MPN Patient Q&A: How Did You Avoid Obstacles to Receiving the Best Myeloproliferative Neoplasm Care
https://vimeo.com/618384176 In 1991, there were few myeloproliferative neoplasm (MPN) experts. Many MF, ET, and PV patients were misdiagnosed and often received dismissive care. MPN patient Nona Baker shares how her…
MPN Patient Q&A: How Did You Cope With a Second MPN Diagnosis?
https://vimeo.com/618381381 For myeloproliferative neoplasm (MPN) patients diagnosed with a second MPN, how can they cope or react to the diagnosis? Watch as MPN patient Nona shares her experience with her…
MPN Patient Q&A: What Lifestyle Changes Did You Make?
MPN Patient Q&A: How Did Your MPN Diagnosis Impact Your Life?
https://vimeo.com/618381471 For a myeloproliferative neoplasm (MPN) patient, how can diagnosis impact your life? Watch as MPN patient Nona shares her experience as a working mom, and Dr. Nicole Rochester shares her perspective…
MPN Patient Q&A: What Questions Should I Ask If I Suspect I Have an MPN?
https://vimeo.com/618382404 For patients who suspect they have a myeloproliferative neoplasm (MPN), what questions should they ask? Watch as MPN patient Nona shares her advice for approaching questions with your doctor,…
MPN Patient Q&A: How Do I Best Communicate My Concerns Without Feeling Dismissed?
https://vimeo.com/618382196 What can myeloproliferative neoplasm (MPN) patients do to improve communication when the feel like their concerns aren’t being heard? Watch as MPN patient Nona shares her advice for preparing…
MPN Patient Q&A: How Did You Cope With the Initial Shock of an MPN Diagnosis?
https://vimeo.com/618381250 A myeloproliferative neoplasm (MPN) diagnosis can come as a shock to many. Watch as MPN patient Nona shares her feelings and reaction following her diagnosis, and health advocate Dr. Nicole…
My Journey of Living With a Myeloproliferative Neoplasm for 30 Years
https://vimeo.com/594829196 Myeloproliferative neoplasm patient Nona was shocked after diagnosis with two MPNs – essential thrombocythemia (ET) and polycythemia vera (PV) – at the age of 41. Watch as she shares…
My MPN Journey, Getting the Best Care After ET and MF Diagnoses
https://vimeo.com/588507314 Myelofibrosis and essential thrombocythemia (ET) patient Julia had experience as a health educator and hospital administrator before receiving her MPN diagnosis. Watch as she shares how she later connected…