Entries by Kara Rayburn

Tackling Medicine’s ‘Taboo’ Subjects

Many people feel reticent to speak about their personal medical problems and for 3% of Americans, the problem is so extreme that they feel they cannot speak to a doctor at all. While most concerns lead to nothing serious, there will be occasions where an inability to speak up can lead to further problems. Empowering people […]

Get The Best Myeloma Care NOW: A Physician’s View

Get The Best Myeloma Care NOW: A Physician’s View from Patient Empowerment Network on Vimeo. Advocating for yourself is critical when diagnosed with multiple myeloma. Dr. Peter Forsberg details the value of collaborating with your healthcare team on treatment decisions. Dr. Peter Forsberg is assistant professor of medicine at the University of Colorado School of […]

How Can Patients Learn About Developing CLL Research?

How Can Patients Learn About Developing CLL Research? from Patient Empowerment Network on Vimeo. Dr. Danielle Brander explains why it’s important for chronic lymphocytic leukemia (CLL) patients to stay up-to-date on developing research and treatment news. Dr. Brander also shares resources for learning more about clinical studies. Dr. Danielle Brander is Director of the CLL […]

How is a CLL Treatment Path Determined?

How is a CLL Treatment Path Determined? from Patient Empowerment Network on Vimeo. Dr. Danielle Brander explains the patient-specific factors and disease-specific factors that are taken into consideration when determining a treatment approach for people with CLL. Dr. Danielle Brander is Director of the CLL and Lymphoma Clinical Research Program at Duke Cancer Institute. Learn more about […]

Is It Difficult to Participate in a Clinical Trial?

Clinical Trial Mythbusters   Downloadable Program Guide Three experts discuss the clinical trial process and the difficulty in participating in a trial. Our expert panel includes: Ken Getz, MBA – Founder and Board Chair, CISCRP Andy Lee – Senior Vice President and Head, Global Clinical Trial Operations, Merck T.J. Sharpe – Melanoma Survivor and Patient […]

AML Treatment Options: What’s Available?

AML Treatment Options: What’s Available? from Patient Empowerment Network on Vimeo. Dr. Jessica Altman reviews currently available treatments for acute myeloid leukemia (AML), including chemotherapy, stem cell transplant, and clinical trials. Dr. Jessica Altman is Director of the Acute Leukemia Program at Robert H. Lurie Comprehensive Cancer Center of Northwestern University. More about Dr. Altman here. […]

How is an AML Treatment Approach Determined?

How is an AML Treatment Approach Determined? from Patient Empowerment Network on Vimeo.  AML expert, Dr. Jessica Altman, discusses the factors she considers when making treatment decisions for patients. Dr. Jessica Altman is Director of the Acute Leukemia Program at Robert H. Lurie Comprehensive Cancer Center of Northwestern University. See More From The Fact or […]

Relapsed and Refractory Multiple Myeloma: What’s the Difference?

Relapsed and Refractory Multiple Myeloma: What’s the Difference? from Patient Empowerment Network on Vimeo. Dr. Peter Forsberg defines relapsed and refractory myeloma, terms often used when discussing myeloma, but not always explained. Dr. Peter Forsberg is assistant professor of medicine at the University of Colorado School of Medicine and is a specialist in multiple myeloma. […]

Overwhelmed By a Myeloma Diagnosis? The Key Steps to Take

Overwhelmed By a Myeloma Diagnosis? The Key Steps to Take from Patient Empowerment Network on Vimeo.  A myeloma diagnosis can be overwhelming and, in some cases, patients and caregivers may feel frantic or scared. Dr. Forsberg outlines clear steps to approaching a myeloma diagnosis. Dr. Peter Forsberg is assistant professor of medicine at the University […]

Open Mic #patientchat Highlights

Last week, we hosted an Open Mic Empowered #patientchat. The #patientchat community came together for an engaging discussion and shared what was their mind. Top Tweets “How do you keep focused on yourself and the things you have rather than what you don’t?” Mental Health’s Stigma Mental Health Should Be Apart of Care Coordination Full Chat

How to Care from Afar

This video was originally published on YouTube on March 7, 2019 by Family Caregiver Alliance. One of the most difficult and time-consuming tasks many caregivers face is the coordination of care for their loved one. This is especially true for long-distance caregiving. This webinar will illustrate the challenges and suggest potential solutions for long-distance caregivers. […]

Why Getting a 2nd and 3rd Opinion Made a Difference In Her Cancer Treatment, With Sasha Denisova

This podcast was originally publish on WE Have Cancer by Lee Silverstein on May 7, 2019 here. Sasha Denisova – WE Have Cancer Seeking out a 2nd and 3rd opinion in her cancer treatment resulted in a dramatic improvement in Sasha Denisova’s quality of life. Sasha first appeared on this podcast in Episode 83 where she shared the struggle she […]

Take Control Of Your Care When You’re Seriously Sick via NPR

This podcast was originally publish on NPR by John Henning Schumann, Mara Gordon, and Chloee Weiner on September 7, 2019 here. Finding out you have a serious medical condition can leave you reeling. These strategies from medical and lay experts will help you be in control as you navigate our complex health care system and get the best possible […]