Last week, we hosted an #patientchat on Patient Access: Let’s Talk Health Data. The #patientchat community came together for an engaging discussion and shared what was their mind. Top Tweets Health Literacy is Key “Data can help others learn!” First, De-Indentify and Anonymize Data Full Chat
A Diverse Health Hub #NewsyNugget How Can Myeloma Patients Facing Disparities Be More Proactive in Their Care? Dr. Victoria Vardell of Huntsman Cancer Institute discusses her study where key findings reveal underserved myeloma patient populations are less likely to receive a stem cell transplant (SCT). Vardell encourages patients to ask questions of their providers until […]
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Is Myeloma Hereditary? The Facts. from Patient Empowerment Network on Vimeo. Can myeloma be inherited? Dr. Irene Ghobrial, a myeloma expert and researcher, explains whether myeloma is hereditary. Dr. Irene Ghobrial is Director of the Clinical Investigator Research Program at Dana-Farber Cancer Institute and Professor of Medicine at Harvard Medical School. Dr. Ghobrial specializes in […]
The Truth About MGUS from Patient Empowerment Network on Vimeo. Is MGUS the same as smoldering myeloma? Myeloma expert, Dr. Irene Ghobrial, provides a detailed overview of MGUS, including the risk of progression. Dr. Irene Ghobrial is Director of the Clinical Investigator Research Program at Dana-Farber Cancer Institute and Professor of Medicine at Harvard Medical […]
Why Should Myeloma Patients Visit the Dentist Frequently? from Patient Empowerment Network on Vimeo. Dr. Irene Ghobrial, a renowned myeloma specialist, explains why myeloma patients should be more vigilant about visiting the dentist. Dr. Irene Ghobrial is Director of the Clinical Investigator Research Program at Dana-Farber Cancer Institute and Professor of Medicine at Harvard Medical […]
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The Truth About Myeloma Treatment Side Effects from Patient Empowerment Network on Vimeo. Managing myeloma treatment side effects can be overwhelming. Dr. Irene Ghobrial reviews common side effects and shares how life can go on, even while undergoing treatment for myeloma. Dr. Irene Ghobrial is Director of the Clinical Investigator Research Program at Dana-Farber Cancer […]
Addressing Clinical Trial Misconceptions: The Facts. from Patient Empowerment Network on Vimeo. Dr. Irene Ghobrial, a myeloma specialist and researcher, dispels common myths associated with clinical trials, including a review of each phase of the clinical trial process. Dr. Irene Ghobrial is Director of the Clinical Investigator Research Program at Dana-Farber Cancer Institute and Professor […]
Myeloma Treatment Options: What’s Available? from Patient Empowerment Network on Vimeo. Renowned myeloma researcher, Dr. Irene Ghobrial, provides an overview of current treatment options for myeloma, including an explanation of the now commonly used four-drug regimen. Dr. Irene Ghobrial is Director of the Clinical Investigator Research Program at Dana-Farber Cancer Institute and Professor of Medicine […]
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Last week, we hosted an #patientchat on A Year in Review: Looking Back on 2019 and Ahead to 2020. The #patientchat community came together for an engaging discussion and shared what was their mind. Top Tweets Patients Own Their Data Collaboration Means Everyone Find Something You Enjoy Full Chat
Fact or Fiction? Myeloma Treatment & Side Effects from Patient Empowerment Network on Vimeo. When it comes to online myeloma information, how do you separate fact from fiction? Dr. Irene Ghobrial shares facts about current myeloma treatments, common side effects and emerging research. Dr. Irene Ghobrial is Director of the Clinical Investigator Research Program […]
An MPN Care Partner Shares Why He’s Optimistic About the Future from Patient Empowerment Network on Vimeo. Care partner Jeff Bushnell, husband of myelofibrosis (MF) patient advocate Summer Golden, explains why he’s hopeful about their future together. Jeff shares key resources that have helped him stay educated and maintain optimism. Summer Golden and Jeff Bushnell […]
A Care Partner’s Journey: How Life Goes on After an MPN Diagnosis from Patient Empowerment Network on Vimeo. Care partner Jeff Bushnell shares how he and his wife, patient advocate Summer Golden, have dealt with her myelofibrosis (MF) diagnosis. Jeff explains how online support and finding an MPN specialist were essential steps in helping them […]
