From Network Managers to Empowerment Leads

At Patient Empowerment Network (PEN), we believe it is our duty as advocates to reach as many patients as possible by creating and curating relevant content. This includes our PEN-Powered…
Self-Education Is the Basis of Better Health Outcomes, Physically, Mentally, and Financially

We have all heard the phrase, “Hindsight is 20/20”. Yes, it can be, if we know to look and be retrospective and heed the lessons learned. However, too many of…
The Basics and “Why They Aren’t The Basics” of Clinical Trials

We’ve all heard about clinical trials, especially with the recent pandemic (for which there are still ongoing trials available!). But it’s not always intuitive on how to find trials, how…
How Medical Financial Hardship Can Affect Your Health

How Does Your Finances Affect Your Health? In 2002, my husband was diagnosed with MGUS, a precursor to Multiple Myeloma. As many of you have also experienced, your life changes….
Low Testosterone in Cancer or Transplant Survivors

I was one of the authors (out of more than 50) of a review article on male specific late effects in stem cell transplant patients [1]. The article looked at…
There’s an App for That…Or There Should Be: Utilizing Technology for Better Health Outcomes

Health literacy has always been a passion project of mine ever since I was diagnosed with cancer. I stand by the notion that plain language and clear communication leads to…
Is Inflation Adding to Your Financial Burden?

The stock market was doing well, until it wasn’t. For those of you who are invested in the market, things have been going splendidly for quite a while. Then comes…
Introducing Art Flatau, AML Empowerment Lead

I have decided to try my hand at writing a regular blog. I hope to write a post every month or so. This first post is something of an introduction. …
Patient and Care Partner Address the Mental Aspects of an MPN

Patient and Care Partner Address the Mental Aspects of an MPN from Patient Empowerment Network on Vimeo. MPN patient Summer emphasizes how important it is to have goals. One of…
Finding Value in Your Care: Take Action Checklist

1. Am I getting the best care or even offered the best? Is the care appropriate for my age? My condition? Am I being given more than one option,…
Is This for Real? Discerning Health Information Across the Web

Googling something is easy. Researching a topic and finding well-sourced, credible information is another story, especially in the healthcare sector. As we’ve learned through the pandemic, there’s a ton of…
Celebrating PEN Board Member, Sajjad Iqbal’s 20th Year of Cancer Survivorship

On February 21st 2022, PEN’s Board Member, Sajjad Iqbal, entered his third decade of survivorship from Salivary Duct Carcinoma, an extremely rare and very malignant type of parotid cancer. At…