Waldenström Macroglobulinemia Glossary and Abbreviations

Editor’s Note: This guide was originally published by The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) here. Written & compiled by Guy Sherwood, M.D., Bret Blakeslee, Sue Herms, & Peter DeNardis, 2015….
Frequently Asked Questions About Waldenström Macroglobulinemia

Editor’s Note: This guide was originally published by The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) here. By Peter DeNardis, Marcia Klepac, Elena Malunis, and Linda Nelson, 2017. Revised Linda Nelson, 2019.
Thriving with an MPN: What You Should Know About Care and Treatment Resource Guide

Download Guide Download Guide See More from Thrive MPNs
Follicular Lymphoma Care Partner Follow-Up Visit Planner

Download Guide Download Guide See More from The Pro-Active Follicular Lymphoma Patient Toolkit
Follicular Lymphoma Care Partner First Office Visit Planner

Download Guide Download Guide See More from The Pro-Active Follicular Lymphoma Patient Toolkit
Follicular Lymphoma Patient Follow-Up Visit Planner

Download Guide Download Guide See More from The Pro-Active Follicular Lymphoma Patient Toolkit
Follicular Lymphoma Patient First Office Visit Planner

Download Guide Download Guide See More from The Pro-Active Follicular Lymphoma Patient Toolkit
Follicular Lymphoma Treatment Decisions Resource Guide

Download Guide Download Guide See More from The Pro-Active Follicular Lymphoma Patient Toolkit
Top Ten Writing Tips and Techniques For Patient Advocates

Patient advocacy involves sharing your unique knowledge and experience with a disease or condition with the ultimate aim of raising awareness and influencing people to effect the desired change. As…
Celebrating PEN Board Member, Sajjad Iqbal’s 20th Year of Cancer Survivorship

On February 21st 2022, PEN’s Board Member, Sajjad Iqbal, entered his third decade of survivorship from Salivary Duct Carcinoma, an extremely rare and very malignant type of parotid cancer. At…
CSC Arizona Embraces digital sherpa® Train-the-Trainer Program

When the staff at Cancer Support Community (CSC) Arizona heard about the Patient Empowerment Network (PEN) digital sherpa® Train-the-Trainer program, they knew it was just the kind of programming they were looking for….
Medicare Doesn’t Cover Free At-Home Covid Tests, But You Still Have Other Options to Attain Free Ones

The Biden Administration’s new mandate that insurers cover the cost of at-home test did not include beneficiaries of Medicare. This is very unfortunate because Medicare recipients are the largest at-risk…