Myeloproliferative Neoplasms (MPNs)
Myeloproliferative Neoplasms (MPNs) are a closely related group of progressive blood cancers in which the bone marrow typically overproduces red blood cells, white blood cells, or platelets.
Learn More About MPNs
Our goal is to provide clear and accessible information about MPNs so you can understand your diagnosis and make informed decisions about your care. Visit these links for general information about MPNs, and always consult your medical team for guidance on your specific situation.
What happens in your body when you have an MPN?
What are the treatments for MPNs?
What should I know about living with an MPN?
What resources are available to help me?
SaveMyeloproliferative Neoplasm Programs
Tools to help you feel activated and connect with resources to overcome barriers to accessing care.
Topics:
- Navigating MPN Care
- Advances in MPN Therapies
- [ACT]IVATED MPN Patient Vignettes
- [ACT]IVATED MPN Resources
Empowers MPN patients and families by addressing factors like age, ethnicity, and insurance that impact outcomes. Gain confidence in your healthcare decisions, no matter where you live.
Topics:
- MPN Patient Self-Advocacy Profiles
- Access and Navigating MPN Care
- MPN Treatment Strategies
Tackles common misconceptions and provides clear, actionable information about clinical trials, sharing tools and resources for patients with an MPN.
Topics:
- Understanding MPN Clinical Trial Terminology
- The Benefits of MPN Clinical Trials
- MPN Clinical Trial Safety
- MPN Clinical Trials 201 Resources
As artificial intelligence (AI) reshapes oncology, DECODE empowers cancer patients and families with clear, practical insights into AI and other emerging healthcare technologies, breaking down how these innovations are transforming cancer care and helping them navigate AI-driven advancements with confidence.
Components:
- Podcasts
- Downloadable Resource Guides
Aims to provide digital literacy skills training with a series of easy-to-follow video modules, coupled with resource guides to educate you on technology and online support tools.
Provides the knowledge to actively participate in care decisions and understand support resources available.
Topics:
- Tips and Advice for Myelofibrosis Patient Self-Advocacy
- Understanding Myelofibrosis Treatments and Treatment Decisions
- ELEVATE Myelofibrosis Resources
Provides tools and actions for shared decision making and tips for navigating MPN treatment decisions.
Topics:
- Understanding Myeloproliferative Neoplasms
- Myeloproliferative Neoplasms Treatment Options
Shares the importance of latest treatment options, clinical trials and patient participation in clinical trials.
Topics:
- Understanding New and Developing Myelofibrosis Treatment
- Tools for Myelofibrosis Patient Self-Advocacy
Helps women living with cancer understand the impact on their overall health, including fertility, hormones and sexual wellbeing while enabling informed conversations with their healthcare team about potential options and support.
Will help you understand the importance of essential biomarker testing before key decisions are made in your care—including following a recurrence.
Topics:
- Understanding MPNs and Testing
- MPN Treatment Decisions
- INSIST! MPN Resources
Information on completing cancer care with actionable steps to engage in key discussions and plan for life after treatment.
Topics:
- Understanding Survivorship
- Advice for Future and Follow-Up Care
Brought to you by and for patient advocates to assist you on your path to empowerment and better care.
Topics:
- Understanding MPN Lab Tests and Monitoring
- MPN Treatment Decisions
- MPN Clinical Trials and Research
- Lifestyle and Mindfulness Tools for People with an MPN
Provides actionable advice and downloadable materials to help you communicate clearly and effectively with your MPN healthcare team.
Topics:
- Understanding MPN and MPN Subtypes
- MPN Treatment Types and Treatment Decisions
- Planning for Your MPN Doctor’s Office Visit
- Pro-Active MPN Patient Toolkit Resources
Focuses on wellness during cancer treatment and post cancer treatment.
Topics:
- Lifestyle
- Diet and Healthy Eating
- Supportive Care
Improves MPN patients’ and caregivers’ familiarity with remote access to healthcare, and increases quality of care regardless of geographical location.
Topics:
- The Role of Telemedicine in MPN Care
- Telemedicine Best Practices for MPN Patients
- MPN TelemEDucation Resources
Provides tools and resources for living with and beyond MPN.
Topics:
- Collaborating on Your MPN Care
- Living and Managing Life with an MPN
- Understanding MPN Treatment Options
- THRIVE MPN Resources
External Resources
Cancer Information and Support
Online & Digital Tools
Healthcare Ratings & Rankings
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