What type of cancer and stage?
A: Thyroid; Variant: Papillary, classical type; Stage: I with metastases to lymph nodes
What was your treatment path?
A: Two partial lobectomies and one round of radioactive iodine therapy; Ongoing treatment: Levothyroxine
As a PEN Network Manager, what are your interests and how are you helping other patients?
A: Patient education, patient-provider communication, policy, health literacy, adolescent and young adult outcomes/quality of life (all in the context of cancer)
Most frequently asked question: How has cancer affected your life?
A: Cancer has affected my life in a number of ways, both negative and positive. Looking at the negative, most people don’t understand what going through cancer is like, so it’s hard for me to explain the way I feel and know that my feelings are understood. I also experience depression, anxiety, hair loss, fatigue, and fluctuations in body temperature and mood. One thing I wish more people would understand is symptoms don’t stop once you enter survivorship. It’s an ongoing battle. On the other hand, there have many silver linings of having cancer. I found my passion in helping other cancer patients through different avenues, I’ve made friends and joined communities of people who “get it,” and I found new strength in who I am as a person.
Where can you find Carly?