MPN Patient Q&A: What Lifestyle Changes Did You Make?
MPN Patient Q&A: How Did Your MPN Diagnosis Impact Your Life?
https://vimeo.com/618381471 For a myeloproliferative neoplasm (MPN) patient, how can diagnosis impact your life? Watch as MPN patient Nona shares her experience as a working mom, and Dr. Nicole Rochester shares her perspective…
MPN Patient Q&A: What Questions Should I Ask If I Suspect I Have an MPN?
https://vimeo.com/618382404 For patients who suspect they have a myeloproliferative neoplasm (MPN), what questions should they ask? Watch as MPN patient Nona shares her advice for approaching questions with your doctor,…
MPN Patient Q&A: How Do I Best Communicate My Concerns Without Feeling Dismissed?
https://vimeo.com/618382196 What can myeloproliferative neoplasm (MPN) patients do to improve communication when the feel like their concerns aren’t being heard? Watch as MPN patient Nona shares her advice for preparing…
MPN Patient Q&A: How Did You Cope With the Initial Shock of an MPN Diagnosis?
https://vimeo.com/618381250 A myeloproliferative neoplasm (MPN) diagnosis can come as a shock to many. Watch as MPN patient Nona shares her feelings and reaction following her diagnosis, and health advocate Dr. Nicole…
Which MPN Treatment Is Right for You? What You Need to Know
https://vimeo.com/610959966 What should you know before deciding which treatment is best for YOUR MPN? MPN expert Dr. John Mascarenhas reviews key factors–including essential testing–that guide treatment decisions for essential thrombocythemia…
MPN Patient Shares Advice for Making the Most of Telemedicine Visit
https://vimeo.com/601500978 Myeloproliferative neoplasm patient Debbie has had the opportunity to utilize telemedicine in her care. Watch as she shares the pros and cons of telehealth methods in her blood cancer…
MPN Patient and Care Partner Tips for Utilizing Telemedicine
https://vimeo.com/595488210 Myelofibrosis patient Summer Golden and care partner Jeff Bushnell have learned the ins and outs of telemedicine. Watch as they share some advantages of virtual visits, instances when in-person…
MPN Telemedicine Tips
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My Journey of Living With a Myeloproliferative Neoplasm for 30 Years
https://vimeo.com/594829196 Myeloproliferative neoplasm patient Nona was shocked after diagnosis with two MPNs – essential thrombocythemia (ET) and polycythemia vera (PV) – at the age of 41. Watch as she shares…
My MPN Journey, Getting the Best Care After ET and MF Diagnoses
https://vimeo.com/588507314 Myelofibrosis and essential thrombocythemia (ET) patient Julia had experience as a health educator and hospital administrator before receiving her MPN diagnosis. Watch as she shares how she later connected…
What MPN Side Effects Can Be Monitored With Telemedicine?
https://vimeo.com/581391804 For myeloproliferative neoplasm (MPN) patients, what are some side effects that can be monitored via telemedicine? Expert Dr. Jamile Shammo from Rush University Medical Center shares the types of symptom monitoring…