How can myeloproliferative neoplasm (MPN) providers and advocates help patients overcome care barriers? Expert Natasha Johnson from Moffitt Cancer Center shares financial resources and additional ways MPN expert care can be accessed.
“…let the care team know there are financial resources available, whether that’s through foundations or the manufacturer itself, the care team, including the nurses and the pharmacists, can help direct and guide to get patients the medications that they need to treat their disease.”
There are several barriers to accessing care for patients with MPNs. Specifically, the first one I would say is accessing an MPN expert. You know when people live out in the communities or there’s difficulty with transportation, or they don’t have insurance they may be seen by public healthcare or locally or not at all. And there are really minimal reasons that a patient should not be able to see an MPN expert. Nowadays that we have Zoom visits, consults can be done through Zoom, even follow-up appointments can be done through Zoom. Labs can be taken locally. We can review labs if they’ve been done by the health department or primary care physician.
But I strongly, strongly, strongly encourage all patients who are suspected to have an MPN or newly diagnosed with an MPN. Try to get in with an MPN expert. Secondly, a great barrier to MPN care is the cost of medication. We know medications are very, very expensive, and even patients that have great insurances still cannot afford these medications.
So my activation tip for that would be to let the care team know there are financial resources available, whether that’s through foundations or the manufacturer itself, the care team, including the nurses and the pharmacists, can help direct and guide to get patients the medications that they need to treat their disease.
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