Living With an MPN and Being Your Own Best Advocate
https://vimeo.com/749700159 MPN patient Rita experienced an extended path to her diagnosis. Watch as she shares her patient journey of varied symptoms, how self-advocacy and self-education assisted in her care, and…
My Polycythemia Vera Journey to Empowerment
https://vimeo.com/746981482 Myeloproliferative neoplasm patient Mark shares his journey to patient empowerment. Watch as he discusses symptoms that eventually pieced together his polycythemia vera diagnosis, helpful support resources, activities that have…
My Journey of Living With a Myeloproliferative Neoplasm for 30 Years
https://vimeo.com/594829196 Myeloproliferative neoplasm patient Nona was shocked after diagnosis with two MPNs – essential thrombocythemia (ET) and polycythemia vera (PV) – at the age of 41. Watch as she shares…
My MPN Journey, Getting the Best Care After ET and MF Diagnoses
https://vimeo.com/588507314 Myelofibrosis and essential thrombocythemia (ET) patient Julia had experience as a health educator and hospital administrator before receiving her MPN diagnosis. Watch as she shares how she later connected…