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November 2019

Fact or Fiction? Lung Cancer Symptoms, Side Effects & Treatment

November 12, 2019 @ 1:00 pm - 1:45 pm EST

When it comes to online resources in lung cancer, how do you decipher fact from fiction? Attend this webinar with renowned lung cancer expert and researcher, Dr. Martin Edelman as he shares facts about lung cancer causes and symptoms as well as updates on treatment advances. Learn tips for identifying trustworthy resources so you can be an educated patient. Join us Tuesday, November 12th, 2019 at 1pm ET | 10am PT for a 45-minute webinar Register Here Guest Partner        …

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Empowered #patientchat – Nutrition Trends: Fad or Fact? with the Wounded Warrior Project

November 15, 2019 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion.In honor of Veterans Day on Monday, November 11th, Wounded Warrior Project (@wwp) will be co-hosting this special #patientchat on nutrition. With the plethora of information on nutrition out there from social media, news articles, and peers, how can you determine what's fad and what's fact when it comes to nutrition? And how does this all play in to your health as a patient? Let's discuss Friday, November 15th! Guiding…

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CRI Immunotherapy Patient Summit – Baltimore

November 16, 2019 @ 10:00 am - 3:30 pm MST
Mount Washington Conference Center, 5801 Smith Avenue
Baltimore, MD 21209 United States
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Description Learn about the basics of cancer immunotherapy, a highly promising new approach to cancer treatment. Medical experts along with patients who have been treated with immunotherapy will discuss how research and patient participation in clinical trials is helping us get closer to cures for all types of cancer. Space is limited, so register today! People of all ages and cancer types are invited to attend this free half-day Saturday event. Caregivers, friends, family, and advocates are also encouraged to join.…

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No Empowered #patientchat – November 29th

November 29, 2019
Twitter

There will be no Empowered #patientchat today due to the holidays. Happy Thanksgiving!

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December 2019

2019 ASH Annual Meeting

December 7, 2019 - December 10, 2019

Save the date for the world’s most comprehensive hematology event of the year, the 61st ASH Annual Meeting and Exposition in Orlando, Florida.

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Empowered #patientchat – A Year in Review: Looking Back on 2019 and Ahead to 2020

December 13, 2019 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat as we review 2019 and look ahead to next year! We hope to see you Friday, December 13th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses! Guiding our discussion will be the following Topic (T#:) Questions: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2020? #patientchat T2: Is there something you wish you did differently…

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Fact or Fiction? Myeloma Treatment & Side Effects

December 17, 2019 @ 1:00 pm - 2:00 pm EST

When it comes to online myeloma information, how do you separate fact from fiction? Attend this webinar with renowned myeloma expert and researcher, Dr. Irene Ghobrial, to learn the facts about current myeloma treatments, common side effects and emerging research. Watch online on Tuesday, December 17 at 10:00 am Pacific (1:00 pm Eastern, 12:00 pm Central).  REGISTER HERE Guest & Host Disclosure: Fact or Fiction? Myeloma is brought to you by the Patient Empowerment Network. It is made possible through support from Celgene…

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No Empowered #patientchat – Happy Holidays!

December 27, 2019

There will be no Empowered #patientchat today. Enjoy the holidays and we hope to see you in 2020!

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January 2020

Empowered #patientchat – Patient Access: Let’s Talk Health Data

January 10 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion on patient health data. We'll chat about how gaining access puts you in control of healthcare decisions, controlling your health data, privacy concerns, and more! Guiding our discussion will be the following Topic (T#:) Questions: T1: What’s the first step in getting and controlling your health data? #patientchat T2: Why is it important for patients to see their health data? #patientchat T3: What needs to be in place to support two-way data…

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Empowered #patientchat – What Does Patient-Centric Care Look Like For You?

January 24 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion on patient-centric care. According to the Institute of Medicine, patient-centric care is defined as “providing care that is respectful of and responsive to individual patient preferences, needs and values, ensuring that patient values guide all clinical decisions.” Research conducted in 1993 by the Picker Institute in conjunction with the Harvard School of Medicine which identified eight dimensions of patient-centered care. These eight principles provide a roadmap for a patient-centered approach to the…

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February 2020

Empowered #patientchat – Disparities in Care: Equality vs Equity

February 7 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! Join us for an Empowered #patientchat with special guest Diverse Health Hub (@DHealthHub). We’re excited to chat with them about the disparities in healthcare. You can read more about Diverse Health Hub here: https://www.diversehealthhub.com/ Disparities refer to differences in health and health care between population groups. Disparities occur across many dimensions, including race/ethnicity, socioeconomic status, age, location, gender, disability status, and sexual orientation. Guiding our discussion will be the following Topic (T#:) Questions: T1: What does health disparity mean to you? #patientchat…

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Empowered #patientchat – Driving Change: How Rare Disease Patients Can Get Involved

February 21 @ 1:00 pm - 2:00 pm EST
Twitter

You’re invited! Join us for an Empowered #patientchat with special guest RDMD (@rdmd). We’re excited to chat with them about Driving Change: How Rare Disease Patients Can Get Involved. You can read more about RDMD and their work here: https://www.rdmd.com/ This topic was inspired by the upcoming Rare Disease Day on Saturday, February 29, 2020. This day’s objective is “to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.” In the US,…

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March 2020

Empowered #patientchat – Removing Barriers to a Successful Patient-Provider Relationship

March 6 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat as we discuss how to overcome the barriers to have a successful patient-provider relationship. This topic was suggested by a member of the #patientchat community. If you have a topic in mind, please let us know by emailing admin@powerfulpatients.org. Guiding our discussion will be the following Topic (T#:) Questions: T1: What would a good patient-provider relationship look like to you? #patientchat T2: What can be considered barriers to…

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Empowered #patientchat – Cyber Hygiene: What Is It and Why Does It Matter?

March 20 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion with special guest Casey Quinlan (@MightyCasey). Casey Quinlan covered her share of medical stories as a TV news field producer, and used healthcare as part of her observational comedy set as a standup comic. So when she got a breast cancer diagnosis five days before Christmas in 2007, she used her research, communication, and comedy skills to navigate treatment, and wrote “Cancer for Christmas: Making the Most…

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April 2020

Empowered #patientchat – Best Practices for Participating in a Patient Community

April 3 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion with special guest Carly Flumer (@carlyflumer). Carly Flumer was diagnosed with thyroid cancer at 27 and found strength, support, and inspiration in sharing her cancer journey on social media. As a result of her health outcome, she looks to advocate for other cancer patients through education, research, and health literacy. Carly serves as our Thyroid Cancer Network Manager at PEN, where she intends to pay it forward…

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Empowered #patientchat – Open Mic

April 17 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion. For this chat, we are opening the discussion to topics our participants want to discuss. What would you like to chat about? Here’s some ideas to get you thinking: We hope to see you Friday, April 17th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses! Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients…

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May 2020

Empowered #patientchat – May 1

May 1 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, May 1st on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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Community Matters: MD and Patient-Authored Tips to Help You Stay Involved #patientchat

May 15 @ 1:00 pm - 2:00 pm EDT
Zoom, Facebook LIVE, or Twitter

You’re Invited! We hope you'll join us for a very special Virtual Empowered #patientchat. The Virtual Empowered #patientchat is a moderated 45-minute conversation conducted online via Zoom and Facebook Live. This support group will feature an expert moderator, a panel of passionate patient advocates and care partners, and other people seeking a consistent friendly community.  The Virtual Empowered #patientchat begins with hello at the top of the hour, followed by a venting session to release frustrations, make acquaintances, and relate…

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Patient Access: Let’s Talk Health Care Technology #patientchat

May 29 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion on health care technology. Patients who have access to health care technology have the ability to access their patient portal to view their health records, communicate with their care team, etc. But what about patients who don't have access to the internet or face another barrier? "To ensure that we engage the patient groups who have much to gain from the more flexible health care interactions that…

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June 2020

Empowered #patientchat – Ending Isolation: Tips for Connecting & Resources for Support

June 12 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion with the National Organization for Rare Disorders (NORD).  Our topic for this chat will be "Ending Isolation: Tips for Connecting & Resources for Support" Guiding our discussion will be the following topic questions (T1:)... T1: From your personal or professional perspective, what causes isolation in your community? #patientchat T2: What online communities or resources do you connect with when you don’t feel like going out? #patientchat T3:…

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