Tag Archive for: siblings

Do AML Patients Receive Allo or Auto Stem Cell Transplant?

Do AML Patients Receive Allo or Auto Stem Cell Transplant? from Patient Empowerment Network on Vimeo.

What type of stem cell transplant do AML patients receive? Expert Dr. Sara Taveras Alam from UTHealth Houston explains stem cell transplant for AML care and advice to help patients locate a bone marrow donor match.

[ACT]IVATION Tip

“…encourage family members and friends to enlist on the national and international available donor registries. I believe that when a patient gets diagnosed with AML, everyone in their immediate circle wants to help, and I tend to see family members and friends offer their bone marrow for transplant purposes. The likelihood of a friend or a distant relative being a match is very low. We know that siblings may have a high chance of being a match, parents or kids may be a half-match by definition, so there’s a higher chance of some unrelated person on the registry being a match to the patient than a distant relative or friend.”

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Transcript: 

Lisa Hatfield:

When you mention a stem cell transplant, are those allogeneic stem cell transplants where they receive a donor’s stem cells, or are they the autologous where you take some of their stem cells at a certain point and then give them back to the patient?

Dr. Sara Taveras Alam:

So for patients with acute leukemia who require a stem cell transplant, it is an allogeneic stem cell transplant, so it does have to be a transplant from a matched donor, and the first pool of possible donors tend to be the patient’s siblings. If they have brothers or sisters from the same mom and dad, those are the possible first-line donors and are tested to see if they’re a match to the patient, and second to that, then the transplant institutions look into a donor registry.

So my activation tip for that question is to encourage family members and friends to enlist on the national and international available donor registries. I believe that when a patient gets diagnosed with AML, everyone in their immediate circle wants to help, and I tend to see family members and friends offer their bone marrow for transplant purposes. The likelihood of a friend or a distant relative being a match is very low.

We know that siblings may have a high chance of being a match, parents or kids may be a half-match by definition, so there’s a higher chance of some unrelated person on the registry being a match to the patient than a distant relative or friend. However, we could always pay it forward, and if we encourage our friends and family to enlist on these registries, it is very beneficial for our population.

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Should Families of Renal Medullary Carcinoma Patients Undergo Genetic Testing?

Should Families of Renal Medullary Carcinoma Patients Undergo Genetic Testing? from Patient Empowerment Network on Vimeo.

Does renal medullary carcinoma (RMC) warrant genetic testing for any relatives of patients? Expert Dr. Nizar Tannir explains the frequency of RMC in siblings and shares advice for blood relatives of RMC patients. 

Dr. Nizar Tannir is a Professor in the Department of Genitourinary Medical Oncology, Division of Cancer Medicine at The University of Texas MD Anderson Cancer Center.

[ACT]IVATION TIP

“…please do not panic. Hopefully, you will live a normal life, and you will not have RMC, but you should be diligent.”

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Transcript:

Cora:

Dr. Tannir, newly diagnosed RMC patients may be worried about their family members getting RMC as well. Is this something that patients and their families need to be worried about?

Dr. Tannir:

I don’t think so, Cora. I tell you I get this question asked by patients and their families, because you know that again we said that the cardinal finding in RMC is the individual has sickle cell trait and they got the sickle cell trait from one of the parents, or both parents have sickle cell trait or one of them do. So, and there may be other siblings to that individual to that subject patient with RMC who has sickle cell trait. I don’t think having a sibling or a child with RMC if the other family members, first-degree, blood relatives should be equated with RMC. So my activation tip here is do not panic, you know just because your brother or sister has RMC and they have sickle cell trait and you may have sickle cell trait, that you are not necessarily going to get it.

In fact, I’ll be honest with you, I have not seen two family members with RMC, I have not seen it. I mean not that it will never happen or had not happened, could have happened, I’m sure, but it is so rare that I think one should not equate if my brother, my sister has and I have sickle cell trait, I’m going to get it too. There is a lot we do not know about why that sibling with sickle cell trait got it. And I who has sickle cell trait didn’t get it. You know that’s what we’re trying to understand and the knowledge that we need to acquire to really get to the bottom of it. But my activation tip for this is, please do not panic. Hopefully, you will live a normal life, and you will not have RMC, but you should be diligent. 


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