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March 2020

Empowered #patientchat – Removing Barriers to a Successful Patient-Provider Relationship

March 6 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat as we discuss how to overcome the barriers to have a successful patient-provider relationship. This topic was suggested by a member of the #patientchat community. If you have a topic in mind, please let us know by emailing admin@powerfulpatients.org. Guiding our discussion will be the following Topic (T#:) Questions: T1: What would a good patient-provider relationship look like to you? #patientchat T2: What can be considered barriers to…

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Empowered #patientchat – Cyber Hygiene: What Is It and Why Does It Matter?

March 20 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion with special guest Casey Quinlan (@MightyCasey). Casey Quinlan covered her share of medical stories as a TV news field producer, and used healthcare as part of her observational comedy set as a standup comic. So when she got a breast cancer diagnosis five days before Christmas in 2007, she used her research, communication, and comedy skills to navigate treatment, and wrote “Cancer for Christmas: Making the Most…

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April 2020

Empowered #patientchat – Best Practices for Participating in a Patient Community

April 3 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion with special guest Carly Flumer (@carlyflumer). Carly Flumer was diagnosed with thyroid cancer at 27 and found strength, support, and inspiration in sharing her cancer journey on social media. As a result of her health outcome, she looks to advocate for other cancer patients through education, research, and health literacy. Carly serves as our Thyroid Cancer Network Manager at PEN, where she intends to pay it forward…

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Empowered #patientchat – Open Mic

April 17 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion. For this chat, we are opening the discussion to topics our participants want to discuss. What would you like to chat about? Here’s some ideas to get you thinking: We hope to see you Friday, April 17th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses! Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients…

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May 2020

Empowered #patientchat – May 1

May 1 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, May 1st on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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Community Matters: MD and Patient-Authored Tips to Help You Stay Involved #patientchat

May 15 @ 1:00 pm - 2:00 pm EDT
Zoom, Facebook LIVE, or Twitter

You’re Invited! We hope you'll join us for a very special Virtual Empowered #patientchat. The Virtual Empowered #patientchat is a moderated 45-minute conversation conducted online via Zoom and Facebook Live. This support group will feature an expert moderator, a panel of passionate patient advocates and care partners, and other people seeking a consistent friendly community.  The Virtual Empowered #patientchat begins with hello at the top of the hour, followed by a venting session to release frustrations, make acquaintances, and relate…

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Patient Access: Let’s Talk Health Care Technology #patientchat

May 29 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion on health care technology. Patients who have access to health care technology have the ability to access their patient portal to view their health records, communicate with their care team, etc. But what about patients who don't have access to the internet or face another barrier? "To ensure that we engage the patient groups who have much to gain from the more flexible health care interactions that…

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June 2020

Empowered #patientchat – Ending Isolation: Tips for Connecting & Resources for Support

June 12 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion with the National Organization for Rare Disorders (NORD).  Our topic for this chat will be "Ending Isolation: Tips for Connecting & Resources for Support" Guiding our discussion will be the following topic questions (T1:)... T1: From your personal or professional perspective, what causes isolation in your community? #patientchat T2: What online communities or resources do you connect with when you don’t feel like going out? #patientchat T3:…

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July 2020

Empowered Tips: Building Resilience and Boosting Immunity #patientchat

July 10 @ 1:00 pm - 1:45 pm EDT
Zoom, Facebook LIVE, or Twitter

You’re Invited! We hope you'll join us for our second Virtual Empowered #patientchat. The Virtual Empowered #patientchat is a moderated 45-minute conversation conducted online via Zoom and Facebook Live. This support group will feature an expert moderator, a panel of passionate patient advocates and care partners, and other people seeking a consistent friendly community. You can also follow the conversation on Twitter with the hashtag #patientchat. Building resiliency and boosting immunity amid the pandemic has been increasingly important for so…

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2020 Living Rare, Living Stronger™ NORD® Patient and Family Forum

July 18 - July 19

Attend the rare disease patient and family event of the year: the 2020 Living Rare, Living Stronger™ NORD® Patient and Family Forum (July 18-19), a two-day virtual conference filled with learning, connecting and fun. The agenda includes sessions in which patients and their families can gain insight and practical tools for living their best lives with rare diseases, with workshops provided for newly-diagnosed patients, long-term patients, caregivers, physicians and medical students. The Forum will feature interactive Q&As, inspiring online panels…

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How Can I Get the Best Multiple Myeloma Care No Matter Where I Live?

July 29 @ 2:00 pm - 2:45 pm EDT

“Myeloma patients who are African-American and Hispanic typically get to the right treatment much later. In a lot of cases they may not get to the right treatment at all. We also know that the burden of cost of care is much higher for minority patients.” -  Dr. Sikander Ailawadhi There is a critical need to raise awareness of the treatment gaps among minority populations living with multiple myeloma. How can myeloma patients get the best care no matter where…

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August 2020

Best Practices for Sharing Your Patient Story #patientchat

August 7 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion with The Patient Story on the best practices for sharing your patient story. The Patient Story is a community of cancer patient and caregiver voices with one goal: humanize every diagnosis. They interview recent survivors and put their stories up in FAQ-format with treatment timelines to help newly-diagnosed patients and caregivers better understand what they may be dealing with during and after treatment. Join us at ThePatientStory.com.…

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Is It Time to Treat Your CLL? What You Need to Know

August 18 @ 1:00 pm - 1:30 pm EDT

When it’s time to move forward with a chronic lymphocytic leukemia (CLL) treatment plan, what determines the best therapy for YOU?  In this INSIST! CLL webinar, Dr. Susan O’Brien, will review key decision-making factors, current CLL treatments and emerging research.   Watch online on Tuesday, August 18 at 1 PM Eastern (10 AM PT, 12 PM CT) for a 30-minute virtual webinar.   Register Now Guest & Host Register Now Partners   The Pro-Active CLL Patient Toolkit is brought to you by the…

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Triage Cancer: Returning to Work After COVID-19

August 19 @ 11:00 am - 12:00 pm CDT

Join Triage Cancer for a FREE live, interactive, webinar as part of the Triage Cancer Webinar Series, which will provide up-to-the-minute information about changes to health insurance and employment with a focus on returning to work after COVID-19.  Attendees will learn about recent changes and new rules that may impact an individual's financial situation, including housing and other consumer assistance programs. As states begin to reopen and employees are asked to return to work, many people with a cancer diagnosis,…

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How Can You Access Personalized Prostate Cancer Treatment?

August 25 @ 1:00 pm - 1:30 pm EDT

How could genetic testing results affect your prostate cancer treatment plan? In this INSIST! Prostate Cancer webinar, Dr. Sumit Subudhi will discuss key prostate cancer tests, the latest targeted therapies and tools to help you advocate for a personalized treatment approach and insist on better care.   Watch online on Tuesday, August 25 at 1 PM Eastern (10 AM PT, 12 PM CT) for a 30-minute virtual webinar.   Register Now Guest & Host Register Now Partner       The Insist! Prostate…

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September 2020

How Can You Access Personalized Lung Cancer Treatment?

September 1 @ 1:00 pm - 1:30 pm EDT

When facing a lung cancer diagnosis, how do diagnostic tests affect your treatment plan? In this INSIST! Lung Cancer webinar, Dr. Tejas Patil will discuss appropriate testing for lung cancer, the latest targeted therapies and how emerging research is affecting patient outcomes. Dr. Tejas Patil is an academic thoracic oncologist at the University of Colorado Cancer Center focused on targeted therapies and novel biomarkers in lung cancer. Learn more about Dr. Patil, here. Watch online on Tuesday, September at 1 PM Eastern…

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Asking the Right Questions at the Right Time #patientchat

September 4 @ 1:00 pm - 2:00 pm EDT
Twitter

Navigating Your Path to Empowerment You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion on how to ask the right questions at the right time along your patient journey. Not everyone’s patient experience is the same. While there are commonalities, people tend to approach their diagnosis in different ways, face different struggles, and find different ways of coping. The Path to Empowerment framework helps patients find their voice at every step of the way. Guiding our…

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Treatment Approaches in AML: Key Testing for Personalized Care

September 15 @ 1:00 pm - 1:30 pm EDT

When it comes to Acute Myeloid Leukemia (AML), genetic testing (or biomarker testing) is essential in helping to determine the best treatment approach for YOU.  In this INSIST! AML webinar, AML expert Dr. Naval Daver will review key decision-making factors, current AML treatments and emerging research. Watch online on Tuesday, September 15 at 1 PM Eastern (10 AM PT, 12 PM CT) for a 30-minute virtual webinar. Register Now Guest Register Now Partner The Insist! AML program is brought to you by the…

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How to Apply Your Empowerment Skills to Your Health Journey #patientchat

September 18 @ 1:00 pm - 1:45 pm EDT
Zoom, Facebook LIVE, or Twitter

You’re Invited! We hope you’ll join us for our next Virtual Empowered #patientchat. The Virtual Empowered #patientchat is a moderated 45-minute conversation conducted online via Zoom and Facebook Live.  “Patients are the most underused resource in healthcare.” – Dr. Warner Slack You cannot be intimidated when approaching your care journey. Upon hearing this, you know this is easier said than done. With the tools to empower yourself at your fingertips, how do you use them to your advantage? How can…

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Metastatic Breast Cancer: Accessing the Best Treatment For YOU

September 22 @ 1:00 pm - 1:30 pm EDT

How could genetic testing results impact your metastatic breast cancer treatment options? In this INSIST! Breast Cancer webinar, Dr. Julie Gralow will discuss essential testing, the latest targeted therapies and emerging breast cancer research. Watch online on Tuesday, September 22 at 1 PM Eastern (10 AM PT, 12 PM CT) for a 30-minute virtual webinar. Register Now Guest Host Register Now Partner         The INSIST! Breast Cancer  program is made possible through support from Daiichi Sankyo, Exact Sciences, Foundation Medicine,…

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