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July 2020

2020 Living Rare, Living Stronger™ NORD® Patient and Family Forum

July 18 - July 19

Attend the rare disease patient and family event of the year: the 2020 Living Rare, Living Stronger™ NORD® Patient and Family Forum (July 18-19), a two-day virtual conference filled with learning, connecting and fun. The agenda includes sessions in which patients and their families can gain insight and practical tools for living their best lives with rare diseases, with workshops provided for newly-diagnosed patients, long-term patients, caregivers, physicians and medical students. The Forum will feature interactive Q&As, inspiring online panels…

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How Can I Get the Best Multiple Myeloma Care No Matter Where I Live?

July 29 @ 2:00 pm - 2:45 pm EDT

“Myeloma patients who are African-American and Hispanic typically get to the right treatment much later. In a lot of cases they may not get to the right treatment at all. We also know that the burden of cost of care is much higher for minority patients.” -  Dr. Sikander Ailawadhi There is a critical need to raise awareness of the treatment gaps among minority populations living with multiple myeloma. How can myeloma patients get the best care no matter where…

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August 2020

Empowered #patientchat – August 7

August 7 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, August 7th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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September 2020

Empowered #patientchat – September 4

September 4 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, September 4th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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Empowered #patientchat – September 18

September 18 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, September 18th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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October 2020

Empowered #patientchat – October 2

October 2 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, October 2nd on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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Empowered #patientchat – October 16

October 16 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, October 16th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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Empowered #patientchat – October 30

October 30 @ 1:00 pm - 2:00 pm EDT
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, October 30th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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November 2020

Empowered #patientchat – November 13

November 13 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, November 13th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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No Empowered #patientchat – Happy Thanksgiving!

November 27

There will be no Empowered #patientchat today. Enjoy the holiday and we hope to see you for our next discussion on Friday, December 11th.

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December 2020

2020 ASH Annual Meeting

December 5 - December 8
San Diego Convention Center, 111 W Harbor Dr
San Diego, CA 92101 United States
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Mark your calendar for the world's most comprehensive hematology event of the year, the 62nd ASH Annual Meeting and Exposition in sunny San Diego. The meeting will provide an invaluable educational experience and the opportunity to review thousands of scientific abstracts highlighting updates in the hottest topics in hematology. Network with top minds in the field and a global community of more than 30,000 hematology professionals from every subspecialty.

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Empowered #patientchat – December 11

December 11 @ 1:00 pm - 2:00 pm EST
Twitter

You’re Invited! We hope you'll join us for our next Empowered #patientchat discussion Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients. Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate. We hope to see you Friday, December 11th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

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No Empowered #patientchat – Happy Holidays!

December 25

There will be no Empowered #patientchat today. Enjoy the holidays and we hope to see you in 2021!

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