“Wait, There’s a Good Cancer?”
When the Luck of the Draw Leads to the Short End of the Stick Cancer is one of the most feared diseases. Everyone is affected by it in some way,…
Chronic Myeloid Leukemia (CML) Patient Profile
You would never know that the subject of this Patient Profile is living with cancer, and that’s exactly the way he likes it. Very few people know this patient’s story,…
The Warrior in Me Saved My Life
After experiencing increasing fatigue over the course of several years, I started to miss gatherings with friends and family and got to the point of taking one day off a…
INSIST! on Better Myeloma Care Resource Guide
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Loving My Life | CLL Poem
Chronic Lymphocytic Leukemia is what I HAD. I was given IV Rituxan, it wasn’t too bad. I sat in a Chemo chair, and had several types of IV. I…
The Caregiver Impact: A Vital Part of Healthcare
The worst fear comes to life when you’re diagnosed with cancer. Emotions bubble to the surface, including fear, anger, sadness, and frustration. Your mind goes in a million different directions…
Checking the Pulse on Multiple Myeloma Health Disparities
Both Black Americans and Latina and Latino Americans show a myeloma precursor called MGUS, or monoclonal gammopathy of undetermined significance, more frequently than others—.88 percent in Black Americans, .44 percent…
Empowerment Lead Program Role Description
Who are Empowerment Leads? Patient Empowerment Network’s (PEN) mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence, put them in control…
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5 Ways a Patient Portal Can Improve Your Health Care Experience
A patient portal is an online application which gives patients access to personal health information stored in a health care organization’s electronic health records (EHR). If your doctor’s office offers a patient…
Empowering Ourselves Forward: Applying Skills to Our Cancer Journey
During the pandemic, all of us have had to do some adjusting, some more than others. As cancer patients, we recognize the “new normal” everyone else is experiencing. While…
The Power of Journaling During Cancer Treatment
There are two ways to fight cancer, both of which are equally as important. The first is physical and the second mental. Journaling might not be able to help with…