Loving My Life | CLL Poem
Chronic Lymphocytic Leukemia is what I HAD. I was given IV Rituxan, it wasn’t too bad. I sat in a Chemo chair, and had several types of IV. I…
The Caregiver Impact: A Vital Part of Healthcare
The worst fear comes to life when you’re diagnosed with cancer. Emotions bubble to the surface, including fear, anger, sadness, and frustration. Your mind goes in a million different directions…
Checking the Pulse on Multiple Myeloma Health Disparities
Both Black Americans and Latina and Latino Americans show a myeloma precursor called MGUS, or monoclonal gammopathy of undetermined significance, more frequently than others—.88 percent in Black Americans, .44 percent…
Empowerment Lead Program Role Description
Who are Empowerment Leads? Patient Empowerment Network’s (PEN) mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence, put them in control…
CLL INSIST! on Better Care Resource Guide
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5 Ways a Patient Portal Can Improve Your Health Care Experience
A patient portal is an online application which gives patients access to personal health information stored in a health care organization’s electronic health records (EHR). If your doctor’s office offers a patient…
Empowering Ourselves Forward: Applying Skills to Our Cancer Journey
During the pandemic, all of us have had to do some adjusting, some more than others. As cancer patients, we recognize the “new normal” everyone else is experiencing. While…
The Power of Journaling During Cancer Treatment
There are two ways to fight cancer, both of which are equally as important. The first is physical and the second mental. Journaling might not be able to help with…
Breast Cancer Awareness Month and Its Many Shades of Pink (and Blue)
We are more than half-way through Breast Cancer Awareness Month (BCAM) – impossible to miss given the pink ribbon avalanche that arrives each Fall. While there is no denying that…
The Power of the PEN Empowerment Lead Program
I never dreamed of being a patient advocate, but then again, I never dreamed of receiving a cancer diagnosis, either. When I was diagnosed with thyroid cancer in January 2017,…
Patient Empowerment Revisited: Part 2
Welcome back to the second part of this discussion on patient empowerment. In Part 1 we looked at self-advocacy and the importance of having access to information which allows us…
Understanding Metastatic Breast Cancer Resource Guide
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