Tag Archive for: Clinical Study

Empowered #patientchat – IRBs and Me – Patients as Leaders in Research

You’re Invited! We hope you’ll join us for our next Empowered #patientchat as we discuss Institutional Review Boards (IRBs).

Institutional Review Board (IRB) is an appropriately constituted group that has been formally designated to review and monitor biomedical research involving human subjects. In accordance with FDA regulations, an IRB has the authority to approve, require modifications in (to secure approval), or disapprove research. This group review serves an important role in the protection of the rights and welfare of human research subjects.

IRBs are an important mechanism for protecting the rights and welfare of human research participants of a clinical study

We hope to see you Friday, September 21st on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific | 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Guiding our discussion will be the following Topic Questions:

T1: What does the Institutional Review Board (IRB) do for the protection of human subjects in research? #patientchat

T2: Why is an Institutional Review Board (IRB) important? Tell us about your experiences, learnings, and findings. #patientchat

T3: What do you think are the impacts, if any, of IRBs on clinical innovation? #patientchat

T4: Should patients get involved in the IRB process? If so, how can they do so? #patientchat

T5: What measures should be implemented to improve the IRB process? #patientchat

BONUS: Do you think that n-of-1 trials need IRB review? #patientchat


Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

I'll be at the Empowered #patientchat on Fri 9/21 at 10amPT | 1pmET. Join me! Click To Tweet

Clinical Trial Mythbusters -LIVE Webinar

Do Patients Have A Voice While Participating in a Clinical Trial?

 

For survivors Roberta Alberle and T.J. Sharpe and so many others, cancer was an unwelcome intruder that suddenly demanded their attention. Both became proactive and engaged, vocal patients, doing research about their treatment options and gaining access to clinical trials that made a HUGE difference. Join this LIVE interactive discussion as a panel of experts, including an oncologist, clinical trial navigator and patient advocates as they de-bunk myths around clinical trials.

Register to watch online on Wednesday, September 6, 2017 @ Noon Pacific (2:00pm Central; 3:00pm Eastern) for a 45-minute virtual webinar. You’ll also have the opportunity to get your questions answered by the panel. Send questions in advance to questions@patientpower.info.

Once you register, you will receive a confirmation email with details for joining the program at the scheduled time.

Tune in to learn:

  •       Do patients still have a voice during the clinical trial process?
  •       What is a clinical trial navigator?
  •       How can patients help their healthcare team be more effective in locating trials for them?
  •       More about clinical trial resources

View Speakers

Register Now

 

Clinical Trials Mythbusters – September 6 Stinger from Patient Empowerment Network on Vimeo.

I’ll be tuning into #ClinicalTrial Mythbusters Wed 9/6 3pmET. Join me! Click To Tweet

Clinical Trial MythBusters

Are Clinical Trials a Gamble for Me or My Loved One?

Is a clinical trial right for me or is it a gamble with my health? How will my loved one be affected? Do the risks outweigh the benefits? Join this live interactive discussion as a panel of experts, including an oncologist, trial coordinator and patient advocate as they debunk some of the myths around clinical trials. Listen to hear the patient voice and perspective for getting the best care-making decisions about clinical trials.

Watch online on Wednesday, June 21, 2017 @ Noon Pacific (2:00pm Central; 3:00pm Eastern) for a 30-minute virtual webinar. You’ll also have the opportunity to get your questions answered by the panel. Send questions in advance to questions@patientpower.info.

Once you register, you will receive a confirmation email with details for joining the program at the scheduled time.

Tune in to learn:

  •       What are common clinical trial myths?
  •       Why should patients participate?
  •       How can patients navigate the system?
  •       How can I or my care partner work with my medical team?

Register Now

View Speakers

Clinical Trials Mythbusters – June 21 from Patient Empowerment Network on Vimeo.