¿De qué manera puede mejorar su salud el empoderamiento y la toma de decisiones compartida? Guía de recursos

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How Can Empowerment and Shared Decision Making Improve Your Health? Resource Guide

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Olutasidenib for Relapsed or Refractory Acute Myeloid Leukemia with IDH1 Mutation

Introduction Once again a new drug that was recently FDA approved for some Acute Myeloid Leukemia (AML) patients. Olutasidenib (brand name: Rezlidhia) was approved in December 2022 for AML patients…
IMF Patient and Family Seminar Takeaways

August 2023 Los Angeles, California Other than bouncing and swaying through Tropical Storm Hillary upon takeoff, the IMF’s Patient and Family Seminar was not only smooth, but wildly successful at…
Changes to Medicare Part D in 2024 and 2025

The Inflation Reduction Act of 2022 put into play some major changes to Medicare Part D enrollees. The purpose of the changes was to reduce out-of-pocket costs for prescription drugs….
Omidubicel (Expanded Cord Blood) for use in Allogeneic Transplant

Introduction Umbilical Cord Blood (UCB) has been used as a source of stem cells in allogeneic (donor) transplants since the late 1980s. When doing a transplant using bone marrow (BM)…
Full Circle Discussion with Jessica Catlin Replay

Jessica Full Circle Discussion Replay from Patient Empowerment Network on Vimeo. Jessica Catlin, our Colon Cancer Empowerment Lead takes a deep dive into her memoir, Full Circle: How Politics, Depression,…
Rezafungin for the Treatment of Candidemia and Invasive Candidiasis in Adults

Introduction I was the patient representative on the FDA Advisory Antimicrobial Drugs Advisory Committee (AMDAC) that met on January 24, 2023, to consider whether to recommend the approval of a…
Toxic Positivity: A Detriment to Disease

I remember when I was first diagnosed with thyroid cancer back in 2017. I had been working for a primary care office at the time, so I knew I was…
MPN Patient and Care Partner Share Tips for Communicating With Your Care Team

MPN Patient and Care Partner Share Tips for Communicating With Your Care Team from Patient Empowerment Network on Vimeo. MPN Care Partner, Jeff ,and Summer, who is living with myelofibrosis,…
Myeloma and NHL Patients Discuss Their Go-to Sources of Laughter

Myeloma and NHL Patients Discuss Their Go-to Sources of Laughter from Patient Empowerment Network on Vimeo. Lisa, Thomas, Donna and Diana all share what keeps them laughing. From TED Talks…
How Have You Maintained Positivity in Uncomfortable Situations?

How Have You Maintained Positivity in Uncomfortable Situations? from Patient Empowerment Network on Vimeo. Despite feeling down or just not feeling well there are time when you have to show…