Tag Archive for: Empowered Patient Chat

Let’s Talk Mental Health #patientchat Highlights

Last week we held an Empowered #patientchat discussion on “Let’s Talk Mental Health: How are you doing?”. The #patientchat community came together for a lively discussion and below are some highlights.

Top Tweets

Is anything worrying you at the moment?

Do you have tips for when someone is feeling overwhelmed or anxious?

“Be kind to yourself”

 


Full Transcript

Moving Awareness into Action #patientchat Highlights

Last week we held an Empowered #patientchat with The Hereditary Neuropathy Foundation (@CMTNeuropathy) on Moving Action into Awareness. The #patientchat community came together for a lively discussion and below are some highlights.

Top Tweets

Share Your Story

Be Your Own Advocate

How do you communicate with a healthcare professional who is unfamiliar with your diagnosis?

Be Your Own Advocate


Full Transcript

#patientchat Highlights: A Year in Review: Looking back on 2020 and Ahead to 2021

Last week we hosted a “A Year in Review: Looking back on 2020 and Ahead to 2021” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

No regrets

“Spread the love”

How can we empower others?


Full Transcript

#patientchat Highlights: Checking the Pulse on Patient Influencers

Last week we hosted a “Checking the Pulse on Patient Influencers” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Patient Advocate/Activist Over Influencer

“Supporting patients (regardless of approach) is paramount”

What is a patient influencer?


Full Transcript

#patientchat Highlights Open Mic

Last week we hosted an “Open Mic” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Burnout is Real

“We already have the power”

Shining a Light on Passionate Causes


Full Transcript

How to Apply Your Empowerment Skills to Your Health Journey #patientchat Highlights

Last week, we hosted our third Virtual Empowered #patientchat. The Virtual Empowered #patientchat was a moderated 45-minute conversation conducted online via Zoom and Facebook Live along with a lively discussion on Twitter. Below you will find the highlights from the online events and highlights from the conversation on Twitter.

Virtual #patientchat Highlights

Replay

How to Apply Your Empowerment to Your Health Journey from Patient Empowerment Network on Vimeo.

Panel

Top Tweets

What are some frustrations you are dealing with right now?


What is the biggest hurdle you’ve had to overcome in your health journey?


What are your go-to trusted resources and how did you find them?


Full Tweetchat


For a list of all past #patientchat topics and transcripts, click here.

Asking the Right Questions at the Right Time #patientchat Highlights

Last week, we hosted an Empowered #patientchat titled “Asking the Right Questions at the Right Time: Navigating Your Path to Empowerment”. Below you will find the top tweets and the full transcript from the conversation on Twitter.

Top Tweets

Your Goals Matter


The Importance of Self-Advocacy and Support


Full Chat

Best Practices for Sharing Your Patient Story #patientchat Highlights

Last week, we hosted an Empowered #patientchat titled “Best Practices for Sharing Your Patient Story” with special guest The Patient Story (@Patient_Story). Below you will find the top tweets and the full transcript from the conversation on Twitter.

Top Tweets

Sharing Your Story Can Help Others


A Free Public Speaking Toolkit


Don’t Give Weight to Other People’s Thoughts


Full Chat

Building Resilience and Boosting Immunity #patientchat Highlights

Last week, we hosted our second Virtual Empowered #patientchat. The Virtual Empowered #patientchat was a moderated 45-minute conversation conducted online via Zoom and Facebook Live along with a lively discussion on Twitter. Below you will find the highlights from the online events and highlights from the conversation on Twitter.

Virtual #patientchat Highlights

Panel

“We can’t talk about frustrations without talking about resilience because that’s really how we manage these frustrations, how we bounce back, how we maintain our mental health and our physical health during these difficult times”

– Dr. Rochester

What is Resilience?

“Resilience really is about coming home to ourselves, to our center. We want to accept ourselves where we are, shine a light of awareness and sensitivity on ourselves with tenderness and with love. That’s what mindfulness can do for us.” – Broderick

“We all have things in life we have to deal with. What are the silver linings, what are the hidden blessings? Resilience really is how to jump back into your life” – Jill

How Do We Build Resilience?

“When i first was diagnosed, I did a lot of Bible journaling and some quiet inward time to think about it, and that really helped. Building community is a real big part. You need to connect with your family, your friends, and the people that are out there and let them help you. Focusing on personal health, things like yoga and meditation are huge, eating well.” – Jill

Boosting Immunity

Walking

  • Forest Bathing
  • Getting out into Nature
  • Dancing with “IV”
  • One step at a time

Eating Well

  • Dinner with family
  • Phase out added sugar
  • Smoothie game: Guess what’s in this one!

Stress Reduction

  • Breathing exercises
  • Mitigating suffering added by your own mind
  • Mindful acceptance and non-judgment

A Timeless Call to Action

It’s a matter of picking up the pieces, looking forward, and figuring out what you need to do next and what’s important to you. Be true to yourself… Cancer or any serious life-threatening thing really puts it in perspective. What you want to do with the rest of your life? – Gerri

Top Tweets

“Current me is where the fun is”

Alan's Top Tweet


Resilience Comes from Hope

Barby's Top Tweet


The Present is the Only Thing We Can Control


Full Chat

Ending Isolation: Tips for Connecting & Resources for Support Empowered #patientchat Highlights

Last week, we hosted an Empowered #patientchat on Twitter titled Ending Isolation: Tips for Connecting & Resources for Support Empowered alongside NORD. The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Increased Engagement Across Social Economic Boundaries


Ways to Improve Patient Access


Health Literacy Matters


Full Chat


For a list of all past #patientchat topics and transcripts, click here.

Patient Access: Let’s Talk Health Care Technology #patientchat Highlights

Last week, we hosted an Empowered #patientchat on Twitter titled Patient Access: Let’s Talk Health Care Technology. The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Increased Engagement Across Social Economic Boundaries


Ways to Improve Patient Access


Health Literacy Matters


Full Chat


For complete list of #patientchat topics and transcripts, click here.

Virtual #patientchat Highlights

Community Matters: MD and Patient Authored Tips to Help You Stay Involved

Last week, we hosted our first ever Virtual Empowered #patientchat. The Virtual Empowered #patientchat was a moderated 45-minute conversation conducted online via Zoom and Facebook Live along with a lively discussion on Twitter. Below you will find the highlights from the online events and highlights from the conversation on Twitter.

Virtual #patientchat Highlights

Is Telemedicine a Useful Tool?

“I was experiencing some symptoms of COVID and I made an appointment with my PCP. We went over the symptoms and I tested negative for the antibodies, but I didn’t have to go in at the time when it was crowded.” – Mel

“I have always felt that we have under-utilized telemedicine. There is so much that can be done via a telemedicine visit.” – Dr. Rochester

“One of the best things I’ve seen from telemedicine is for a lot of people with physical ability issues or anything like that, or a really bad migraine or if you have a chronic illness that fluctuates every day. What if you make an appointment in December and it comes up a couple months later and you don’t feel good that day. You can still have the access to your provider and talk through any concerns or even potentially get help for a flare or things like that.” – Alexa

At Wits’ End?

“Be kind to yourself. Extend compassion to others. Find an emotional accountability partner. Write down a list of loved ones whenever you think of them so you remind yourself to check in later.” – Honora

Coping Tools

  • Don’t just zoom. Try online games with your loved ones!
  • Schedule virtual coffee or tea
  • Join a wellness challenge!
  • Take care of yourself

Community Empathy

It is normal to feel anxiety right now. Mel recommends finding the techniques that manage it best for you like doing some daily exercise to get your vitamin D. Stay focused: it’s a marathon not a sprint.

A Timeless Call to Action

“Reach out to others. You can physically distance without sociallydistancing. Pick up the phone, call someone, do a zoom call or facetime or skype, but don’t let these trying times prevent you from staying connected with your community and even from creating a brand new community.” – Dr. Rochester


Top Tweets

Sometimes You Need to Unplug


Enhancing Digital Health Literacy


Stories Are Still Important


Full Chat


For a full list of past #patientchat topics and transcripts, click here.

Community Check-In #patientchat Highlights

Last week, we hosted a “Community Check-In” #patientchat with Amanda Greene (@LALupusLady). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Telehealth to save the day?


Online communities won’t be canceled


Use social media to find patients like you


Full Chat

For a full list of past #patientchat topics and transcripts, click here.

Best Practices for Participating in a Patient Community #patientchat Highlights

Last week, we hosted an #patientchat on “Best Practices for Participating in a Patient Community” with Carly Flumer (@carlyflumer). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Dos and Don’ts


A Good Online Community


Always Somebody There


Full Chat

Cyber Hygiene: What Is It and Why Does It Matter? #patientchat Highlights

Last week, we hosted an Empowered #patientchat on “Cyber Hygiene: What Is It and Why Does It Matter?” with Casey Quinlan (@MightyCasey). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Keep Your Online Info Safe


Physical Distancing 


Everything is Connected


Full Chat


For a full list of past #patientchat topics and transcripts, click here.

Tag Archive for: Empowered Patient Chat

Empowered #patientchat – Checking the Pulse on Patient Influencers

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss patient influencers.

We hope to see you Friday, October 30th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

 Guiding our discussion will be the following Topic Questions (T#):

T1: What is a patient influencer? #patientchat

T2: What do you think the role of patient influencers is? #patientchat

T3: Do you consider yourself a patient influencer? Why or why not? #patientchat

T4a: What are some of the positive effects of patient influencers? #patientchat

T4b: What are some of the negative effects of patient influencers? #patientchat

T5: Where is the line drawn between authenticity and becoming promotional? #patientchat


I'll be at the Empowered #patientchat on Fri 10/30 1pm ET. Join me! Click To Tweet

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.


Extra Reading:

The Patient Perspective: Patient Influencers and The Impact of Authenticity

Open Mic Empowered #patientchat – October 2

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion. For this chat, we are opening the discussion to topics our participants want to discuss.

What would you like to chat about?

Here’s some ideas to get you thinking:

We hope to see you Friday, October 2nd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 10/2 1pm ET. Join me! Click To Tweet


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

Asking the Right Questions at the Right Time #patientchat

Navigating Your Path to Empowerment

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion on how to ask the right questions at the right time along your patient journey.

Not everyone’s patient experience is the same. While there are commonalities, people tend to approach their diagnosis in different ways, face different struggles, and find different ways of coping. The Path to Empowerment framework helps patients find their voice at every step of the way.

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What resources did you connect with when you were newly diagnosed? How did you find them and who connected you with them? #patientchat

T2: If applicable, were you offered genetic testing? If so, how did it impact your treatment journey? #patientchat

T3a: What are your tips to get the best, most-personalized treatment for your situation? How can you plan for treatment side effects? #patientchat

T3b: Were you offered and/or did you consider a clinical trial as a treatment option? #patientchat

T4: What are some of the barriers to access the best treatment for you? What are some ways to overcome access barriers? #patientchat

T5: What type of social/mental/physical/nutrition support have you had as a patient? Where can you go to find support? #patientchat

T6: What do you do to live your best life through treatment and beyond? #patientchat

We hope to see you Friday, September 4th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 9/4 1pm ET. Join me! Click To Tweet

Empowered #patientchat – What Does Patient-Centric Care Look Like For You?

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion on patient-centric care.

According to the Institute of Medicine, patient-centric care is defined as “providing care that is respectful of and responsive to individual patient preferences, needs and values, ensuring that patient values guide all clinical decisions.” Research conducted in 1993 by the Picker Institute in conjunction with the Harvard School of Medicine which identified eight dimensions of patient-centered care. These eight principles provide a roadmap for a patient-centered approach to the care of chronic illness.

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What does care look like to you when it is patient-centered? (for appointments, results, treatment, medical records, etc.) #patientchat

T2: Have you seen these concepts put into practice? Examples? What has worked well? #patientchat

T3: Would you consider your doctor to be patient-centered? Why or why not? #patientchat

T4: What are some of the barriers to a patient-centered approach? #patientchat

T5: How can a patient-centric approach add value outside of the clinical experience? #patientchat

We hope to see you Friday, January 24th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 1/24 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Patient Access: Let’s Talk Health Data

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion on patient health data.

We’ll chat about how gaining access puts you in control of healthcare decisions, controlling your health data, privacy concerns, and more!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What’s the first step in getting and controlling your health data? #patientchat

T2: Why is it important for patients to see their health data? #patientchat

T3: What needs to be in place to support two-way data sharing in healthcare? #patientchat

T4: What are some tips and cautions when protecting your health data? #patientchat

T5: How do you feel about the sharing of health data for research #patientchat

BONUS: From NCI’s Provocative Questions: What methods can be developed to integrate patient-generated health data into electronic health records? #patientchat

We hope to see you Friday, January 10th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 1/10 1pm ET. Join me! Click To Tweet

June 14th Empowered #patientchat: How Does An Empowered Patient Approach Care Coordination?

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss care coordination. Care coordination is “the deliberate organization of patient care activities between two or more participants (including the patient) involved in a patient’s care to facilitate the appropriate delivery of health care services.”

Care coordination can mean different things to different people, but mostly includes the following aspects of care:

  • Managing the exchange of information among participants responsible for different aspects of care
  • Synchronizes the delivery of a patient’s health care from multiple providers and specialists.
  • Avoiding unnecessary and/or redundant tests and procedures, which can both improve the care experience and reduce the cost of care
  • Assessing all of a patient’s needs – not just their immediate clinical needs

We hope to see you Friday, June 14th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: Why is care coordination important? #patientchat

T2: How can care coordination be put into action? #patientchat

T3: In your opinion, who is involved and responsible for coordinating care? #patientchat

T4: What are the elements of successful care coordination? #patientchat

T5: How coordinated is the care experience for you? #patientchat


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 6/14 1pm ET. Join me! Click To Tweet

Empowered #patientchat – The Role of Support and Advocacy Throughout the Patient Journey

Youre Invited! We hope you‘ll join us for our next Empowered #patientchat discussion as we explore the role of support and advocacy at different points along the patient journey. We will be joined by special guest, Laurie Reed (@LReedsBooks).

Listening, distilling, and giving voice to the concerns of others are the skills Laurie Reed developed over 20 years of marketing research for two leading international companies. Laurie holds a Master’s of Science degree as well as a Certificate in Patient Advocacy, both from the University of Wisconsin-Madison.

Throughout her years of professional experience in media communications and healthcare, it has been Laurie’s singular objective to ensure representation of the voice of the customer in strategic planning, decision-making, and policy.

We hope to see you Friday, November 16th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What types of support, if any, did you have when you were first diagnosed? #patientchat

T2: How do you think having/not having support at the time of diagnosis impacted your decisions or course of treatment? #patientchat

T3: During treatment what type of support have you had? #patientchat

T4: How do you think having support during treatment had an impact on your decisions or the course of treatment? #patientchat

T5: How has support changed for you from the time of diagnosis through treatment? #patientchat

T6: How significant of a role has advocacy – whether for yourself, from others, or with the help of an organization or online community – played for you in the course of treatment? #patientchat

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Friday 11/16 at 10amPT | 1pmET. Join me! Click To Tweet

Regularly scheduled Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

 

Empowered #patientchat – The Power of Online Patient Communities

You’re Invited! We hope you will join us for our next Empowered #patientchat as we discuss how and why patients and care partners use online communities, especially to aid in their own healthcare.

Online communities provide an alternative means of support for patients and care partners by linking people with similar issues. where people with common goals, interests & values can unite with no geographical barriers

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What makes a good online community? Tell us about some of your favorites. #patientchat

T2: Have online communities helped you in your own healthcare? How so? #patientchat

T3: What are the challenges of being a part of an online community? How can we overcome them? #patientchat

T4: Are online communities the same as support groups? What can live support groups learn from online communities & vice versa? #patientchat

T5: Do you use social media platforms differently when talking about your health? For example, Facebook vs. Twitter? #patientchat

T6: Research shows that most patients prefer Facebook to discuss their health. How can we share #patientchat resources and information with these folks?

CT: We’re excited to launch the Empowered Patient Chat Facebook Group today! Please join us and let us know what you want to see there #patientchat bit.ly/2Iku6cu

We hope to see you Friday, May 18th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 5/18 at 10amPT | 1pmET. Join me! Click To Tweet


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

 

Empowered #patientchat – Understanding Medical Research

Health Literacy is fundamental to quality care.” – Dr. David A. Kindig

Many Americans struggle to both understand and properly utilize information regarding their health, and it can sometimes seem impossible to keep up with the latest medical research.

Medical studies encompass a wide array of research ranging from the most basic explanation of fundamental scientific principles to advanced clinical research involving patients.

Millions of consumers gather health-related information from magazines, television or online. Some of this information is reliable and up to date, but some can be misleading and incorrect. How can you tell the good from the bad? One of the most important things you can do to ensure you are only consuming reliable information is to read the medical research yourself.

Guiding our discussion will be the following Topic (T#:) Questions:

T1: Do you read medical research publications? Why or why not?

T2: Beyond doctors, where can patients find reliable information on medical research?

T3: What are some of the questions to ask yourself when evaluating medical research?

T4: What are the most important points to consider when reading medical research?

T5: What are your tips for bringing up medical research with doctors?

T6: Other than enrolling in research, what other ways can empowered patients get involved with research?

 

We hope to see you Friday, March 23rd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 3/23 at 10amPT | 1pmET. Join me! Click To Tweet

Regularly scheduled Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

Related Resources:

How to Read and Understand a Scientific Paper

A How-To on Reading Scientific Papers

How to Read Beyond the Headline: 9 Essential Questions to Evaluate Medical News

Empowered #patientchat – How Does Technology Benefit Patients

You’re Invited! We hope you‘ll join us for our next Empowered #patientchat discussion as we explore health technology. Health technology is defined by the World Health Organization as the “application of organized knowledge and skills in the form of devices, medicines, vaccines, procedures and systems developed to solve a health problem and improve quality of lives”.

Technology has transformed every aspect of our lives, and that is especially true in healthcare. It has revolutionized research and treatments, the structure and operations of the medical field, and the way healthcare is delivered. But how is all this health technology impacting patient’s lives, and is it really for the better?

We hope to see you Friday, March 9th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: Would you (or do you) use technology to help manage your health? Why or why not?

T2: If you don’t use health technology, why not? What are the barriers and challenges?

T3: Has technology changed healthcare to benefit patients? If yes, how so?

T4: What area of healthcare might positively benefit from health technology that isn’t already?

T5: What emerging health technology gives you hope for the future?

T6: If you had unlimited resources to make a major change in healthcare, what technology would you create?

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 3/9 at 10amPT | 1pmET. Join me! Click To Tweet

Empowered #patientchat – How to Include Patients in Design

Youre Invited! We hope you‘ll join us for our next Empowered #patientchat discussion as we explore how to include patients in design. Patient involvement is ensuring that patient’s views are central to the design and implementation of health care systems and processes.

Real patients bring unique and important perspectives on their own care, on their experience with health care organizations, and on the coordination and cooperation among various elements of their care. This offers a unique opportunity to tap into those talents to develop authentic, engaging, and transformative health care systems and processes. Patients can and should take a more central, driving role in research that affects their health and health care, but how exactly can this be accomplished?

This week’s #patientchat is a special one because we are trying something new! We want to publish a guide after the chat explaining how health care systems can include patients in the design and implementation of health care systems and processes.

Guiding our discussion will be the following Topic (T#:) Questions:

T1: Why should patients and families be included in the process of redesigning health care systems and processes? What additional perspective do they provide?

T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc.

T3: What elements must be incorporated to create a successful patient-centered system or process?

T4: Different patients may want different things, so how can all patients’ needs be met? Is this possible? If not, what is the compromise?

T5: Is there a specific example of a system or process that was changed or designed because of patients?

T6: Would you be interested in helping @power4patients create a guide explaining how health care systems can include patients and families in design and implementation?

We hope to see you Friday, February 23rd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 2/23 at 10amPT | 1pmET. Join me! Click To Tweet

Empowered #patientchat – What to Do When No One Will Listen

Youre Invited! We hope you‘ll join us for our next Empowered #patientchat discussion as we focus on What to Do When No One Will Listen. It can be incredibly frustrating when you feel that no one is listening to your opinion, and that can be especially true when that someone is your doctor. Without good communication, a doctor may give you the wrong diagnosis or order tests you don’t need. It’s crucial your doctor understands your goals and respects your values. But what happens when you find that your health care provider doesn’t listen to you? What can or should you do? We will be exploring the answers to those questions and more Friday, February 9th on Twitter, join us!

Guiding our discussion will be the following topic questions…

T1: Why do you think it is that patients sometimes feel that they’re not being heard by doctors or other health care providers?

T2: Have you ever had to advocate for yourself when felt you weren’t being heard or something didn’t feel right?

T3: What are your tips on how to talk to your health care provider to ensure you are being heard?

T4: If you feel like your health care provider isn’t listening to you, what can you do?

T5: When is it time to walk away and find a new health care provider? Have you ever had to do this?

We hope to see you Friday, February 9th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 2/9 at 10amPT | 1pmET. Join me! Click To Tweet

Empowered #patientchat – Caring for the Whole Person

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss whole person care with special guest Kerri Sparling (@sixuntilme). Kerri was diagnosed with Type 1 Diabetes in 1986, and now works to raise awareness for diabetes as a speaker and writer.  Her blog is SixUntilMe.com and she also sits on the board of Patient Revolution, a movement for careful and kind patient care.

Whole person care is defined as comprehensive coordinated care for the beneficiary resulting in better health outcomes. However, people and the healthcare system don’t always perceive patients as a collection of conditions. Health is personal and intertwined with people’s individual perceptions and mindsets, with the environments in which they live and work and the people with whom they interact.

Guiding our discussion will be the following topic questions…

Q1: What does “treating the whole person” mean to you, as a patient?

Q2: What is one NON-MEDICAL thing about your life that you think your clinician should know?

Q3: How can doctors engage patients in conversation that uncovers this information?

Q4: What is one thing your clinical is asking you to do that is not improving your help or feels like a burden?

Q5: What is one thing your clinician is asking you do that is improving your health?

Q6: Tell us about the best appointment you’ve had with a clinician. What made it awesome?

We hope to see you Friday, January 26th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 1/26 at 10amPT | 1pmET. Join me! Click To Tweet

Empowered #patientchat – 2018 Self-Care Goals

Youre Invited! Join us for our first bi-weekly Empowered #patientchat of the year.

We know it’s difficult to make time for yourself, especially when you or a loved one is a patient. But self-care is so important as a way of managing your mental wellbeing. Whether you call them resolutions, goals, or intentions, let’s chat about how we can make self-care and wellness a priority in our daily, weekly, and monthly plans in 2018.

Guiding our discussion will be the following topic questions:

T1: “Self-care isn’t always bath bombs and $20 face masks…” What does self-care mean for you? #patientchat

T2: For 2018, what would you like to start doing/stop doing? How do self-care and wellness fit into your overall plans? #patientchat

T3: Think about a self-care goal(s) you reached in 2017. What helped you succeed? Tips? What can keep you from attaining your goals? #patientchat

T4: Why is it important for care partners to prioritize self-care? #patientchat

T5: How can you sustain your self-care routine when days aren’t routine? Example: Appointment days for you or loved ones? #patientchat

T6: How can we make self-care and wellness part of our daily, weekly and monthly plans? #patientchat

We hope to see you Friday, January 12th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 1/12 at 10amPT | 1pmET. Join me! Click To Tweet

No Empowered #patientchat – Happy Holidays

There will be no Empowered #patientchat today. See you next year!