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Chronic Lymphocytic Leukemia (CLL)

Chronic Lymphocytic Leukemia (CLL) is a slow-growing cancer characterized by an excess of lymphocytes (a type of white blood cell) in the bone marrow.

  • Chronic means the disease usually progresses more slowly than acute leukemias.
  • Lymphocytic refers to cells related to or composed of lymphocytes, a type of white blood cell.
  • Leukemia is cancer that starts in the blood or bone marrow.

Related Links

Chronic Lymphocytic Leukemia (CLL) Defined
Confusing CLL Terms Defined

Learn more about CLL

Our goal at PEN is to provide easy-to-understand information about your cancer journey so you feel comfortable with new terms and empowered to take part in decisions about your care. Visit these links for general information about CLL. Please talk to your medical team to make decisions that apply to your specific situation.

What happens in your body when you have CLL?

How is CLL diagnosed?

What are the treatments for CLL?

What should I know about living with CLL?

What resources are available to help me?

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Chronic Lymphocytic Leukemia Programs

PEN created these programs to help explain parts of the CLL journey.

Empowers CLL patients and families by addressing factors like age, ethnicity, and insurance that impact outcomes. Gain confidence in your healthcare decisions, no matter where you live.

Topics:

  • Finding the Right CLL Care and Support
  • Overcoming CLL Care Barriers
  • CLL Care Technology and Innovations  

Tackles common misconceptions and provides clear, actionable information about clinical trials, sharing tools and resources for patients with CLL.

Topics:

  • Understanding CLL Clinical Trial Terminology
  • Benefits of CLL Clinical Trails
  • Accessing CLL Clinical Trials
  • CLL Clinical Trial Safety
  • CLL Clinical Trials 201 Resources  

Provides CLL patients with key information to help them understand their role, empowering them to engage in their care and treatment decisions 

Topics:

  • Understanding CLL and Your Role in Your Care
  • Understanding CLL Treatment
  • Entendiendo CLL y tu rol en el cuidado de tu CLL
  • Entendiendo tratamiento de la CLL

 

As artificial intelligence (AI) reshapes oncology, DECODE empowers cancer patients and families with clear, practical insights into AI and other emerging healthcare technologies, breaking down how these innovations are transforming cancer care and helping them navigate AI-driven advancements with confidence.

Components:

  • Podcasts
  • Downloadable Resource Guides

Aims to provide digital literacy skills training with a series of easy-to-follow video modules, coupled with resource guides to educate you on technology and online support tools.

Provides tools and actions for shared decision making and tips for navigating CLL treatment decisions.

Topics:

  • CLL Treatment Options
  • Understanding CLL
  • Partnering in Your CLL Care  

Provides expert answers to common questions and misconceptions to help you separate fact from fiction when searching for accurate CLL information.

Topics:

  • CLL Causes and Symptoms
  • CLL Treatment and Side Effects  

Helps women living with cancer understand the impact on their overall health, including fertility, hormones and sexual wellbeing while enabling informed conversations with their healthcare team about potential options and support.​

Will help you understand the importance of essential biomarker testing before key decisions are made in your care—including following a reoccurrence.​

Topics:

  • Understanding CLL Testing
  • CLL Treatment Decisions  

Information on completing cancer care with actionable steps to engage in key discussions and plan for life after treatment.

Topics:

  • Understanding Survivorship
  • Advice for Future and Follow-Up Care

Provides key information for every stage of your Chronic Lymphocytic Leukemia (CLL) journey, to help you feel informed and confident about your care decisions. 

Topics:

  • CLL Patient Stories
  • CLL Clinical Trial Resources

Bridges the gap between patients who have participated in clinical trials and patients who have not yet participated for various reasons. 

Topics:

  • CLL Patient Stories
  • CLL Clinical Trial Resources

Provides actionable advice and downloadable materials to help you communicate clearly and effectively with your CLL healthcare team.

Topics:

  • CLL Basics
  • CLL Treatment Approaches
  • Planning for Your CLL Doctor’s Office Visit  

Focuses on wellness during cancer treatment and post cancer treatment.

Topics:

  • Lifestyle
  • Diet and Healthy Eating
  • Supportive Care

Bridges the expert and patient voice, enabling patients to feel comfortable asking precise questions of their healthcare team 

Topics:

  • CLL Basics, Diagnosis, and Monitoring
  • CLL Progression and Risk Factors
  • CLL Treatment Approaches
  • CLL Side Effects and Quality of Life
  • CLL Genetics, Prognostic Factors and Subtypes
  • Support for Living with CLL

Improves CLL patients’ and caregivers’ familiarity with remote access to healthcare, and thus increase quality of care regardless of geographical location.

Topics:

  • Understanding Telemedicine for CLL Care
  • The Impacts of Telemedicine in CLL Care  

Provides tools and resources for living with and beyond CLL.

Topics:

  • Collaborating on Your CLL Care
  • Living and Managing Life with CLL
  • Understanding CLL Treatment Options  

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Volleen White

CLL Empowerment Lead

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