National Organization for Rare Disorders (NORD)


National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 300 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

NORD Resources

NORD’s Rare Disease Fact Sheet
NORD’s I AM RARE (IAMRARE) Registry Fact Sheet
NORD fact sheet about rare diseases