Health Educator Turned MPN Patient Speaks to Importance of Specialized Care
https://vimeo.com/619358448 Myeloproliferative neoplasm (MPN) patient and health educator Julia Olff helped others navigate the healthcare system before her diagnosis with myelofibrosis and later with ET. Watch as she shares her…
Making Lifestyle Changes When Living With an MPN
https://vimeo.com/619357029 As a myelofibrosis (MF) and essential thrombocythemia (ET) patient, Julia Olff has experienced lifestyle changes in her MPN journey. Watch as she shares changes she made with her work…
MPN Patient Shares Survivorship Tips, Recognizing Social Media Toxicity
https://vimeo.com/619357909 Myeloproliferative neoplasm (MPN) patient Julia Olff has experienced the positive and negative aspects of online information and social media in her search for support. Watch as she shares her…
Balancing MPN Treatment Adherence and Mental Health
https://vimeo.com/619356458 Balancing myeloproliferative neoplasm (MPN) treatment adherence along with symptoms can sometimes be a challenge. Watch was myelofibrosis patient Julia Olff explains how symptoms and executive functioning can impact continuation…
MPN Patient Shares Importance of Understanding Benefits of Professional Therapy
https://vimeo.com/619355903 Myelofibrosis patient Julia Olff shares her experience with seeing a professional therapist via telemedicine as part of her MPN care. See More From the MPN TelemEDucation Related Resources Understanding…
Which MPN Treatment Is Right for You? What You Need to Know Resource Guide
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MPN Patient Q&A: How Did You Avoid Obstacles to Receiving the Best Myeloproliferative Neoplasm Care
https://vimeo.com/618384176 In 1991, there were few myeloproliferative neoplasm (MPN) experts. Many MF, ET, and PV patients were misdiagnosed and often received dismissive care. MPN patient Nona Baker shares how her…
MPN Patient Q&A: How Did You Cope With a Second MPN Diagnosis?
https://vimeo.com/618381381 For myeloproliferative neoplasm (MPN) patients diagnosed with a second MPN, how can they cope or react to the diagnosis? Watch as MPN patient Nona shares her experience with her…
MPN Patient Q&A: What Lifestyle Changes Did You Make?
MPN Patient Q&A: How Did Your MPN Diagnosis Impact Your Life?
https://vimeo.com/618381471 For a myeloproliferative neoplasm (MPN) patient, how can diagnosis impact your life? Watch as MPN patient Nona shares her experience as a working mom, and Dr. Nicole Rochester shares her perspective…
MPN Patient Q&A: What Questions Should I Ask If I Suspect I Have an MPN?
https://vimeo.com/618382404 For patients who suspect they have a myeloproliferative neoplasm (MPN), what questions should they ask? Watch as MPN patient Nona shares her advice for approaching questions with your doctor,…
MPN Patient Q&A: How Do I Best Communicate My Concerns Without Feeling Dismissed?
https://vimeo.com/618382196 What can myeloproliferative neoplasm (MPN) patients do to improve communication when the feel like their concerns aren’t being heard? Watch as MPN patient Nona shares her advice for preparing…