Tag Archive for: lymphoma

Five Things You Need to Know As a Newly Diagnosed Follicular Lymphoma Patient

What’s important for newly diagnosed follicular lymphoma patients to know? In the “Follicular Lymphoma Treatment Decisions: What’s Right for You?” program, expert Dr. Tycel Jovelle Phillips from the University of Michigan Rogel Cancer Center shares five things newly diagnosed follicular lymphoma patients should know about your care and treatment.

 1. Understand How Follicular Lymphoma Progresses

Follicular lymphoma progresses from stage I through stage IV, though you may be diagnosed after it has progressed past early stages. Stage I is when the cancer is localized to one area, stage II is on one side of the diaphragm, stage III is on both sides of the diaphragm, and stage IV could involve progression into an organ. The grade of follicular lymphoma indicates how large the cancer cells look under a microscope, starting with grade 1 and then grade 2, grade 3A, and grade 3B. 

 2. Learn About Factors in Treatment Decisions

Several factors can play into follicular lymphoma treatment decisions. A patient’s age, overall health, comorbidities, treatment side effects, and treatment goals must be considered in treatment options. Patients in early stages may have a more aggressive treatment approach, while later stage patients may have a treatment approach that prioritizes quality of life. But the age and physical condition must also be considered in the treatment approach. Make sure to talk to your doctor about any concerns you have about factors under consideration for your treatment options. 

3. Know What to Expect for Treatment

Starting treatment for follicular lymphoma immediately is not always a given. Your doctor or care team may sometimes advise a period of watch and wait to monitor your progression instead. Reasons for waiting may include things like avoiding treatment side effects when there would be little benefit to fighting the cancer at its current stage.

4. Understand Your Role As a Patient

Follicular lymphoma patients now have more options to learn about treatment options. You can talk to patients and experts on social media or support groups to build foundational knowledge  about available treatments. Also, getting second opinions is no longer the taboo that it used to be. In fact, many follicular lymphoma specialists also encourage their patients to get second opinions, since there is not currently a standard of care. Patients should not feel like you’re doing something wrong by seeking a second opinion.

5. Discover Why It’s Important to Speak Up

Though doctors can observe some patient information in blood tests and other lab work, they  also must hear from their patients. Patients are the ones who know how you’re feeling, and this is why it’s vital for you to communicate with your doctor about any symptoms and side effects that you experience. Treatment can often be adjusted to minimize symptoms and side effects to provide patients with optimal quality of life while fighting your cancer.

By taking time to learn more about their care and treatment, follicular lymphoma patients can gain confidence to work toward the best care for your unique situation.

See More from The Pro-Active Follicular Lymphoma Patient Toolkit

Three Ways to Partner in Your Waldenström Macroglobulinemia Care

How can Waldenström macroglobulinemia (WM) patients become partners in their care? In the “Waldenström Macroglobulinemia Treatment Decisions: What’s Right for You?” program, expert Dr. Jorge Castillo from Dana-Farber Cancer Institute shares three key ways that WM patients can take a more active role for optimal health outcomes.

1. Ask Your Doctor When the Appropriate Time to Treat Is

WM patients can often remain in the watch-and-wait phase of their disease for many years, but it’s important for the oncologist to monitor the patient during this time. Ask your doctor when the appropriate time to treat will be, make sure that your bloodwork is monitored on a regular basis, and report how you’re feeling and all of your symptoms.

 2. Establish Your Treatment Goals and Plan

Depending on each Waldenström macroglobulinemia patient, treatment goals may vary depending on the patient age, overall health, lifestyle, and other factors. Work together with your healthcare team to determine your treatment goals and then learn about treatment options. Take action to both ask your WM provider about treatment options and ask about credible Waldenström macroglobulinemia online resources to do further research. And then discuss your treatment options with your WM provider to determine the best treatment for you.

3. Become a Proactive Patient

WM patients can take actions to further advocate for their best care. Educate yourself about your condition by reading credible online resources like International Waldenstrom’s Macroglobulinemia Foundation, Lymphoma Research Foundation, and The Leukemia & Lymphoma Society. Bring a friend or family member to your appointments with your Waldenström macroglobulinemia doctor to help take notes or to ask questions – and make sure to advocate for yourself if you feel ignored or unheard.

By taking a more active role in their care, Waldenström macroglobulinemia patients can help determine the best treatment plan for optimal health outcomes.

Waldenström Macroglobulinemia Treatment Decisions: What’s Right For You? Resource Guide

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Waldenström Macroglobulinemia Patient First Office Visit Planner

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Waldenström Macroglobulinemia Patient Follow-Up Visit Planner

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Waldenström Macroglobulinemia Care Partner First Office Visit Planner

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Waldenström Macroglobulinemia Care Partner Follow-Up Visit Planner

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Medical Tests for Waldenström Macroglobulinemia

Editor’s Note: This guide was originally published by The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) here.

By Guy Sherwood, M.D., 2007. Revised by Linda Nelson and Sue Herms, 2016, 2020.


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Waldenström Macroglobulinemia Glossary and Abbreviations

Editor’s Note: This guide was originally published by The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) here.

Written & compiled by Guy Sherwood, M.D., Bret Blakeslee, Sue Herms, & Peter DeNardis, 2015. Revised Linda Nelson, Glenn Cantor, & Sue Herms, 2020.


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Frequently Asked Questions About Waldenström Macroglobulinemia

Editor’s Note: This guide was originally published by The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) here.

By Peter DeNardis, Marcia Klepac, Elena Malunis, and Linda Nelson, 2017. Revised Linda Nelson, 2019.


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Follicular Lymphoma Care Partner Follow-Up Visit Planner

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Follicular Lymphoma Care Partner First Office Visit Planner

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Follicular Lymphoma Patient Follow-Up Visit Planner

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Follicular Lymphoma Treatment Decisions Resource Guide

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Tag Archive for: lymphoma

How to Play an Active Role in Your DLBCL Treatment and Care Decisions

What steps can you take to engage in your diffuse large B-cell lymphoma (DLBCL) treatment and care decisions? In this 30-minute webinar, expert Dr. Jason Westin will discuss current and emerging DLBCL therapies, review key treatment decision-making factors, and share advice for partnering with your healthcare team on your care.

Watch online on Wednesday, April 6 at 1 PM Eastern (10 AM PT, 12 PM CT) for a 30-minute virtual webinar and download the program resource guide before the webinar airs.

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Guest

Jason Westin, MD


Partners

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All webinars will be recorded and posted on our website following the presentation.

The program is brought to you by the Patient Empowerment Network. Funding is provided by an unrestricted educational grant from Pharmacyclics, an AbbVie Company, Bristol Myers Squibb, and through generous donations from people like you.

Waldenström Macroglobulinemia Treatment Decisions: What’s Right for You?

When faced with a Waldenström macroglobulinemia diagnosis, what determines the best treatment for YOU? In this 30-minute webinar, Dr. Jorge Castillo will review key factors that affect treatment decisions, emerging treatment research, and tips for partnering with your healthcare team.

Dr. Jorge Castillo is Clinical Director at the Bing Center for Waldenström Macroglobulinemia Dana-Farber Cancer Institute and Assistant Professor of Medicine at Harvard Medical School. Learn more about Dr. Castillo, here.

Watch online on Tuesday, March 22 at 1 PM Eastern (10 AM PT, 12 PM CTfor a 30-minute virtual webinar and download the guide here before the webinar airs.

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Guest

Jorge J. Castillo, MD

Partners

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All webinars will be recorded and posted on our website following the presentation.

This program is brought to you by the Patient Empowerment Network. Funding is provided by an unrestricted educational grant from Pharmacyclics, an AbbVie Company, and Janssen Biotech, Inc.

Follicular Lymphoma Treatment Decisions: What’s Right for You?

Watch full replay with transcript here.

 


When considering therapy for follicular lymphoma, what determines the best treatment for YOU? In this 30-minute webinar, Dr. Tycel Phillips will review key factors for making treatment decisions, emerging treatment research, and tips for partnering with your healthcare team.

Watch online on Tuesday, March 1st at 1 PM Eastern (10 AM PT, 12 PM CT) for a 30-minute virtual webinar and download the guide before the webinar airs.

Register Now

Guest

Tycel Jovelle Phillips, MD

Partner

Leukemia & Lymphoma Society


This program is brought to you by the Patient Empowerment Network. Funding is provided by an unrestricted educational grant from Pharmacyclics, an AbbVie Company, and Janssen Biotech, Inc.