Tag Archive for: #patientchat

#patientchat Highlights Open Mic

Last week we hosted an “Open Mic” Empowered #patientchat, the community came together on Twitter for a lively discussion. Take a look at the top tweets and full transcript from the chat.

Top Tweets

Burnout is Real

“We already have the power”

Shining a Light on Passionate Causes


Full Transcript

How to Apply Your Empowerment Skills to Your Health Journey #patientchat Highlights

Last week, we hosted our third Virtual Empowered #patientchat. The Virtual Empowered #patientchat was a moderated 45-minute conversation conducted online via Zoom and Facebook Live along with a lively discussion on Twitter. Below you will find the highlights from the online events and highlights from the conversation on Twitter.

Virtual #patientchat Highlights

Replay

How to Apply Your Empowerment to Your Health Journey from Patient Empowerment Network on Vimeo.

Panel

Top Tweets

What are some frustrations you are dealing with right now?


What is the biggest hurdle you’ve had to overcome in your health journey?


What are your go-to trusted resources and how did you find them?


Full Tweetchat


For a list of all past #patientchat topics and transcripts, click here.

Asking the Right Questions at the Right Time #patientchat Highlights

Last week, we hosted an Empowered #patientchat titled “Asking the Right Questions at the Right Time: Navigating Your Path to Empowerment”. Below you will find the top tweets and the full transcript from the conversation on Twitter.

Top Tweets

Your Goals Matter


The Importance of Self-Advocacy and Support


Full Chat

Best Practices for Sharing Your Patient Story #patientchat Highlights

Last week, we hosted an Empowered #patientchat titled “Best Practices for Sharing Your Patient Story” with special guest The Patient Story (@Patient_Story). Below you will find the top tweets and the full transcript from the conversation on Twitter.

Top Tweets

Sharing Your Story Can Help Others


A Free Public Speaking Toolkit


Don’t Give Weight to Other People’s Thoughts


Full Chat

Building Resilience and Boosting Immunity #patientchat Highlights

Last week, we hosted our second Virtual Empowered #patientchat. The Virtual Empowered #patientchat was a moderated 45-minute conversation conducted online via Zoom and Facebook Live along with a lively discussion on Twitter. Below you will find the highlights from the online events and highlights from the conversation on Twitter.

Virtual #patientchat Highlights

Panel

“We can’t talk about frustrations without talking about resilience because that’s really how we manage these frustrations, how we bounce back, how we maintain our mental health and our physical health during these difficult times”

– Dr. Rochester

What is Resilience?

“Resilience really is about coming home to ourselves, to our center. We want to accept ourselves where we are, shine a light of awareness and sensitivity on ourselves with tenderness and with love. That’s what mindfulness can do for us.” – Broderick

“We all have things in life we have to deal with. What are the silver linings, what are the hidden blessings? Resilience really is how to jump back into your life” – Jill

How Do We Build Resilience?

“When i first was diagnosed, I did a lot of Bible journaling and some quiet inward time to think about it, and that really helped. Building community is a real big part. You need to connect with your family, your friends, and the people that are out there and let them help you. Focusing on personal health, things like yoga and meditation are huge, eating well.” – Jill

Boosting Immunity

Walking

  • Forest Bathing
  • Getting out into Nature
  • Dancing with “IV”
  • One step at a time

Eating Well

  • Dinner with family
  • Phase out added sugar
  • Smoothie game: Guess what’s in this one!

Stress Reduction

  • Breathing exercises
  • Mitigating suffering added by your own mind
  • Mindful acceptance and non-judgment

A Timeless Call to Action

It’s a matter of picking up the pieces, looking forward, and figuring out what you need to do next and what’s important to you. Be true to yourself… Cancer or any serious life-threatening thing really puts it in perspective. What you want to do with the rest of your life? – Gerri

Top Tweets

“Current me is where the fun is”

Alan's Top Tweet


Resilience Comes from Hope

Barby's Top Tweet


The Present is the Only Thing We Can Control


Full Chat

Ending Isolation: Tips for Connecting & Resources for Support Empowered #patientchat Highlights

Last week, we hosted an Empowered #patientchat on Twitter titled Ending Isolation: Tips for Connecting & Resources for Support Empowered alongside NORD. The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Increased Engagement Across Social Economic Boundaries


Ways to Improve Patient Access


Health Literacy Matters


Full Chat


For a list of all past #patientchat topics and transcripts, click here.

Patient Access: Let’s Talk Health Care Technology #patientchat Highlights

Last week, we hosted an Empowered #patientchat on Twitter titled Patient Access: Let’s Talk Health Care Technology. The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Increased Engagement Across Social Economic Boundaries


Ways to Improve Patient Access


Health Literacy Matters


Full Chat


For complete list of #patientchat topics and transcripts, click here.

Virtual #patientchat Highlights

Community Matters: MD and Patient Authored Tips to Help You Stay Involved

Last week, we hosted our first ever Virtual Empowered #patientchat. The Virtual Empowered #patientchat was a moderated 45-minute conversation conducted online via Zoom and Facebook Live along with a lively discussion on Twitter. Below you will find the highlights from the online events and highlights from the conversation on Twitter.

Virtual #patientchat Highlights

Is Telemedicine a Useful Tool?

“I was experiencing some symptoms of COVID and I made an appointment with my PCP. We went over the symptoms and I tested negative for the antibodies, but I didn’t have to go in at the time when it was crowded.” – Mel

“I have always felt that we have under-utilized telemedicine. There is so much that can be done via a telemedicine visit.” – Dr. Rochester

“One of the best things I’ve seen from telemedicine is for a lot of people with physical ability issues or anything like that, or a really bad migraine or if you have a chronic illness that fluctuates every day. What if you make an appointment in December and it comes up a couple months later and you don’t feel good that day. You can still have the access to your provider and talk through any concerns or even potentially get help for a flare or things like that.” – Alexa

At Wits’ End?

“Be kind to yourself. Extend compassion to others. Find an emotional accountability partner. Write down a list of loved ones whenever you think of them so you remind yourself to check in later.” – Honora

Coping Tools

  • Don’t just zoom. Try online games with your loved ones!
  • Schedule virtual coffee or tea
  • Join a wellness challenge!
  • Take care of yourself

Community Empathy

It is normal to feel anxiety right now. Mel recommends finding the techniques that manage it best for you like doing some daily exercise to get your vitamin D. Stay focused: it’s a marathon not a sprint.

A Timeless Call to Action

“Reach out to others. You can physically distance without sociallydistancing. Pick up the phone, call someone, do a zoom call or facetime or skype, but don’t let these trying times prevent you from staying connected with your community and even from creating a brand new community.” – Dr. Rochester


Top Tweets

Sometimes You Need to Unplug


Enhancing Digital Health Literacy


Stories Are Still Important


Full Chat


For a full list of past #patientchat topics and transcripts, click here.

Community Check-In #patientchat Highlights

Last week, we hosted a “Community Check-In” #patientchat with Amanda Greene (@LALupusLady). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Telehealth to save the day?


Online communities won’t be canceled


Use social media to find patients like you


Full Chat

For a full list of past #patientchat topics and transcripts, click here.

Best Practices for Participating in a Patient Community #patientchat Highlights

Last week, we hosted an #patientchat on “Best Practices for Participating in a Patient Community” with Carly Flumer (@carlyflumer). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Dos and Don’ts


A Good Online Community


Always Somebody There


Full Chat

Cyber Hygiene: What Is It and Why Does It Matter? #patientchat Highlights

Last week, we hosted an Empowered #patientchat on “Cyber Hygiene: What Is It and Why Does It Matter?” with Casey Quinlan (@MightyCasey). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Keep Your Online Info Safe


Physical Distancing 


Everything is Connected


Full Chat


For a full list of past #patientchat topics and transcripts, click here.

Removing Barriers to a Successful Patient-Provider Relationship #patientchat Highlights

Last week, we hosted an Empowered #patientchat on “Removing Barriers to a Successful Patient-Provider Relationship”. The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Holistic Medicine


“Equified Partnership”


Keys to a Good Patient-Provider Relationship


Full Chat


For a full list of past #patientchat topics and transcripts, click here.

Driving Change: How Rare Disease Patients Can Get Involved #patientchat Highlights

Last week, we hosted an Empowered #patientchat on “Driving Change: How Rare Disease Patients Can Get Involved” with RDMD (@rdmd). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Equality vs. Equity


Continued Discussion


Culture Change


Full Chat


For a full list of past #patientchat topics and transcripts, click here.

Disparities in Care: Equality vs. Equity #patientchat Highlights

Last week, we hosted an Empowered #patientchat on “Disparities in Care: Equality vs. Equity” with Diverse Health Hub (@DHealthHub). The #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Equality vs. Equity


Continued Discussion


Culture Change


Full Chat


For a full list of past #patientchat topics and transcripts, click here.

What Does Patient-Centric Care Look Like For You? #patientchat Highlights

Last week, we hosted an Empowered #patientchat on “What Does Patient-Centric Care Look Like For You?” and the #patientchat community came together for an engaging discussion and shared what was their mind.

Top Tweets

Focus on Patient Activism


Patient-Centric = Viewing Patients as a Whole Person


All Patients Have Different Needs


Full Chat


For a list of all past #patientchat topics and transcripts, click here.

Tag Archive for: #patientchat

June 14th Empowered #patientchat: How Does An Empowered Patient Approach Care Coordination?

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss care coordination. Care coordination is “the deliberate organization of patient care activities between two or more participants (including the patient) involved in a patient’s care to facilitate the appropriate delivery of health care services.”

Care coordination can mean different things to different people, but mostly includes the following aspects of care:

  • Managing the exchange of information among participants responsible for different aspects of care
  • Synchronizes the delivery of a patient’s health care from multiple providers and specialists.
  • Avoiding unnecessary and/or redundant tests and procedures, which can both improve the care experience and reduce the cost of care
  • Assessing all of a patient’s needs – not just their immediate clinical needs

We hope to see you Friday, June 14th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: Why is care coordination important? #patientchat

T2: How can care coordination be put into action? #patientchat

T3: In your opinion, who is involved and responsible for coordinating care? #patientchat

T4: What are the elements of successful care coordination? #patientchat

T5: How coordinated is the care experience for you? #patientchat


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 6/14 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Leveraging Social Media for Patient Advocacy

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss social media and patient advocacy.

We hope to see you Friday, May 3rd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: How do you personally use social media to advocate for your own health? For the health of others? #patientchat

T2: What advice would you share for those new to using social media for advocacy? #patientchat

T3: What are your ‘rules’ for using social media to be an effective advocate for yourself or others? #patientchat

T4: Have you seen social media being used to influence policy change? If so, how? #patientchat

T5: As a patient advocate, how can you reach populations that aren’t using social media? #patientchat


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 5/3 1pm ET. Join me! Click To Tweet

Empowered #patientchat – Applying Patient Advocacy Initiatives to Your Patient Journey

You’re Invited! We hope you’ll join us for our next Empowered #patientchat on Friday, March 22nd as we discuss and share how to apply patient advocacy initiatives to you patient journey with special guest Seth Rotberg (@Srotberg15).

Seth is a rare disease advocate and motivational speaker who is passionate about bringing his personal experience to better support the health community. He has done over 21 talks, with the most notable ones being at TEDxNatick and Global Genes Patient Advocacy Summit. Seth’s passion is driven by his mother’s 17 year battle with the rare, genetic disease known as Huntington’s Disease (HD). At the age of 20, Seth also tested positive for the disease and is a gene carrier. He is an active member of the HD community and currently sits on the Board of Trustees for the Huntington’s Disease Youth Organization (HDYO).

Seth also has a masters in nonprofit management from DePaul University and currently resides in Washington, D.C.

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

Guiding our discussion will be the follow Topic Questions (T#:)

T1: What is your advice for patients wanting to become advocates? #patientchat
T2: Are there any specific tactics that you have found successful during your advocacy work? #patientchat
T3: What motivated you to get more involved within your community? #patientchat
T4: Do you think being an advocate can improve your own patient journey? #patientchat
T5: What are a few ways to get started in my patient advocacy journey? #patientchat

T6: Self-advocacy is a pillar of patient advocacy – what are some tips to improve your self-advocacy skills? #patientchat


We hope to see you Friday, March 22nd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 3/22 1pm ET. Join me! Click To Tweet

Empowered #patientchat – March 8th

You’re Invited! We hope you’ll join us for our next Empowered #patientchat discussion. For this chat, we are opening the discussion to topics our participants want to discuss.

What would you like to chat about?

Here’s some ideas to get you thinking:

 

We hope to see you Friday, March 8th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 3/8 at 10amPT | 1pmET. Join me! Click To Tweet


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

No Empowered #patientchat – Happy Holidays!

There will be no Empowered #patientchat today. Enjoy the holidays and we hope to see you in 2019!

Empowered #patientchat – A Year in Review: Looking Back on 2018 and Ahead to 2019

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we review 2018 and look ahead to next year with special guest, Kimberly Hartmann (@fireflyrn84).

Kim is a Registered Nurse turned full time patient living with dysautonomia (autonomic nervous system dysfunction), Ehlers-Danlos syndrome, and numerous other chronic illnesses. Pushing through adversity left her needing an outlet. How was she supposed to find a way to cope and still let the nurse live on? She turned to patient advocacy and started blogging as well at AutonomicRN.com. That became her identity; why not take on your disease straight on. Currently she is the Medical, Clinical Liaison Coordinator and a Co-Leader on the Advocacy Team for Dysautonomia Support Network. Kim is also a Savvy Cooperative Pioneer Member as well as Savvybassador, a Patient leader and expert for WEGO Health, and has served on the Patientslikeme Team Of Advisors.

The chronic illness community has become a support system for her. Who better to understand the landscape of healthcare and just ‘getting it’ than those who are involved in it?

We hope to see you Friday, December 14th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2019? #patientchat

T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2019?#patientchat

T3: Which healthcare trends were important to you in 2018? What trends would you like to see gain momentum? #patientchat

T4: We want to hear from you! What topics are you passionate about and would like to hear more of in 2019? #patientchat

T5: How can we empower others and get more people involved? What can we do to foster collaboration? #patientchat


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 12/14 at 10amPT | 1pmET. Join me! Click To Tweet

Empowered #patientchat – The Role of Support and Advocacy Throughout the Patient Journey

Youre Invited! We hope you‘ll join us for our next Empowered #patientchat discussion as we explore the role of support and advocacy at different points along the patient journey. We will be joined by special guest, Laurie Reed (@LReedsBooks).

Listening, distilling, and giving voice to the concerns of others are the skills Laurie Reed developed over 20 years of marketing research for two leading international companies. Laurie holds a Master’s of Science degree as well as a Certificate in Patient Advocacy, both from the University of Wisconsin-Madison.

Throughout her years of professional experience in media communications and healthcare, it has been Laurie’s singular objective to ensure representation of the voice of the customer in strategic planning, decision-making, and policy.

We hope to see you Friday, November 16th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What types of support, if any, did you have when you were first diagnosed? #patientchat

T2: How do you think having/not having support at the time of diagnosis impacted your decisions or course of treatment? #patientchat

T3: During treatment what type of support have you had? #patientchat

T4: How do you think having support during treatment had an impact on your decisions or the course of treatment? #patientchat

T5: How has support changed for you from the time of diagnosis through treatment? #patientchat

T6: How significant of a role has advocacy – whether for yourself, from others, or with the help of an organization or online community – played for you in the course of treatment? #patientchat

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Friday 11/16 at 10amPT | 1pmET. Join me! Click To Tweet

Regularly scheduled Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

 

Empowered #patientchat – Patients Included – In Radiology?

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss how radiology can include patients and become more patient-centered.

Patient-centered care (i.e., care organized around the patient), as defined by the University of Cincinnati Medical Centers Radiology Department, is a model in which health care providers partner with patients and families to identify and satisfy patients’ needs and preferences. They go on the explain that radiologists have traditionally been characterized as “doctor-to-doctor” consultant who spends most of the time in dark reporting rooms interacting with a computer screen only.

As medicine becomes more patient driven, radiology departments need to embrace this movement. One step in the right direction is The Journal of the American College of Radiology (JACR) and the ACR AC Patient Subcommittee’s Patient Summaries. These summaries are intended to help patients understand what tests are appropriate for their situation, and are designed to help ordering physicians and radiologists better communicate the reason they are requesting, or performing, a particular imaging test.

We will be joined by special guest, a diagnostic radiologist and RSNA representative,  Jennifer Kemp, MD, FACR, Vice President, Diversified Radiology of Colorado. Dr. Kemp is active nationally in the movement of ‘patient centered radiology’; she is an advocate for helping patients understand their imaging examinations and is passionate about making sure that each and every patient has the safest and most appropriate imaging examination to answer the question at hand. Dr. Kemp’s Care Philosophy is “Patient first in all that I do.”

We hope to see you Friday, October 5th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific | 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic Questions (T#):

T1: Why should hospitals and outpatient imaging centers focus on being patient-centered? #patientchat

T2: What are the dimensions of patient-centered care that are relevant to radiology departments? #patientchat

T3: What should be implemented? Describe the interventions that promote a patient-centered environment. #patientchat

T4: Now speaking to radiologists themselves. How can radiologists lead patient-centered care? #patientchat

T5: Do you have a good or bad example of patient-centered care in a radiology department? Describe your experience. #patientchat


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern on Twitter and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 10/5 at 10amPT | 1pmET. Join me! Click To Tweet


Extra Reading:

https://healthmanagement.org/c/imaging/post/why-we-do-need-to-humanize-radiology#

https://www.jacr.org/content/ac-patient-summaries

 

Empowered #patientchat – Myths and Misconceptions in Healthcare

Youre Invited! We hope you‘ll join us for our next Empowered #patientchat as we discuss the myths and misconceptions in healthcare.

Friday the 13th has been perceived as an unlucky day since the Middle Ages and according to the Stress Management Center and Phobia Institute it is the most feared day and date in history. Taking note of this fear, we bring you this week’s Myths and Misconceptions in Healthcare. There is a lot of misinformation circulating around health and healthcare for patients. This week, we want to explore and debunk the myths and misconceptions that surround today’s big topics such as clinical trials, healthcare, and more!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What myths or misconceptions about health/healthcare persist today? #patientchat

T2: Do you believe these misconceptions impede progress? #patientchat

T3: Fact or Myth: Clinical trials are for patients who have run out of options. Discuss. #patientchat

T4: Fact or Myth: Access to medical care is the most important factor in determining how healthy anyone is. Discuss. #patientchat

T5: Fact or Myth: Few health decisions are appropriate for Shared Decision-Making (SDM).Discuss.#patientchat

T6: Fact or Myth: Patient engagement is only for chronic disease patients.Discuss. #patientchat

T7: In your role, how do you/can you make the biggest impact to debunk these myths or misconceptions? #patientchat

We hope to see you Friday, July 13th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 7/13 at 10amPT | 1pmET. Join me! Click To Tweet


Empowered Patient Chats (#patientchat) are held once a month in the summer on Fridays at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

Empowered #patientchat – The Power of Online Patient Communities

You’re Invited! We hope you will join us for our next Empowered #patientchat as we discuss how and why patients and care partners use online communities, especially to aid in their own healthcare.

Online communities provide an alternative means of support for patients and care partners by linking people with similar issues. where people with common goals, interests & values can unite with no geographical barriers

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What makes a good online community? Tell us about some of your favorites. #patientchat

T2: Have online communities helped you in your own healthcare? How so? #patientchat

T3: What are the challenges of being a part of an online community? How can we overcome them? #patientchat

T4: Are online communities the same as support groups? What can live support groups learn from online communities & vice versa? #patientchat

T5: Do you use social media platforms differently when talking about your health? For example, Facebook vs. Twitter? #patientchat

T6: Research shows that most patients prefer Facebook to discuss their health. How can we share #patientchat resources and information with these folks?

CT: We’re excited to launch the Empowered Patient Chat Facebook Group today! Please join us and let us know what you want to see there #patientchat bit.ly/2Iku6cu

We hope to see you Friday, May 18th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 5/18 at 10amPT | 1pmET. Join me! Click To Tweet


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

 

Empowered #patientchat – Understanding Medical Research

Health Literacy is fundamental to quality care.” – Dr. David A. Kindig

Many Americans struggle to both understand and properly utilize information regarding their health, and it can sometimes seem impossible to keep up with the latest medical research.

Medical studies encompass a wide array of research ranging from the most basic explanation of fundamental scientific principles to advanced clinical research involving patients.

Millions of consumers gather health-related information from magazines, television or online. Some of this information is reliable and up to date, but some can be misleading and incorrect. How can you tell the good from the bad? One of the most important things you can do to ensure you are only consuming reliable information is to read the medical research yourself.

Guiding our discussion will be the following Topic (T#:) Questions:

T1: Do you read medical research publications? Why or why not?

T2: Beyond doctors, where can patients find reliable information on medical research?

T3: What are some of the questions to ask yourself when evaluating medical research?

T4: What are the most important points to consider when reading medical research?

T5: What are your tips for bringing up medical research with doctors?

T6: Other than enrolling in research, what other ways can empowered patients get involved with research?

 

We hope to see you Friday, March 23rd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 3/23 at 10amPT | 1pmET. Join me! Click To Tweet

Regularly scheduled Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

Related Resources:

How to Read and Understand a Scientific Paper

A How-To on Reading Scientific Papers

How to Read Beyond the Headline: 9 Essential Questions to Evaluate Medical News

Empowered #patientchat – How Does Technology Benefit Patients

You’re Invited! We hope you‘ll join us for our next Empowered #patientchat discussion as we explore health technology. Health technology is defined by the World Health Organization as the “application of organized knowledge and skills in the form of devices, medicines, vaccines, procedures and systems developed to solve a health problem and improve quality of lives”.

Technology has transformed every aspect of our lives, and that is especially true in healthcare. It has revolutionized research and treatments, the structure and operations of the medical field, and the way healthcare is delivered. But how is all this health technology impacting patient’s lives, and is it really for the better?

We hope to see you Friday, March 9th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic (T#:) Questions:

T1: Would you (or do you) use technology to help manage your health? Why or why not?

T2: If you don’t use health technology, why not? What are the barriers and challenges?

T3: Has technology changed healthcare to benefit patients? If yes, how so?

T4: What area of healthcare might positively benefit from health technology that isn’t already?

T5: What emerging health technology gives you hope for the future?

T6: If you had unlimited resources to make a major change in healthcare, what technology would you create?

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 3/9 at 10amPT | 1pmET. Join me! Click To Tweet

Empowered #patientchat – How to Include Patients in Design

Youre Invited! We hope you‘ll join us for our next Empowered #patientchat discussion as we explore how to include patients in design. Patient involvement is ensuring that patient’s views are central to the design and implementation of health care systems and processes.

Real patients bring unique and important perspectives on their own care, on their experience with health care organizations, and on the coordination and cooperation among various elements of their care. This offers a unique opportunity to tap into those talents to develop authentic, engaging, and transformative health care systems and processes. Patients can and should take a more central, driving role in research that affects their health and health care, but how exactly can this be accomplished?

This week’s #patientchat is a special one because we are trying something new! We want to publish a guide after the chat explaining how health care systems can include patients in the design and implementation of health care systems and processes.

Guiding our discussion will be the following Topic (T#:) Questions:

T1: Why should patients and families be included in the process of redesigning health care systems and processes? What additional perspective do they provide?

T2: How should patients and families be engaged? For example, how many should be consulted?, where to find them?, at what point should they be consulted?, etc.

T3: What elements must be incorporated to create a successful patient-centered system or process?

T4: Different patients may want different things, so how can all patients’ needs be met? Is this possible? If not, what is the compromise?

T5: Is there a specific example of a system or process that was changed or designed because of patients?

T6: Would you be interested in helping @power4patients create a guide explaining how health care systems can include patients and families in design and implementation?

We hope to see you Friday, February 23rd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 2/23 at 10amPT | 1pmET. Join me! Click To Tweet

Empowered #patientchat – What to Do When No One Will Listen

Youre Invited! We hope you‘ll join us for our next Empowered #patientchat discussion as we focus on What to Do When No One Will Listen. It can be incredibly frustrating when you feel that no one is listening to your opinion, and that can be especially true when that someone is your doctor. Without good communication, a doctor may give you the wrong diagnosis or order tests you don’t need. It’s crucial your doctor understands your goals and respects your values. But what happens when you find that your health care provider doesn’t listen to you? What can or should you do? We will be exploring the answers to those questions and more Friday, February 9th on Twitter, join us!

Guiding our discussion will be the following topic questions…

T1: Why do you think it is that patients sometimes feel that they’re not being heard by doctors or other health care providers?

T2: Have you ever had to advocate for yourself when felt you weren’t being heard or something didn’t feel right?

T3: What are your tips on how to talk to your health care provider to ensure you are being heard?

T4: If you feel like your health care provider isn’t listening to you, what can you do?

T5: When is it time to walk away and find a new health care provider? Have you ever had to do this?

We hope to see you Friday, February 9th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 2/9 at 10amPT | 1pmET. Join me! Click To Tweet

Empowered #patientchat – Caring for the Whole Person

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss whole person care with special guest Kerri Sparling (@sixuntilme). Kerri was diagnosed with Type 1 Diabetes in 1986, and now works to raise awareness for diabetes as a speaker and writer.  Her blog is SixUntilMe.com and she also sits on the board of Patient Revolution, a movement for careful and kind patient care.

Whole person care is defined as comprehensive coordinated care for the beneficiary resulting in better health outcomes. However, people and the healthcare system don’t always perceive patients as a collection of conditions. Health is personal and intertwined with people’s individual perceptions and mindsets, with the environments in which they live and work and the people with whom they interact.

Guiding our discussion will be the following topic questions…

Q1: What does “treating the whole person” mean to you, as a patient?

Q2: What is one NON-MEDICAL thing about your life that you think your clinician should know?

Q3: How can doctors engage patients in conversation that uncovers this information?

Q4: What is one thing your clinical is asking you to do that is not improving your help or feels like a burden?

Q5: What is one thing your clinician is asking you do that is improving your health?

Q6: Tell us about the best appointment you’ve had with a clinician. What made it awesome?

We hope to see you Friday, January 26th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

I'll be at the Empowered #patientchat on Fri 1/26 at 10amPT | 1pmET. Join me! Click To Tweet