MPNs | Empowering Providers to Empower Patients (EPEP)
September 2024
The goal of the Empowering MPN Providers to Empower Patients (EPEP) initiative is to improve physician-patient communication and shared decision-making and the role that patients, survivors, care partners, and providers each play in that process.
This initiative includes:
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Empowered patients typically achieve better health outcomes. Patient empowerment happens when:
- Healthcare professional and patient/care partner establish a positive relationship early in their relationship
- Healthcare professional shares treatment options in an easy to understand way and can adapt to differing communications preferences/styles
- Patient is treated as a partner and is encouraged, by their healthcare professional, to play an active role in healthcare decisions
- Healthcare professional and patient partner to determine best treatment path
- Patient feels in control when making healthcare decisions
Attributes of an empowered patient (as described by healthcare professionals):
- Patient can articulate their goals for care
- Patients are well-informed, in control, and deeply involved in decisions about their health
- Ask questions/seek information
- Have a strong social support system
EPEP MPNs Roundtable
Myeloproliferative Neoplasm Care Gaps | Effective Strategies to Improve Care
What Are Key Challenges and Potential Solutions In MPN Management?
MPN Treatment Barriers | Impacts and Solutions for Healthcare Providers
MPN Care Barriers | Gaps in Patient-Centered Care
Tracking MPN Symptoms: Strategies for Managing Disease Burden
EPEP MPNs Resources
Empowering MPN Providers to Empower Their Patients
EPEP MPN Resource Guide
Cultural Competence vs. Cultural Humility
Practicing Cultural Humility to Empower Your Patients
EPEP MPNs Portal
The Empowering MPN Providers to Empower Patients Portal uses PEN’s robust resource library and that of numerous trusted advocacy partners to collate a vetted list of patient education resources, all in one place.
Select resources below and receive an emailed PDF within minutes to share with your patients – try it today.
Empowering MPN Providers to Empower Patients (EPEP) is brought to you by the Patient Empowerment Network. It is made possible through support from Incyte Corporation, Karyopharm, and generous donations from people like you.