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Patients as Partners Conference

March 2, 2017 @ 8:00 am - March 3, 2017 @ 5:00 pm UTC+0

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The purpose of medicines is to improve patients’ lives. Despite the increasing number and scope of patient involvement initiatives, there is no accepted master framework for systematic patient involvement in pharma-led medicines development. Patient engagement is more productive, but inconsistent and fragmented on a broader level.

CISCRP Founder, Ken Getz and INC Research CEO, Jamie Macdonald, joined forces in leading the 3rd Annual Patients as Partners in Clinical Trials conference where we addressed:

  • Understanding and incorporating the patient’s voice in designing clinical trials / developing a clinical endpoint
    • Patients led sessions that dove deeper into what was important to them and how they wished to be involved in helping create the best possible clinical outcomesVastly improving the patient’s entire experience in a clinical trial– What was Featured in 2016 –Patient Engagement Toolbox
      • Each attendee walked away with a toolbox full of strategies that will support their patient involvement initiatives

      Amgen, UCB, GSK and Merck Whitepaper Keynote Panel

      • Key stakeholders who have collaborated on one of the most important papers published came together to identify initiatives and recommendations on how to more effectively involve patients across the clinical development and trial continuum

      Innovative New Approach to Patient Involvement: The Chronic Care Trifecta

      • Marc Boutin of the National Health Council (NHC) discussed the new customized care approach in detail and the need to find the right balance between a person’s aspirations, life experiences and medical need

      360° Perspective on Patient Focused Drug Development (PFDD)

      • Patients, Industry, Academia and Regulatory addressed what PFDD meant to them and how they can create a universal definition that will support clinical endpoints

      Patients Take the Podium

  • The 3rd Annual Patients as Partners conference delved into key areas of patient involvement including:
    • Evaluating Healthcare Providers to Establish More Effective Engagement
    • Partnering with Patients in the Development and Lifecycle of Medicines
    • Identifying Potential Pathways to Overcome Regulatory/Legal Barriers in Patient Involvement
    • Shifting Your Internal Culture to Reflect Patient-Centricity
    • Patients as Partners on Value, Coverage and Reimbursement
    • What the Patients Want and How Pharma Can Help
    • Training Patients to Put Them in the Position of Influence
    • Patient Stories and What Influences Them to Consider Trial Enrollment
    • Creating More Diversity in Clinical Trials

    The conference is designed for clinical trial executives in pharma and biotech, directors in patient advocacy, patients involved in clinical trials, academia, government and service providers who are looking to incorporate the patient perspective throughout the clinical trial process.


March 2, 2017 @ 8:00 am UTC+0
March 3, 2017 @ 5:00 pm UTC+0



March 2, 2017 @ 8:00 am UTC+0
March 3, 2017 @ 5:00 pm UTC+0