Bridging the Gap | Enhancing Access to Specialized Myelofibrosis Care for Rural Patients

https://vimeo.com/1002791846 How can specialized myelofibrosis care be enhanced for rural patients? Expert Dr. Abdulraheem Yacoub from the University of Kansas Medical Center discusses solutions to bridge gaps in myelofibrosis care and patient…
Engaging in Myelofibrosis Shared Decision-Making | How Patients Can Collaborate With Healthcare Providers in Treatment

https://vimeo.com/1001813738 How can myelofibrosis patients engage in shared decision-making? Expert Dr. Michael Grunwald from Levine Cancer Institute discusses ways for patients to collaborate with healthcare providers to determine the optimal treatment approach…
Managing Myelofibrosis for Patients Living Far From Specialists

https://vimeo.com/1001813824 Myelofibrosis expert Dr. Michael Grunwald from Levine Cancer Institute discusses strategies for patients living far away from specialists, how often blood checks should be performed, and proactive patient advice. [ACT]IVATION TIP…
Harnessing Community Resources to Support Rural Myelofibrosis Patients

https://vimeo.com/1001813005 How can community resources be utilized to support rural myelofibrosis patients? Expert Dr. Michael Grunwald from Levine Cancer Institute shares his perspective and how conversations with providers can be enriched. [ACT]IVATION…
Leveraging Telemedicine to Manage Myelofibrosis in Rural Areas | Overcoming Distance and Accessibility Challenges

https://vimeo.com/1001813133 How can telemedicine be leveraged to aid myelofibrosis patients in rural areas? Expert Dr. Michael Grunwald from Levine Cancer Institute discusses methods used to help manage care of rural myelofibrosis patients,…
Helping Rural Doctors Recognize Myelofibrosis | How Patients and Providers Can Work Together

https://vimeo.com/1001812884 How can myelofibrosis patients and providers collaborate in helping rural doctors? Expert Dr. Michael Grunwald from Levine Cancer Institute discusses common myelofibrosis symptoms and proactive patient advice for educating themselves and…
Barriers to Accessing Specialized Myelofibrosis Care in Rural Areas | Challenges and Solutions

https://vimeo.com/1001812407 What are common myelofibrosis care barriers in rural areas? Expert Dr. Michael Grunwald from Levine Cancer Institute discusses barriers that myelofibrosis patients in rural areas encounter and solutions for overcoming barriers…
Novel Therapies and Clinical Trials for Myelofibrosis | Updates and Innovations

https://vimeo.com/1001812578 What’s the latest in higher risk myelofibrosis novel therapies and clinical trials? Expert Dr. Michael Grunwald from Levine Cancer Institute discusses JAK inhibitors and other research updates along with proactive patient…
How Does Risk Stratification Shape Myelofibrosis Treatment?

https://vimeo.com/1000239081 What is involved in determining low risk versus high risk myelofibrosis? Expert Dr. Michael Grunwald from Levine Cancer Institute discusses IPSS, DIPSS, MYSEC-PM, and MIPSS70 scoring systems, key patient factors they…
[ACT]IVATED Myelofibrosis Resource Guide en español

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[ACT]IVATED Myelofibrosis Resource Guide

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Becoming an Empowered and [ACT]IVATED MPN Patient

Patient Empowerment Network (PEN) is committed to efforts to educate and empower patients and care partners in the myeloproliferative neoplasm (MPN) community. MPN treatment options are ever-increasing with research advancements…