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Multiple Myeloma

A cancer of the plasma cells—a type of white blood cell. In multiple myeloma, abnormal plasma cells build up in the bone marrow, crowding out healthy cells that produce red blood cells, platelets, and other white blood cells.

Learn More About Multiple Myeloma

Our goal is to provide clear and accessible information about multiple myeloma so you can understand your diagnosis and make informed decisions about your care. Visit these links for general information about multiple myeloma, and always consult your medical team for guidance on your specific situation.

What happens in your body when you have multiple myeloma?

How is multiple myeloma diagnosed?

What are the treatments for multiple myeloma?

What should I know about living with multiple myeloma?

What resources are available to help me?

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Multiple Myeloma Programs

PEN created these programs to help explain parts of the multiple myeloma journey.

Tools to help you feel activated and connect with resources to overcome barriers to accessing care.

Topics:

  • Tools for Veterans and First Responders with Multiple Myeloma 

Tools to help you feel activated and connect with resources to overcome barriers to accessing care.

Topics:

  • Understanding CAR T-Cell Therapy Eligibility and Process 
  • CAR T-Cell Therapy Treatment and Research 
  • [ACT]IVATED CAR T-Cell Therapy Resources 

Empowers myeloma patients and families by addressing factors like age, ethnicity, and insurance that impact outcomes. Gain confidence in your healthcare decisions, no matter where you live.

Topics:

  • Multiple Myeloma Patient Self-Advocacy Profiles 

Tackles common misconceptions and provides clear, actionable information about clinical trials, sharing tools and resources for patients with myeloma.

Topics:

  • Understanding Multiple Myeloma Clinical Trial Terminology 
  • What Your Need to Know About Multiple Myeloma Clinical Trials 
  • Multiple Myeloma Clinical Trials 201 Resources 

Provides myeloma patients with key information to help them understand their role, empowering them to engage in their care and treatment decisions 

Topics:

  • Collaborating on Your Multiple Myeloma Care 

As artificial intelligence (AI) reshapes oncology, DECODE empowers cancer patients and families with clear, practical insights into AI and other emerging healthcare technologies, breaking down how these innovations are transforming cancer care and helping them navigate AI-driven advancements with confidence.

Components:

  • Podcasts
  • Downloadable Resource Guides

Aims to provide digital literacy skills training with a series of easy-to-follow video modules, coupled with resource guides to educate you on technology and online support tools.

Health education series that provides tools for clear and effective communication between providers and patients, encourages self-advocacy and empowerment, and promotes equal-access.

Topics:

  • Multiple Myeloma Patient Self-Advocacy Profiles
  • Multiple Myeloma Community Care 

Provides the knowledge to actively participate in care decisions and understand support resources available.

Topics:

  • Tips and Advice for Multiple Myeloma Patient Self-Advocacy 
  • Understanding Multiple Myeloma Treatments and Treatment Decisions 
  • ELEVATE Multiple Myeloma Resources 

Provides important information about the CAR T-cell therapy process, emphasizing the important role of the care partner, and outlines key advice for communicating with your healthcare team.

Topics:

  • What You Should Know Before the CAR T-Cell Therapy Process
  • Understanding Symptoms and Side Effects
  • CAR T-Cell Therapy Clinical Trials 

Provides patients and care partners with tools for self-advocacy and empowerment.

Topics:

  • Tools for Multiple Myeloma Self-Advocacy 
  • Multiple Myeloma Treatment Options 
  • Engaging in Multiple Myeloma Treatment Decisions Resources  

Provides tools and actions for shared decision making and tips for navigating myeloma treatment decisions.

Topics:

  • Understanding Multiple Myeloma 
  • Multiple Myeloma Treatment 
  • ENGAGE Multiple Myeloma Resources 

Shares the importance of latest treatment options, clinical trials and patient participation in clinical trials.

Topics:

  • Understanding New and Developing Multiple Myeloma Treatment 
  • Multiple Myeloma Patient Self-Advocacy Tools 
  • EVOLVE Multiple Myeloma Resources 

Shares the importance of latest treatment options, clinical trials and patient participation in clinical trials.

Topics:

  • Understanding the CAR T-Cell Therapy Process 
  • Advances in CAR T-Cell Therapy 
  • EVOLVE CAR T-Cell Therapy Resources 

Provides expert answers to common questions and misconceptions to help you separate fact from fiction when searching for accurate myeloma information.

Topics:

  • Multiple Myeloma Treatment and Side Effects 
  • Multiple Myeloma Fact or Fiction? Resources 

Helps women living with cancer understand the impact on their overall health, including fertility, hormones and sexual wellbeing while enabling informed conversations with their healthcare team about potential options and support.​

Educates and empowers patients and care partners to learn more about novel myeloma care options​.

Topics:

  • Multiple Myeloma Therapy Options 
  • Innovative Multiple Myeloma Therapies Resources 

Will help you understand the importance of essential biomarker testing before key decisions are made in your care—including following a reoccurrence.​​

Topics:

  • Understanding Testing in Multiple Myeloma 
  • Multiple Myeloma Treatment Decisions 
  • INSIST! Multiple Myeloma Resources 

Information on completing cancer care with actionable steps to engage in key discussions and plan for life after treatment.

Topics:

  • Understanding Survivorship
  • Advice for Future and Follow-Up Care

Brought to you by and for patient advocates to assist you on your path to empowerment and better care.

Topics:

  • Multiple Myeloma Treatment and Clinical Trials 
  • Multiple Myeloma Testing 

Bridges expert and patient perspectives, empowering patients to ask informed questions of their healthcare team.

Topics:

  • Multiple Myeloma Patient Clinical Trial Profiles 
  • Multiple Myeloma Clinical Trial Resources 

Provides actionable advice and downloadable materials to help you communicate clearly and effectively with your myeloma healthcare team.

Topics:

  • Multiple Myeloma Basics: What You Need to Know 
  • Multiple Myeloma Treatment Approaches 
  • Planning Your Multiple Myeloma Doctor’s Office Visit 
  • Pro-Active Multiple Myeloma Patient Toolkit Resources 

Focuses on wellness during cancer treatment and post cancer treatment.

Topics:

  • Lifestyle
  • Diet and Healthy Eating
  • Supportive Care

Bridges the expert and patient voice, enabling patients to feel comfortable asking precise questions of their healthcare team 

Topics:

  • Navigating Multiple Myeloma Care 
  • Multiple Myeloma Treatment Advancements and Research  
  • Living Well with Multiple Myeloma 
  • START HERE Multiple Myeloma Resources 

Improves myeloma patients’ and caregivers’ familiarity with remote access to healthcare, and thus increase quality of care regardless of geographical location.

Topics:

  • Accessing and Preparing for a Multiple Myeloma Telemedicine Visit 
  • The Impacts of Telemedicine for Multiple Myeloma Patients 
  • Health Equity and Disparities in Multiple Myeloma 
  • Multiple Myeloma TelemEDucation Resources 

Provides tools and resources for living with and beyond multiple myeloma.

Topics:

  • Tools for Living Well with Multiple Myeloma 
  • Understanding Multiple Myeloma Treatment Options 
  • THRIVE Multiple Myeloma Resources 

Provides tools and resources for living with and beyond CAR T-Cell Therapy.

Topics:

  • Understanding CAR T-Cell Therapy 
  • Preparing for CAR T-Cell Therapy 
  • Support and Resources for CAR T-Cell Therapy 
  • THRIVE CAR T-Cell Therapy Resources 

Looking for more information?

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Lisa Hatfield

Multiple Myeloma Empowerment Lead

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