Multiple Myeloma | Empowering Providers to Empower Patients (EPEP)
April 2024
The goal of the Empowering Multiple Myeloma Providers to Empower Patients (EPEP) initiative is to improve physician-patient communication and shared decision-making and the role that patients, survivors, care partners, and providers each play in that process.
This initiative includes:
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Empowered patients typically achieve better health outcomes. Patient empowerment happens when:
- Healthcare professional and patient/care partner establish a positive relationship early in their relationship
- Healthcare professional shares treatment options in an easy to understand way and can adapt to differing communications preferences/styles
- Patient is treated as a partner and is encouraged, by their healthcare professional, to play an active role in healthcare decisions
- Healthcare professional and patient partner to determine best treatment path
- Patient feels in control when making healthcare decisions
Attributes of an empowered patient (as described by healthcare professionals):
- Patient can articulate their goals for care
- Patients are well-informed, in control, and deeply involved in decisions about their health
- Ask questions/seek information
- Have a strong social support system
EPEP Multiple Myeloma Roundtable
What Guidance Can Help Nurses With Clinical Trial Communication?
Understanding Unique Barriers Faced by Myeloma Research Nurses
How Do Research Nurses Assist Myeloma Patients on Their Journey?
EPEP Multiple Myeloma Resources
EPEP Multiple Myeloma Peer Insights
CELMoDs Tomorrow
Immunomodulators (IMDs) Today
Tailored Multiple Myeloma Care
Multiple Myeloma Community Barriers
Peer Insights | The Power of Patient-Centered Care
Peer Insights | Recognizing Implicit Bias and Respecting Patients’ Choices
Peer Insights | Cultural Humility Case Studies and Practical Applications
Peer Insights: Maximizing Myeloma Patient Care
EPEP Multiple Myeloma Portal
The Empowering Multiple Myeloma Providers to Empower Patients Portal uses PEN’s robust resource library and that of numerous trusted advocacy partners to collate a vetted list of patient education resources, all in one place.
Select resources below and receive an emailed PDF within minutes to share with your patients – try it today.
This Empowering (Myeloma) Providers to Empower Patients (EPEP) checklist is brought to you by the Patient Empowerment Network. It is made possible through support from Bristol Myers Squibb and generous donations from people like you.