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October 2019

Fact or Fiction? AML Research and Internet Claims

October 8, 2019 @ 1:00 pm - 1:45 pm EDT

How do you decipher what’s fact and what’s fiction when it comes to AML research and “miracle cures” you may encounter online? Attend this webinar, as Dr. Sangmin Lee shares updates in research and debunks common rumors that are passed around related to treating and “curing” AML. Join us on October 8th at 10am PT | 1pm ET for a 45-minute webinar. Register Now Guest Register Now Are you having trouble registering? Send an email to question@powerfulpatients.org. This program is brought to…

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Fact or Fiction? CLL Causes & Symptoms

October 10, 2019 @ 1:00 pm - 2:00 pm EDT

“Will I need treatment if I don’t have symptoms?”  “Did weed killer cause my CLL?”  In this webinar, Dr. Kerry Rogers will provide facts about CLL causes and symptoms and share updates on treatment advances. Learn tips for identifying trustworthy resources so you can be an educated patient. Watch online on Thursday, October 10th at 10am PT (1:00 pm Eastern, 12:00 pm Central)   Register Now Guest   Are you having trouble registering? Send an email to question@powerfulpatients.org. Fact or Fiction? CLL is brought to you by the…

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Acute Myeloid Leukemia: Your AML, Your Treatment, Your Decision

October 15, 2019 @ 3:30 pm - 4:30 pm EDT

How does acute myeloid leukemia (AML) manifest in the body and evolve over time? What steps should patients take to find the most suitable course of treatment?    Register Now Join us for a panel discussion on Tuesday, October 15th at 12:30 PM Pacific | 3:30 PM Eastern. AML experts Dr. Pinkal Desai, Assistant Professor of Medicine at Weill Cornell Medical College and Assistant Attending Physician at the New York-Presbyterian Hospital, and Dr. Tapan M. Kadia Associate Professor, Department of Leukemia at The University…

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Empowered #patientchat – Medication Management

October 18, 2019 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion. Medication adherence, or taking medications correctly, is generally defined as the extent to which patients take medication as prescribed by their doctors. It is estimated that 30% of prescriptions are never filled and 50% are not taken as prescribed. There are a lot of "language traps" in healthcare. The general trend away from "medication compliance" toward using "medication adherence" didn't address all the concerns when it comes to this issue. That there isn't…

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CRI Immunotherapy Patient Summit – Houston

October 26, 2019 @ 10:00 am - 3:30 pm CDT
MD Anderson Cancer Center Dan L. Duncan Cancer Prevention Building (CPB) – 8th Floor Conference Center, 1155 Pressler Street
Houston, TX 77030 United States
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Description Join us for a day of learning with medical experts who will share the latest research updates in immunotherapy as well as patients who will share their experiences receiving immunotherapy. A healthy lunch will be provided, during which attendees can continue the conversation alongside expert and patient speakers. In the afternoon, attendees will have the opportunity to choose a small breakout session to take deeper dive into specific questions with experts. Patients, caregivers, friends, family, and advocates are all encouraged to…

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November 2019

Empowered #patientchat – Holiday Hacks

November 1, 2019 @ 1:00 pm - 2:00 pm EDT
Twitter

Tips for Coping with Chronic Illness During the Holidays You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion. The holidays are just around the corner. While they are a time to celebrate, sometimes it can be stressful for someone dealing with a chronic illness. Being a patient can take a lot out of you, both physically and mentally. How can you take care of the holiday rush and yourself at the same time? Let's discuss this Friday, November…

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Fact or Fiction? Lung Cancer Symptoms, Side Effects & Treatment

November 12, 2019 @ 1:00 pm - 1:45 pm EST

When it comes to online resources in lung cancer, how do you decipher fact from fiction? Attend this webinar with renowned lung cancer expert and researcher, Dr. Martin Edelman as he shares facts about lung cancer causes and symptoms as well as updates on treatment advances. Learn tips for identifying trustworthy resources so you can be an educated patient. Join us Tuesday, November 12th, 2019 at 1pm ET | 10am PT for a 45-minute webinar Register Here Guest Partner        …

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Empowered #patientchat – Nutrition Trends: Fad or Fact? with the Wounded Warrior Project

November 15, 2019 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion.In honor of Veterans Day on Monday, November 11th, Wounded Warrior Project (@wwp) will be co-hosting this special #patientchat on nutrition. With the plethora of information on nutrition out there from social media, news articles, and peers, how can you determine what's fad and what's fact when it comes to nutrition? And how does this all play in to your health as a patient? Let's discuss Friday, November 15th! Guiding…

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CRI Immunotherapy Patient Summit – Baltimore

November 16, 2019 @ 10:00 am - 3:30 pm MST
Mount Washington Conference Center, 5801 Smith Avenue
Baltimore, MD 21209 United States
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Description Learn about the basics of cancer immunotherapy, a highly promising new approach to cancer treatment. Medical experts along with patients who have been treated with immunotherapy will discuss how research and patient participation in clinical trials is helping us get closer to cures for all types of cancer. Space is limited, so register today! People of all ages and cancer types are invited to attend this free half-day Saturday event. Caregivers, friends, family, and advocates are also encouraged to join.…

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No Empowered #patientchat – November 29th

November 29, 2019
Twitter

There will be no Empowered #patientchat today due to the holidays. Happy Thanksgiving!

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December 2019

2019 ASH Annual Meeting

December 7, 2019 - December 10, 2019

Save the date for the world’s most comprehensive hematology event of the year, the 61st ASH Annual Meeting and Exposition in Orlando, Florida.

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Empowered #patientchat – A Year in Review: Looking Back on 2019 and Ahead to 2020

December 13, 2019 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat as we review 2019 and look ahead to next year! We hope to see you Friday, December 13th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses! Guiding our discussion will be the following Topic (T#:) Questions: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2020? #patientchat T2: Is there something you wish you did differently…

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Fact or Fiction? Myeloma Treatment & Side Effects

December 17, 2019 @ 1:00 pm - 2:00 pm EST

When it comes to online myeloma information, how do you separate fact from fiction? Attend this webinar with renowned myeloma expert and researcher, Dr. Irene Ghobrial, to learn the facts about current myeloma treatments, common side effects and emerging research. Watch online on Tuesday, December 17 at 10:00 am Pacific (1:00 pm Eastern, 12:00 pm Central).  REGISTER HERE Guest & Host Disclosure: Fact or Fiction? Myeloma is brought to you by the Patient Empowerment Network. It is made possible through support from Celgene…

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No Empowered #patientchat – Happy Holidays!

December 27, 2019

There will be no Empowered #patientchat today. Enjoy the holidays and we hope to see you in 2020!

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January 2020

Empowered #patientchat – Patient Access: Let’s Talk Health Data

January 10 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion on patient health data. We'll chat about how gaining access puts you in control of healthcare decisions, controlling your health data, privacy concerns, and more! Guiding our discussion will be the following Topic (T#:) Questions: T1: What’s the first step in getting and controlling your health data? #patientchat T2: Why is it important for patients to see their health data? #patientchat T3: What needs to be in place to support two-way data…

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Empowered #patientchat – What Does Patient-Centric Care Look Like For You?

January 24 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion on patient-centric care. According to the Institute of Medicine, patient-centric care is defined as “providing care that is respectful of and responsive to individual patient preferences, needs and values, ensuring that patient values guide all clinical decisions.” Research conducted in 1993 by the Picker Institute in conjunction with the Harvard School of Medicine which identified eight dimensions of patient-centered care. These eight principles provide a roadmap for a patient-centered approach to the…

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February 2020

Empowered #patientchat – Disparities in Care: Equality vs Equity

February 7 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! Join us for an Empowered #patientchat with special guest Diverse Health Hub (@DHealthHub). We’re excited to chat with them about the disparities in healthcare. You can read more about Diverse Health Hub here: https://www.diversehealthhub.com/ Disparities refer to differences in health and health care between population groups. Disparities occur across many dimensions, including race/ethnicity, socioeconomic status, age, location, gender, disability status, and sexual orientation. Guiding our discussion will be the following Topic (T#:) Questions: T1: What does health disparity mean to you? #patientchat…

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Empowered #patientchat – Driving Change: How Rare Disease Patients Can Get Involved

February 21 @ 1:00 pm - 2:00 pm EST
Twitter

You’re invited! Join us for an Empowered #patientchat with special guest RDMD (@rdmd). We’re excited to chat with them about Driving Change: How Rare Disease Patients Can Get Involved. You can read more about RDMD and their work here: https://www.rdmd.com/ This topic was inspired by the upcoming Rare Disease Day on Saturday, February 29, 2020. This day’s objective is “to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.” In the US,…

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March 2020

Empowered #patientchat – Removing Barriers to a Successful Patient-Provider Relationship

March 6 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat as we discuss how to overcome the barriers to have a successful patient-provider relationship. This topic was suggested by a member of the #patientchat community. If you have a topic in mind, please let us know by emailing admin@powerfulpatients.org. Guiding our discussion will be the following Topic (T#:) Questions: T1: What would a good patient-provider relationship look like to you? #patientchat T2: What can be considered barriers to…

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Empowered #patientchat – Cyber Hygiene: What Is It and Why Does It Matter?

March 20 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion with special guest Casey Quinlan (@MightyCasey). Casey Quinlan covered her share of medical stories as a TV news field producer, and used healthcare as part of her observational comedy set as a standup comic. So when she got a breast cancer diagnosis five days before Christmas in 2007, she used her research, communication, and comedy skills to navigate treatment, and wrote “Cancer for Christmas: Making the Most…

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