Expert Advice | Strategies for Managing MPN-Related Fatigue
https://vimeo.com/874082964 Fatigue related to myeloproliferative neoplasms (MPNs) can be overwhelming and may have an impact on other parts of your life. So, what can be done about it? MPN specialist…
Common MPN Symptoms | What Are They and How Are They Managed?
https://vimeo.com/874082677 Managing the symptoms associated with myelofibrosis (MF), polycythemia vera (PV), and essential thrombocythemia (ET) can be frustrating, which is why communication with one’s healthcare team is so important. Dr….
Common MPN Treatment Side Effects | Strategies for Management
https://vimeo.com/874082288 When starting treatment for myelofibrosis (MF), polycythemia vera (PV), or essential thrombocythemia (ET), what side effects might one expect? MPN specialist Dr. Naveen Pemmaraju provides an overview of MPN…
Thriving With an MPN | Managing Symptoms and Treatment Side Effects
https://vimeo.com/866055658 In this webinar, MPN specialist Dr. Naveen Pemmaraju, discusses strategies for managing symptoms and treatment side effects for people living with essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis…
Thriving With an MPN | Managing Symptoms and Treatment Side Effects Resource Guide
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Becoming an Empowered and [ACT]IVATED MPN Patient
Patient Empowerment Network (PEN) is committed to efforts to educate and empower patients and care partners in the myeloproliferative neoplasm (MPN) community. MPN treatment options are ever-increasing with research advancements…
La historia de Yolanda: mi camino hacia un diagnóstico de neoplasia mieloproliferativa
https://vimeo.com/857237191 Yolanda, paciente latina con trombocitemia esencial (TE), tenía muchos síntomas antes de recibir su diagnóstico final. Observe cómo comparte los síntomas que experimentó, su largo camino hasta el diagnóstico…
Yolanda’s Story: My Path to a Myeloproliferative Neoplasm Diagnosis
https://vimeo.com/857236821 Latina essential thrombocythemia (ET) patient Yolanda had many symptoms before receiving her ultimate diagnosis. Watch as she shares the symptoms she experienced, her long path to diagnosis, and her…
How Can MPN Providers and Patients Guard Against Disease Progression?
https://vimeo.com/851363635 How exactly can myeloproliferative neoplasm (MPN) providers and patients guard against disease progression? Expert Natasha Johnson explains the likelihood of disease progression and the importance of monitoring blood cell…
How Can MPN Experts Help Inform Patients About Clinical Trials?
https://vimeo.com/851363823 What are optimal ways for myeloproliferative neoplasm (MPN) experts to inform patients about clinical trials? Expert Natasha Johnson shares how she prepares herself, her approach to informing patients, and…
How Can MPN Patient Advocacy Groups Help Patients?
https://vimeo.com/851363971 What are some ways myeloproliferative neoplasm (MPN) patient advocacy groups can help support patients? Expert Natasha Johnson explains different ways that advocacy groups can help MPN patients in their…
How Can Underrepresented MPN Communities Access Support?
https://vimeo.com/851364106 What are some ways for underrepresented myeloproliferative neoplasm (MPN) communities to access support? Expert Natasha Johnson shares ways that she’s helped inform patients about resources and clinical trial information…