought to you by The Patient Empowerment Network. It is produced by Diverse Health Hub. We thank Janssen, Takeda, Genentech, AbbVie and Bristol-Myers Squibb for their support.