Patient Considerations That Impact MPN Treatment Decisions
https://vimeo.com/636613669 How can personal choices play a role in your MPN care? Dr. John Mascarenhas reviews factors that should be considered, including lifestyle and overall health, when choosing therapy for…
What Questions Should Patients Ask About MPN Test Results?
https://vimeo.com/636614596 What should you know about your MPN test results? Dr. Mascarenhas discusses how test results are used, including the importance of genetic mutations and risk stratification when analyzing results….
Which Tests Do You Need Following an MPN Diagnosis?
https://vimeo.com/636616350 After a diagnosis of essential thrombocythemia (ET), polycythemia vera (PV), or myelofibrosis (MF), what testing should take place? Dr. John Mascarenhas shares an overview of essential and in-depth testing…
What Is Personalized Medicine for ET, PV & MF?
https://vimeo.com/636618647 MPN expert Dr. John Mascarenhas defines personalized medicine and how the approach is used in patients with essential thrombocythemia (ET), polycythemia vera, (PV) and myelofibrosis (MF). Dr. John Mascarenhas…
Health Educator Turned MPN Patient Speaks to Importance of Specialized Care
https://vimeo.com/619358448 Myeloproliferative neoplasm (MPN) patient and health educator Julia Olff helped others navigate the healthcare system before her diagnosis with myelofibrosis and later with ET. Watch as she shares her…
Making Lifestyle Changes When Living With an MPN
https://vimeo.com/619357029 As a myelofibrosis (MF) and essential thrombocythemia (ET) patient, Julia Olff has experienced lifestyle changes in her MPN journey. Watch as she shares changes she made with her work…
MPN Patient Shares Survivorship Tips, Recognizing Social Media Toxicity
https://vimeo.com/619357909 Myeloproliferative neoplasm (MPN) patient Julia Olff has experienced the positive and negative aspects of online information and social media in her search for support. Watch as she shares her…
Balancing MPN Treatment Adherence and Mental Health
https://vimeo.com/619356458 Balancing myeloproliferative neoplasm (MPN) treatment adherence along with symptoms can sometimes be a challenge. Watch was myelofibrosis patient Julia Olff explains how symptoms and executive functioning can impact continuation…
MPN Patient Shares Importance of Understanding Benefits of Professional Therapy
https://vimeo.com/619355903 Myelofibrosis patient Julia Olff shares her experience with seeing a professional therapist via telemedicine as part of her MPN care. See More From the MPN TelemEDucation Related Resources Understanding…
Which MPN Treatment Is Right for You? What You Need to Know Resource Guide
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MPN Patient Q&A: How Did You Avoid Obstacles to Receiving the Best Myeloproliferative Neoplasm Care
https://vimeo.com/618384176 In 1991, there were few myeloproliferative neoplasm (MPN) experts. Many MF, ET, and PV patients were misdiagnosed and often received dismissive care. MPN patient Nona Baker shares how her…
MPN Patient Q&A: How Did You Cope With a Second MPN Diagnosis?
https://vimeo.com/618381381 For myeloproliferative neoplasm (MPN) patients diagnosed with a second MPN, how can they cope or react to the diagnosis? Watch as MPN patient Nona shares her experience with her…