Olutasidenib for Relapsed or Refractory Acute Myeloid Leukemia with IDH1 Mutation
Introduction Once again a new drug that was recently FDA approved for some Acute Myeloid Leukemia (AML) patients. Olutasidenib (brand name: Rezlidhia) was approved in December 2022 for AML patients…
IMF Patient and Family Seminar Takeaways
August 2023 Los Angeles, California Other than bouncing and swaying through Tropical Storm Hillary upon takeoff, the IMF’s Patient and Family Seminar was not only smooth, but wildly successful at…
Changes to Medicare Part D in 2024 and 2025
The Inflation Reduction Act of 2022 put into play some major changes to Medicare Part D enrollees. The purpose of the changes was to reduce out-of-pocket costs for prescription drugs….
Omidubicel (Expanded Cord Blood) for use in Allogeneic Transplant
Introduction Umbilical Cord Blood (UCB) has been used as a source of stem cells in allogeneic (donor) transplants since the late 1980s. When doing a transplant using bone marrow (BM)…
Full Circle Discussion with Jessica Catlin Replay
Jessica Full Circle Discussion Replay from Patient Empowerment Network on Vimeo. Jessica Catlin, our Colon Cancer Empowerment Lead takes a deep dive into her memoir, Full Circle: How Politics, Depression,…
Rezafungin for the Treatment of Candidemia and Invasive Candidiasis in Adults
Introduction I was the patient representative on the FDA Advisory Antimicrobial Drugs Advisory Committee (AMDAC) that met on January 24, 2023, to consider whether to recommend the approval of a…
Toxic Positivity: A Detriment to Disease
I remember when I was first diagnosed with thyroid cancer back in 2017. I had been working for a primary care office at the time, so I knew I was…
Negotiating Debt, Managing Your Finances and Gaining Financial Security
Debt can be crushing. It can cause people to delay marriages, purchasing of a home and even decline or delay needed medical treatment. In fact, one of the leading causes…
The Power of Shared-Decision Making: A New Revolution of Care
I remember my treating surgeon discussing my treatment options with me when I was first diagnosed with cancer back in 2017 at the age of 27. I didn’t know much…
Hospital Charity Programs: What You Need to Know
Understanding Hospital Charity Programs Many of you may be aware that some laws have changed regarding reporting of medical debt to credit agencies. Those new laws are most favorable to…
Quizartinib in FLT3-ITD-Positive AML
Introduction I generally think of treatments for AML as old, meaning they were around when I was diagnosed in 1992, or new ones that were developed after that. In the…
Managing MPN Fatigue During the Holiday
Managing MPN Fatigue During the Holiday from Patient Empowerment Network on Vimeo. MPN Care Partner and Patient, Jeff and Summer discuss how to manage fatigue during the holiday season. Summer…