Understanding treatment options, goals, and what to expect is essential for achieving the best possible outcome in MPNs.
- Medication type
- How treatment is administered or delivered
- Pre-existing health issues or comorbidities
- Financial impact
- JAK Inhibitors
- Stem cell transplant for high-risk patients
- Treatments to manage anemia
- Phlebotomy
- Aspirin
- Hydroxyurea (Hydrea)
- Interferon
- JAK Inhibitors
- BESREMi (ropeginterferon alfa-2b)
- No treatment; monitoring of thrombotic risk
- Aspirin
- Interferon
- Hydroxyurea (Hydrea)
- Anagrelide (Agrylin)
Tools to help you feel activated and connect with resources to overcome barriers to accessing care.
Topics:
- Navigating MPN Care
- Advances in MPN Therapies
- [ACT]IVATED MPN Patient Vignettes
- [ACT]IVATED MPN Resources
Empowers MPN patients and families by addressing factors like age, ethnicity, and insurance that impact outcomes. Gain confidence in your healthcare decisions, no matter where you live.
Topics:
- MPN Patient Self-Advocacy Profiles
- Access and Navigating MPN Care
- MPN Treatment Strategies
Tackles common misconceptions and provides clear, actionable information about clinical trials, sharing tools and resources for patients with an MPN.
Topics:
- Understanding MPN Clinical Trial Terminology
- The Benefits of MPN Clinical Trials
- MPN Clinical Trial Safety
- MPN Clinical Trials 201 Resources
Provides the knowledge to actively participate in care decisions and understand support resources available.
Topics:
- Tips and Advice for Myelofibrosis Patient Self-Advocacy
- Understanding Myelofibrosis Treatments and Treatment Decisions
- ELEVATE Myelofibrosis Resources
Provides tools and actions for shared decision making and tips for navigating MPN treatment decisions.
Topics:
- Understanding Myeloproliferative Neoplasms
- Myeloproliferative Neoplasms Treatment Options
Shares the importance of latest treatment options, clinical trials and patient participation in clinical trials.
Topics:
- Understanding New and Developing Myelofibrosis Treatment
- Tools for Myelofibrosis Patient Self-Advocacy
Will help you understand the importance of essential biomarker testing before key decisions are made in your care—including following a reoccurrence.
Topics:
- Understanding MPNs and Testing
- MPN Treatment Decisions
- INSIST! MPN Resources
Brought to you by and for patient advocates to assist you on your path to empowerment and better care.
Topics:
- Understanding MPN Lab Tests and Monitoring
- MPN Treatment Decisions
- MPN Clinical Trials and Research
- Lifestyle and Mindfulness Tools for People with an MPN
Provides actionable advice and downloadable materials to help you communicate clearly and effectively with your MPN healthcare team.
Topics:
- Understanding MPN and MPN Subtypes
- MPN Treatment Types and Treatment Decisions
- Planning for Your MPN Doctor’s Office Visit
- Pro-Active MPN Patient Toolkit Resources
Improves MPN patients’ and caregivers’ familiarity with remote access to healthcare, and thus increase quality of care regardless of geographical location.
Topics:
- The Role of Telemedicine in MPN Care
- Telemedicine Best Practices for MPN Patients
- MPN TelemEDucation Resources
Provides tools and resources for living with and beyond MPN.
Topics:
- Collaborating on Your MPN Care
- Living and Managing Life with an MPN
- Understanding MPN Treatment Options
- THRIVE MPN Resources
