Patient Empowerment Network Programs
By participating in Patient Empowerment Network programs, cancer patients, care partners, and/or healthcare professionals will be able to…
(ACT)IVATED
This program will provide patients and care partners with tools to feel activated and connect with resources to help overcome barriers to accessing care and bridging gaps in underrepresented communities.
Disease Areas:
Care Partner Toolkit: CAR-T Cell Therapy
Caring for a loved one who is undergoing or has received CAR T-cell therapy presents unique challenges. The Care Partner Toolkit: CAR T-Cell Therapy series equips care partners support their loved one—and yourself—while collaborating and communicating with the patient’s healthcare team.
Focus Area:
digital sherpa™ Train-the-Trainer
This program provides digital literacy skills training to older cancer patients and underrepresented communities across the U.S. by building the capacity of community-based organizations (CBOs) to deliver educational workshops through a ‘Train-the-Trainer’ initiative of our established digital sherpa™ program.
Program Versions:
Empowering Providers to Empower Patients (EPEP)
This program will provide healthcare providers/professionals with the tools to feel empowered about shared decision making and connect patients in underrepresented communities with resources to help them overcome barriers to accessing care and improving their cancer outcomes.
Disease Areas:
Empowerment Leads
Our Empowerment Leads are passionate volunteers from all over the country who have been impacted by a cancer diagnosis in various ways. The Empowerment Leads provide support to others who are facing a cancer diagnosis by creating up-to-date and personalized content and encouraging connection through various platforms including PEN’s support text-line, email, and social media.
Disease/Focus Areas:
- Acute Myeloid Leukemia (AML): Art Flatau & Sasha Tanori
- Breast Cancer: Mary Leer & Sabrina Ocasio
- Care Partner: Sherea Cary
- Chronic Lymphocytic Leukemia (CLL): Volleen White
- Colon Cancer: Jessica Catlin
- Financial: Diahanna Vallentine
- Gynecological Cancers: Linda Ryan
- Head & Neck Cancer: Sajjad Iqbal
- Lung Cancer : Christine Wu
- Multiple Myeloma: Lisa Hatfield
- Myeloproliferative Neoplasms (MPNs): Jeff Bushnell & Summer Golden
- Prostate Cancer: Gary Hooker
- Renal Medullary Carcinoma (RMC): Cora Connor
- Thyroid Cancer: Carly Flumer
Equity Rx for Community Wellness
This program provides actionable insights on how to improve cancer care for all patients by focusing on meaningful coping techniques that help maximize their well-being.
Disease Area:
Evolve
For cancer patients at any stage of their journey, EVOLVE will provide patients and care partners with an understanding of the importance and benefits of new therapies, clinical trial participation, and research. Everyone’s cancer is different, so it’s vital to understand that research has evolved, and personalized medicine is becoming more and more prevalent. By raising patients’ awareness of the latest research and treatments, they will feel well-informed when discussing newer therapies and clinical trials with their healthcare team.
Disease Area:
- CAR-T Cell Therapy – Coming Soon!
- Endometrial Cancer
- Multiple Myeloma
- Non-Melanoma Skin Cancer
INSIST!
Biomarker testing is a vital tool at every stage of a cancer journey—not just at the point of diagnosis. The INSIST! Program will provide you with an understanding of how biomarker testing can help you to make informed decisions and achieve the best possible outcome for your diagnosis and treatment.
Disease Areas:
START HERE
The START HERE program bridges the expert and patient voice, enabling patients to ask treatment questions of their healthcare team with precision. The goal of this program is to use PEN’s robust resource library to help patients create a treatment plan that’s right for them. With health literacy in mind, START HERE provides clear, concise, and digestible information about specific cancer care questions, creating actionable pathways for getting the most out of treatment.
Disease Areas:
Thrive
As an expansion to THRIVE 2022, the THRIVE program seeks to holistically engage patients in their care and treatment decisions. By providing patients with the tools to understand their diagnosis and navigate their care, they will feel informed and educated when collaborating with their team to make key decisions.