MPN Clinical Trial Cornerstone Directory

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How Can MPN Patients Become More Proactive in Their Care?

https://vimeo.com/738965259 How can MPN patients become more empowered and active in their care? Dr. Claire Harrison from Guy’s and St. Thomas’ Hospital in London shares advice for patients to gain confidence to…
What Are the Unmet Needs in Access to MPN Care?

https://vimeo.com/738964677 Which areas of MPN care still need improvements to access? MPN expert Dr. Claire Harrison from Guy’s and St. Thomas’ Hospital in London explains patients who still experience barriers to care…
How Can MPN Patients Stay Up to Date With New Treatments?

https://vimeo.com/738964407 What are some ways for MPN patients to stay updated on new treatments? MPN expert Dr. Claire Harrison from Guy’s and St. Thomas’ Hospital in London shares resources for MPN treatment…
How Can I Get the Best Myeloproliferative Neoplasm (MPN) Care?

https://vimeo.com/738128452 There are many exciting developments in the myeloproliferative neoplasms (MPNs) research pipeline, but how can patients get the best possible MPN care? Internationally respected MPN expert Dr. Claire Harrison…
MPN Patient Q&A: How Did You Avoid Obstacles to Receiving the Best Myeloproliferative Neoplasm Care

https://vimeo.com/618384176 In 1991, there were few myeloproliferative neoplasm (MPN) experts. Many MF, ET, and PV patients were misdiagnosed and often received dismissive care. MPN patient Nona Baker shares how her…
MPN Patient Q&A: How Did You Cope With a Second MPN Diagnosis?

https://vimeo.com/618381381 For myeloproliferative neoplasm (MPN) patients diagnosed with a second MPN, how can they cope or react to the diagnosis? Watch as MPN patient Nona shares her experience with her…
MPN Patient Q&A: What Lifestyle Changes Did You Make?
MPN Patient Q&A: How Did Your MPN Diagnosis Impact Your Life?

https://vimeo.com/618381471 For a myeloproliferative neoplasm (MPN) patient, how can diagnosis impact your life? Watch as MPN patient Nona shares her experience as a working mom, and Dr. Nicole Rochester shares her perspective…
MPN Patient Q&A: What Questions Should I Ask If I Suspect I Have an MPN?

https://vimeo.com/618382404 For patients who suspect they have a myeloproliferative neoplasm (MPN), what questions should they ask? Watch as MPN patient Nona shares her advice for approaching questions with your doctor,…
MPN Patient Q&A: How Do I Best Communicate My Concerns Without Feeling Dismissed?

https://vimeo.com/618382196 What can myeloproliferative neoplasm (MPN) patients do to improve communication when the feel like their concerns aren’t being heard? Watch as MPN patient Nona shares her advice for preparing…
MPN Patient Q&A: How Did You Cope With the Initial Shock of an MPN Diagnosis?

https://vimeo.com/618381250 A myeloproliferative neoplasm (MPN) diagnosis can come as a shock to many. Watch as MPN patient Nona shares her feelings and reaction following her diagnosis, and health advocate Dr. Nicole…