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Press Release

Patient Empowerment Network to acquire

Empowered Patient Chat (#patientchat) series

June 1, 2017… Patient Empowerment Network (PEN) is pleased to announce the acquisition of the Empowered Patient Chat (#patientchat) series from Los Angeles digital health startup Intake.me. Empowered Patient Chats are hosted on Twitter by @patientchat every other Friday at 10:00 am Pacific / 1:00 pm Eastern. During the popular tweetchat, patients, care partners, advocates, and health care providers come together to learn from each other and discuss topics of interest to empowered patients.

A disease diagnosis can be overwhelming for patients and family members. Patients are suddenly buried in information and faced with difficult decisions. Living with a disease or other chronic condition is challenging for patients, their families, and friends. The aim of the #patientchat is to engage and empower patients by connecting them with each other, sharing resources and inspiration across conditions, and exploring important topics of interest to those in healthcare who want to elevate the patient voice in all healthcare matters. The community and series are guided by a belief in keeping the patient perspective at the forefront of all healthcare interactions, the strength of peer support, and the power of shared decision making in healthcare.

Intake.me launched the initiative in 2013 and most recently co-hosted an hour-long #patientchat that gained 5.4 million tweet impressions with 143 participants.  Past #patientchat guests have included Tal Givoly of Medivizor, Martine Ehrenclou who authored The Take-Charge Patient, Dr. Rob Lamberts, and patient advocates from different patient communities such as Alan Brewington @abrewi3010, Melissa Adams VanHouten @melissarvh, Liza Bernstein @itsthebunk and Richard Kreis @kreisr1. A variety of patient empowerment topics have been covered including: Coordinating Your Care, Building Your Healthcare Team, Accessing Your Medical Records, Caregiving, Participating in Research, Doctor-Patient Communication, Finding Support, Mental Health, and Integrative Medicine.

Intake.me’s Co-Founder and CEO, Darla Brown, shared, “Since its inception in 2013, the Empowered Patient Chats have grown from a few patient advocates tweeting and sharing ideas about the patient perspective to one of the most popular and influential tweetchats for patients.  Our mission has been to amplify the patient voice, connect advocates, caregivers, and healthcare providers, and host a safe space for meaningful dialogue to propel the patient experience forward and to let patients know they are not alone in their healthcare experience.”

“The Empowered Patient Chat community is a strong, supportive community and we are confident the Patient Empowerment Network will continue to host guests and topics of interest to all patients. Our work with the Patient Empowerment Network on ePatient101.com and other joint projects gives us great confidence in our shared mission of patient empowerment and education.”

“The participants make #patientchat great. It is an honor and a privilege to nurture the incredible space Intake.me created for thoughtful discussion, where diverse perspectives enhance and build the community,” said Christina Lizaso, Community Manager for Intake.me, who will remain involved during the transition. “I’m grateful and excited for the future of #patientchat and I look forward to participating.”

“We are thrilled to take up the reins of the Empowered Patient Chat. Intake.me has done a wonderful job creating and sustaining this initiative, and we look forward to continuing this important work. PEN aims to educate and empower patients so they can make the best and most informed decisions about their health. We can’t think of a better way to exemplify this than by carrying #patientchat forward,” said Joan Justice, Executive Director of Patient Empowerment Network.

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About Patient Empowerment Network (PEN)
PEN’s mission is to fortify cancer patients and care partners globally with knowledge and tools, boosting their confidence and putting them in control of their healthcare journey and assisting them to get the state-of-the-art, personalized care they deserve. For more information, please visit our website http://www.powerfulpatients.org/pen/

About Intake.me
Founded in 2013, Intake.me is an innovative digital health startup located in Los Angeles focused on amplifying the patient voice in their healthcare encounters. Founded by Emily Lu, MD, and Darla Brown, in addition to the Empowered Patient Chat series and the Intake.me digital health application, the company has focused on creating educational content for patients and caregivers through its online health academy ePatient101.com. Recent courses created by Intake.me on the platform have included Empowered Patient 101, Caregiver 101, and Chronic Lymphocytic Leukemia 101.

For Media Inquiries please contact:
Patient Empowerment Network
Kara Rayburn
Director of Digital Communications
kara@powerfulpatients.org

 

digital sherpa™ Press Release

Digital Sherpa™ Press Release

Media Advisory

Two upcoming digital sherpa™ Workshops offer unique support to

local cancer patients

Fort Myers, FL – March 9, 2017… In partnership with Patient Empowerment Network (PEN) and Florida Gulf Coast University (FGCU), Florida Cancer Specialists & Research Institute (FCS) is pleased to announce two upcoming digital sherpa™ Workshops on Thursday, March 16, 2017 and Thursday, April 27, 2017 at its Gladiolus Cancer Center (8260 Gladiolus Drive, Fort Myers, FL). The workshops are open to FCS patients, caregivers and friends.

Hosted by PEN, the digital sherpa™ Program aims to help cancer patients and their families become more tech-savvy. The program’s workshops educate patients and caregivers in basic internet and social media skills to help them in their search for information about their illness and support for them and their families.

Cancer patients, known as “climbers” in the program, are paired with FGCU students, known as “sherpas”, who have been specially trained by PEN to offer skills such as:

  • Internet use (such as opening an email account, navigating Google, and creating and remembering passwords)
  • Social media skills (including Facebook, Twitter and Instagram)
  • Creating virtual connections with other cancer patients via on-line patient support communities
  • How to use apps such as Uber and other ride-share services to get to appointments

Research suggests that many older cancer patients lack basic internet and social media skills which creates an obstacle for them when they try to go on-line to access information about their illness, or support from other patients and patient advocacy groups.[i] Often they become overwhelmed with the abundance of information and do not know how or where to find the help they need.

“By producing this program, we want to show what can be done to help cancer patients and their families become more tech-savvy, more educated, more self-confident and more in control of their cancer journey,” said Joan Justice, PEN’s Executive Director.  “By pairing digital natives (FGCU students) with the older generation, we hope to create an empathetic and powerful relationship that is an asset to any community.”

“We are pleased to partner with PEN and FGCU to offer this innovative program to our patients,” said FCS CEO Bradley Prechtl. “Ensuring that our patients and their families know how to access helpful information online is a big plus.”

Dr. William Harwin, Founder and President of Florida Cancer Specialists, added, “Our collaboration with PEN and FGCU to provide this unique program reflects our mission of patient-centered care. The more education we can provide to patients, their families and caregivers, the better equipped they are to be active participants in their own healthcare.”

“The digital sherpa™ Program is beneficial to both the cancer patients and the Florida Gulf Coast University students involved.  The patients gain technological knowledge that connects them with up-to-date information pertaining to early detection or successful treatments; the FGCU students acquire valuable and transferrable skills such as the ability to communicate effectively, problem solve, and build relationships – which was the best part of all!” said Jessica Rhea, Director of Community Engagement at Florida Gulf Coast University.

“I enjoyed the casual, fun atmosphere and being able to ask the students about the technology questions I have rather than having to ask my children for help,” said one Digital “Climber” following a recent workshop.

The Climber’s Digital “sherpa” added, “The barrier of age was broken between us. I loved the connection and bond we made!”

Workshops will be held on March 16 and April 27 from 2:30-4:30PM at Florida Cancer Specialists and Research Institute, 8260 Gladiolus Drive, Fort Myers, FL 33908.

 

About Patient Empowerment Network

Our mission is to fortify cancer patients and caregivers globally with knowledge and tools, boosting their confidence and putting them in control of their healthcare journey and assisting them to get the state-of-the-art, personalized care they deserve. For more information, please visit our website http://www.powerfulpatients.org/pen/

Watch our video to learn more about the digital sherpa™ Program https://vimeo.com/241755461

About Florida Cancer Specialists & Research Institute:

Founded in 1984, Florida Cancer Specialists & Research Institute (FCS) is the largest independent medical oncology/hematology practice in the United States. With over 200 physicians, 160 nurse practitioners and physician assistants and nearly 100 locations in our network, we are committed to providing world-class cancer care in community-based settings close to home.

Recognized by the American Society of Clinical Oncology (ASCO) with a national Clinical Trials Participation Award, FCS offers patients access to more clinical trials than any private oncology practice in Florida. 84% of new cancer drugs approved in 2016 for use in the U.S. were studied in clinical trials conducted with FCS participation*. Our physicians are consistently ranked nationally as Top Doctors by U.S. News & World Report Trained in such prestigious medical schools and research institutes as Duke, Stanford, Harvard, Emory, M.D. Anderson, and Memorial Sloan-Kettering, the physicians of Florida Cancer Specialists provide leadership and consultation in the state’s leading hospitals.

FCS serves patients on the Gulf Coast from Naples to the greater Tampa Bay area, north as far as Tallahassee, in Orlando and surrounding Central Florida communities, and on the East Coast in Daytona/Palm Coast, Vero Beach/Sebastian and in Palm Beach County.

Florida Cancer Specialists has built a national reputation for excellence that is reflected in exceptional and compassionate patient care, driven by innovative clinical research and cutting-edge technologies that help advance targeted treatments and genetically-based immunotherapies, and embodied by our outstanding team of highly-trained and dedicated physicians, clinicians and staff.

 *Prior to approval

Established to fill a regional need for higher education opportunities in Southwest Florida, FGCU has flourished since opening its first classrooms in 1997, and now attracts students from all over the United States and abroad to Fort Myers. The university has achieved national prominence in academics, environmental sustainability and service-learning as well as in athletics, where FGCU earned the nickname “Dunk City” during its historic run in the 2013 NCAA Men’s Basketball Championship Tournament. FGCU’s unique natural setting between the Florida Everglades and the Gulf of Mexico creates a living laboratory and a lively campus interwoven with native flora and fauna. It also provides an engaging home to a diverse community of more than 15,000 undergraduate and graduate students who advance their learning in state-of-the-art classrooms and labs; they collaborate with faculty to produce new knowledge that benefits the environment, education and community life.

For Media Inquiries please contact: 

Patient Empowerment Network

Andrea Conners, Programs Director

andrea@powerfulpatients.org

239-728-1202

Florida Cancer Specialists & Research Institute

Shelly Glenn, Chief Marketing & Sales Officer

sglenn@flcancer.com

770-365-6168

Chappell Roberts

Chris Wilkerson

cwilkerson@chappellroberts.com

813-857-7051

Ganick Communications, Inc.

Elaine Ganick

elaine@ganick.com

615-377-7877

Reference

[i] Smith, Aaron. (2014) Older Adults and Technology Use. Pew Research Center