Posts

#patientchat Highlights: Rare but Not Invisible: Finding Your Community

Last week we hosted a “Rare but Not Invisible: Finding Your Community” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

What Resources Have You Used to Find Your Community?


How do you use your community to improve your health or the health of those you love?


What are some of the challenges patients in your community face?


Full Transcript

#patientchat Highlights: Healthcare Trends: Are They Here to Stay?

Last week we hosted a “Healthcare Trends: Are They Here to Stay?” #patientchat. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Health Equity


Telehealth


Lack of Access


Full Transcript

#patientchat Highlights: Ask Me Anything (AMA) with Marie Ennis-O’Connor

Last week we hosted an “Ask Me Anything (AMA)” Empowered #patientchat with Marie Ennis-O’Connor (@JBBC) where she answered everyone’s pressing questions about social media. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Learn How to Create Professional Graphics


“Sharing can be used as medicine, mental health support, a tool to raise ur quality of life”


Practical information presented in human-centered language


Full Transcript

#patientchat Highlights: Genome-Wide Sequencing: What an Empowered Patient Needs to Know

Last week we hosted an Empowered #patientchat with GenCOUNSEL (@GenCOUNSEL_CA) titled “Genome-Wide Sequencing: What an Empowered Patient Needs to Know”. The #patientchat community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

“Genetic counselors help patients know what they’re dealing with.”

Genetic Counseling Helps Patients and Families Feel More Empowered

What can stakeholders do to make genome-wide sequencing and genetics services more equitable and diverse?


Full Transcript

#patientchat Highlights: Vaccine Hesitancy: Let’s Talk About It

Last week we hosted a “Vaccine Hesitancy: Let’s Talk About It” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Concerns from Chronic Patients

“People are afraid of what they don’t understand.”

Coordinate Efforts with Community Leaders


Full Transcript

#patientchat Highlights: The Engaged Patient: Utilizing Digital Health

Last week we hosted a “The Engaged Patient: Utilizing Digital Health” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Shared Decision Making is Key

Advocate for Access and Equity

The Patient is a Respected Member of their Care Team


Full Transcript

Applying Patient Advocacy Initiatives to Your Patient Journey #patientchat Highlights

Last week, we hosted an Empowered #patientchat on applying patient advocacy initiatives to the patient journey with special guest Seth Rotberg (@Srotberg15). Seth is a rare disease advocate and motivational speaker who is passionate about bringing his personal experience to better support the health community. The #patientchat community came together and shared their best advice and tips.

Top Tweets and Advice

 

You Have Power

 

 

 

 

Be Confident

 

 

 

 

Patient Advocacy Has Benefits

 

 


Full Chat

 

Advice For Newly Diagnosed Patients #patientchat Highlights

Last week, we hosted an Empowered #patientchat on advice for newly diagnosed patients. The #patientchat community came together and shared their best advice and tips.

The Top Tweets and Advice…

 

Ask Questions

 

 

 

 

Seek a Second Opinion

 

 

 

 

Stay Informed


Full Chat

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